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DOI 10.1016/j.focus.2025.100443

Медицинская библиотека · AJPM focus · 2025

Proximity to Healthcare Services Among Individuals With Duchenne Muscular Dystrophy.

Thomas Shiny, Jaff Treeva A, Conway Kristin M, Romitti Paul A, Insaf Tabassum Z, Sommerhalter Kristin, Gedlinske Amber, Crenshaw Emma, Whitehead Nedra, Humphries Brian, Berry Reba, Royer Julie, Mann Joshua R, Krikov Sergey, Pula Jayaram Manju Jayasimha, Feldkamp Marcia L, Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)

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Аннотация

INTRODUCTION

The aim of this study was to describe travel from residence to healthcare facilities among individuals with Duchenne muscular dystrophy.

METHODS

The sample included 302 males with Duchenne muscular dystrophy born on January 1, 2000, and followed through December 31, 2015. Using geocoded residential and facility addresses, the authors estimated travel time for trips to unique facilities.

RESULTS

The authors identified 7,546 provider visits and 6,064 visits to unique facilities. Over an average of 4.8 person-years of follow-up, the authors estimated a mean of 5.3 unique provider visits and a mean of 4.3 unique visits to facilities per person-year. Overall median drive time exceeded 1.5 hours roundtrip, and averaged overall median 1-way public transit time was 1.9 hours. The longest drive times were detected among younger, non-Hispanic Whites, and other race/ethnicity groups.

CONCLUSIONS

The findings suggest long travel times for clinical care for a subset of individuals. Additional research is needed to examine the burden associated with traveling to healthcare facilities.

Для цитирования: Thomas Shiny, Jaff Treeva A, Conway Kristin M, Romitti Paul A, Insaf Tabassum Z, Sommerhalter Kristin, Gedlinske Amber, Crenshaw Emma, Whitehead Nedra, Humphries Brian, Berry Reba, Royer Julie, Mann Joshua R, Krikov Sergey, Pula Jayaram Manju Jayasimha, Feldkamp Marcia L, Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet). Proximity to Healthcare Services Among Individuals With Duchenne Muscular Dystrophy.. AJPM focus. 2025. DOI: 10.1016/j.focus.2025.100443.
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