Acta dermato-venereologica · 2021
Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24.
СтатьяМногоцентровое исследованиеНазвание и аннотация: Перевод пока не подготовлен
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Marron Servando E, Gomez-Barrera Manuel, Tomas Aragones Lucía, Goni-Navarro Ana, Vilarrasa-Rull Eva, Diaz-Diaz Rosa María, Garcia-Latasa de Aranibar Francisco Javier, Campos-Rodenas Ricardo, Fuentelsaz Del Barrio Victoria, Gilaberte-Calzada Yolanda, Gracia-Cazaña Tamara, Morales-Callaghan Anna María, Ros-Abarca Sandra, Madrid-Alvarez María Blanca, Puig Lluís
Аннотация
To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv-es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi-centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceiv-ed by patients.