[Development of an Intervention to Enhance Health Literacy of Patients with Common Variable Immunodeficiency (CVID)].

OBJECTIVE

The aim of the article was to describe the development of a training program to enhance the health literacy of patients with immunodeficiency. In addition, patient satisfaction and acceptance of the training will be evaluated.

METHODS

Patients' needs were identified with a questionnaire (N=238). Additionally, interviews with clinical immunologists (N=5) and patients with common variable immunodeficiency (CVID) (N=9) were conducted. On this basis, the authors developed a manual for the intervention. It focuses on active communication with physicians as well as health-related communication at the workplace. The evaluation of patient satisfaction with the intervention was based on a questionnaire (N=49).

RESULTS

The results show that the ratings of the patients were in the good to very good range (M=1.77; SD=0.38). From the analysis of the free text, hints for training improvement could be derived.

CONCLUSION

Evaluation of the intervention showed that the new training was accepted and patients considered it comprehensible and relevant.