Danish medical journal · 2015
Patients use normalisation techniques to cope with the quality-of-life effects of anal cancer.
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Mortensen Gitte Lee, Lundby Lilli
Аннотация
INTRODUCTION: Anal cancer is a rare malignancy, but during the past three decades, its incidence has increased in both sexes. Approximately 90% of anal cancers are related to human papillomavirus infection. The primary treatment for anal cancer is radiotherapy or radio-chemotherapy. This quality of life (QoL) study aimed at obtaining in-depth knowledge about patients' experiences with anal cancer and its impact on their QoL.
METHODS: A literature study identified topics for qualitative interviews with six anal cancer patients who had received oncological treatment and were without recurrent disease. The interviews were analysed using a medical anthroo-logical approach focusing on patients' health-related phys-ical, psycho-sexual and social QoL.
RESULTS: The participants suffered from common sequelae of anal cancer treatment, mainly ano-genital pain, reduced sphincter function and sexual dysfunction. The participants employed a number of "normalisation techniques", including dissociation from other cancer patients, delimitation of the cancer to a perceived external and peripheral body part and fast resumption of their usual activities.
CONCLUSION: Anal sphincter dysfunction and sexual problems after radiotherapy for anal cancer may have a major impact on patients' QoL. By maintaining normalcy, patients tried to distance themselves from this tabooed cancer disease.
FUNDING: not relevant.
TRIAL REGISTRATION: not relevant, but approval was obtained from the Danish Data Protection Agency.
METHODS: A literature study identified topics for qualitative interviews with six anal cancer patients who had received oncological treatment and were without recurrent disease. The interviews were analysed using a medical anthroo-logical approach focusing on patients' health-related phys-ical, psycho-sexual and social QoL.
RESULTS: The participants suffered from common sequelae of anal cancer treatment, mainly ano-genital pain, reduced sphincter function and sexual dysfunction. The participants employed a number of "normalisation techniques", including dissociation from other cancer patients, delimitation of the cancer to a perceived external and peripheral body part and fast resumption of their usual activities.
CONCLUSION: Anal sphincter dysfunction and sexual problems after radiotherapy for anal cancer may have a major impact on patients' QoL. By maintaining normalcy, patients tried to distance themselves from this tabooed cancer disease.
FUNDING: not relevant.
TRIAL REGISTRATION: not relevant, but approval was obtained from the Danish Data Protection Agency.