BJPsych open · 2019
Care experiences of young people with eating disorders and their parents: qualitative study.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
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Mitrofan Oana, Petkova Hristina, Janssens Astrid, Kelly Jonathan, Edwards Eve, Nicholls Dasha, McNicholas Fiona, Simic Mima, Eisler Ivan, Ford Tamsin, Byford Sarah
Аннотация
BACKGROUND: Perspectives of young people with eating disorders and their parents on helpful aspects of care should be incorporated into evidence-based practice and service design, but data are limited.AimsTo explore patient and parent perspectives on positive and negative aspects of care for young people with eating disorders.
METHOD: Six online focus groups with 19 young people aged 16-25 years with existing or past eating disorders and 11 parents.
RESULTS: Thematic analysis identified three key themes: the need to (a) shift from a weight-focused to a more holistic, individualised and consistent care approach, with a better balance in targeting psychological and physical problems from an early stage; (b) improve professionals' knowledge and attitude towards patients and their families at all levels of care from primary to 'truly specialist'; (c) enhance peer and family support.
CONCLUSIONS: Young people and parents identified an array of limitations in approaches to care for young people with eating disorders and raised the need for change, particularly a move away from a primarily weight-focused treatment and a stronger emphasis on psychological needs and individualised care.Declaration of interestNone.
METHOD: Six online focus groups with 19 young people aged 16-25 years with existing or past eating disorders and 11 parents.
RESULTS: Thematic analysis identified three key themes: the need to (a) shift from a weight-focused to a more holistic, individualised and consistent care approach, with a better balance in targeting psychological and physical problems from an early stage; (b) improve professionals' knowledge and attitude towards patients and their families at all levels of care from primary to 'truly specialist'; (c) enhance peer and family support.
CONCLUSIONS: Young people and parents identified an array of limitations in approaches to care for young people with eating disorders and raised the need for change, particularly a move away from a primarily weight-focused treatment and a stronger emphasis on psychological needs and individualised care.Declaration of interestNone.