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DOI 10.1016/j.semarthrit.2024.152378

Медицинская библиотека · Seminars in arthritis and rheumatism · 2024

The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation.

Gordon Rachael A, Nguyen Yann, Foulquier Nathan, Beydon Maxime, Gheita Tamer A, Hajji Raouf, Sahbudin Ilfita, Hoi Alberta, Ng Wan-Fai, Mendonça Jose Alexandre, Wallace Daniel J, Shea Beverley, Bruyn George Aw, Goodman Susan M, Fisher Benjamin A, Baldini Chiara, Torralba Karina D, Bootsma Hendrika, Akpek Esen K, Karakus Sezen, Baer Alan N, Chakravarty Soumya D, Terslev Lene, D'Agostino Maria-Antonietta, Mariette Xavier, DiRenzo Dana, Rasmussen Astrid, Papas Athena, Montoya Cristina, Arends Suzanne, Yusof Md Yuzaiful Md, Pintilie Ionut, Warner Blake M, Hammitt Katherine M, Strand Vibeke, Bouillot Coralie, Tugwell Peter, Inanc Nevsun, Andreu José Luis, Wahren-Herlenius Marie, Devauchelle-Pensec Valerie, Shiboski Caroline H, Benyoussef Anas, Masli Sharmila, Lee Adrian Y S, Cornec Divi, Bowman Simon, Rischmueller Maureen, McCoy Sara S, Seror Raphaele

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Аннотация

Sjögren's disease (SjD) is a systemic autoimmune exocrinopathy with key features of dryness, pain, and fatigue. SjD can affect any organ system with a variety of presentations across individuals. This heterogeneity is one of the major barriers for developing effective disease modifying treatments. Defining core disease domains comprising both specific clinical features and incorporating the patient experience is a critical first step to define this complex disease. The OMERACT SjD Working Group held its first international collaborative hybrid meeting in 2023, applying the OMERACT 2.2 filter toward identification of core domains. We accomplished our first goal, a scoping literature review that was presented at the Special Interest Group held in May 2023. Building on the domains identified in the scoping review, we uniquely deployed multidisciplinary experts as part of our collaborative team to generate a provisional domain list that captures SjD heterogeneity.

Для цитирования: Gordon Rachael A, Nguyen Yann, Foulquier Nathan, Beydon Maxime, Gheita Tamer A, Hajji Raouf, Sahbudin Ilfita, Hoi Alberta, Ng Wan-Fai, Mendonça Jose Alexandre, Wallace Daniel J, Shea Beverley, Bruyn George Aw, Goodman Susan M, Fisher Benjamin A, Baldini Chiara, Torralba Karina D, Bootsma Hendrika, Akpek Esen K, Karakus Sezen, Baer Alan N, Chakravarty Soumya D, Terslev Lene, D'Agostino Maria-Antonietta, Mariette Xavier, DiRenzo Dana, Rasmussen Astrid, Papas Athena, Montoya Cristina, Arends Suzanne, Yusof Md Yuzaiful Md, Pintilie Ionut, Warner Blake M, Hammitt Katherine M, Strand Vibeke, Bouillot Coralie, Tugwell Peter, Inanc Nevsun, Andreu José Luis, Wahren-Herlenius Marie, Devauchelle-Pensec Valerie, Shiboski Caroline H, Benyoussef Anas, Masli Sharmila, Lee Adrian Y S, Cornec Divi, Bowman Simon, Rischmueller Maureen, McCoy Sara S, Seror Raphaele. The Sjögren's Working Group: The 2023 OMERACT meeting and provisional domain generation.. Seminars in arthritis and rheumatism. 2024. DOI: 10.1016/j.semarthrit.2024.152378.

Предметные рубрики MeSH

HumansTreatment OutcomeSjogren's SyndromePainFatigue
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