Haemophilia : the official journal of the World Federation of Hemophilia · 2025
Study on Psychiatric Aspects, Psychosocial and Cognitive Functioning in Adolescents With Haemophilia.
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Choudhary Hemant, Sagar Rajesh, Seth Tulika, Bhargava Rachna, Patra Bichitra Nanda
Аннотация
INTRODUCTION: Haemophilia, an inherited bleeding disorder, impacts physical and mental health. With improving survival, the focus is on mental health issues.
AIM: We examined and compared mental health issues in adolescents with haemophilia (AwH) in India with those of healthy controls. Additionally, we examined the relationship between quality of life and these mental health issues.
METHODS: Standardized assessments were applied (between 2021 and 2022) on male cases (n = 31) and controls (n = 31) to measure psychiatric morbidity, psychosocial, and neuro-cognitive functioning. Correlational analysis of quality of life with various mental health issues was also performed.
RESULTS: AwH had more emotional, social and behavioural problems, poor quality of life, more cognitive dysfunction, with no statistically significant difference in self-esteem as compared to healthy controls. There was a significant negative correlation between the quality of life and psychiatric morbidities, emotional and behavioural problems and cognitive dysfunction.
CONCLUSION: These findings corroborate evidence from other countries and emphasize the need for assessment of mental health issues and integration of mental health professionals in clinical services for AwH in India.
AIM: We examined and compared mental health issues in adolescents with haemophilia (AwH) in India with those of healthy controls. Additionally, we examined the relationship between quality of life and these mental health issues.
METHODS: Standardized assessments were applied (between 2021 and 2022) on male cases (n = 31) and controls (n = 31) to measure psychiatric morbidity, psychosocial, and neuro-cognitive functioning. Correlational analysis of quality of life with various mental health issues was also performed.
RESULTS: AwH had more emotional, social and behavioural problems, poor quality of life, more cognitive dysfunction, with no statistically significant difference in self-esteem as compared to healthy controls. There was a significant negative correlation between the quality of life and psychiatric morbidities, emotional and behavioural problems and cognitive dysfunction.
CONCLUSION: These findings corroborate evidence from other countries and emphasize the need for assessment of mental health issues and integration of mental health professionals in clinical services for AwH in India.