Clinical, cosmetic and investigational dermatology · 2023
Requirements for Brazilian Outpatient Centers of Excellence in Hidradenitis Suppurativa: Consensus Co-Creative Study.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
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Bellei Ericles Andrei, Shirozaki Miriam Emi Makinodan, Puglia Ana Lia Pradella, Esteves de Carvalho André Vicente, Riquena Barbara, Vallilo Camilla Carlini, de Barros Danilo, Tamashiro Erika Yumi, Cintra Gabriela, Duarte Gleison Vieira, da Matta Rivitti-Machado Maria Cecília, Magalhães Renata Ferreira, do Nascimento Ricardo Figueiredo, Tunala Roberto, da Silva Roberto, Cesar Wagner Guimarães Galvão, Thies Felipe Garutti
Аннотация
BACKGROUND: Hidradenitis suppurativa (HS) is a chronic skin condition. Its complexity and impact on patients highlight the need for multidisciplinary care that can address the physical, psychological, and social aspects. Centers of excellence can ideally provide the necessary infrastructure, resources, and expertise to effectively treat HS. However, there are still no consolidated models of centers of excellence in HS, and establishing their foundations is an intricate research challenge. Purposely, design and co-creation as innovation techniques are helpful approaches to this type of research.
METHODS: In this study, we conducted a co-creation with consensus among HS specialists to propose the criteria and requirements to establish outpatient centers of excellence of HS in Brazil. We followed a linear process with mixed methods in 6 stages.
RESULTS: The process resulted in 10 categories for establishing outpatient centers, including their respective requirements, rationale, and classification. The categories include onboarding and welcoming; infrastructure and procedures; infusion therapy; flows and referrals; staffing; disease management; metrics during diagnosis; metrics during treatment; awareness and advocacy; research and education.
DISCUSSION: The idealized outpatient centers can play a role in the complete multidisciplinary treatment for HS and advancing the science of healthcare services by providing a focus for research, training, and translation of findings into practice.
METHODS: In this study, we conducted a co-creation with consensus among HS specialists to propose the criteria and requirements to establish outpatient centers of excellence of HS in Brazil. We followed a linear process with mixed methods in 6 stages.
RESULTS: The process resulted in 10 categories for establishing outpatient centers, including their respective requirements, rationale, and classification. The categories include onboarding and welcoming; infrastructure and procedures; infusion therapy; flows and referrals; staffing; disease management; metrics during diagnosis; metrics during treatment; awareness and advocacy; research and education.
DISCUSSION: The idealized outpatient centers can play a role in the complete multidisciplinary treatment for HS and advancing the science of healthcare services by providing a focus for research, training, and translation of findings into practice.