Journal of clinical medicine · 2023
Measuring Fatigue and Fatigability in Spinal Muscular Atrophy (SMA): Challenges and Opportunities.
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Rodriguez-Torres Rafael S, Uher David, Gay Emma L, Coratti Giorgia, Dunaway Young Sally, Rohwer Annemarie, Muni Lofra Robert, De Vivo Darryl C, Hirano Michio, Glynn Nancy W, Montes Jacqueline
Аннотация
Fatigue, a common symptom, together with the characteristic of performance fatigability, are well-documented features of SMA that impact quality of life and function. Importantly, establishing associations between multidimensional self-reported fatigue scales and patient performance has proven difficult. This review was conducted to evaluate the various patient-reported fatigue scales applied in SMA, with the objective of considering the limitations and advantages of each measure. Variable use of fatigue-related nomenclature, including conflicting terminology interpretation, has affected assessment of physical fatigue attributes, specifically perceived fatigability. This review encourages the development of original patient-reported scales to enable perceived fatigability assessment, providing a potential complementary method of evaluating treatment response.