Journal of Huntington's disease · 2018
Huntington's Disease Outpatient Clinic for Functional Diagnosis and Treatment: Coming to Consensus: How Long Term Care Facility Procedures Complement Specialist Diagnosis and Treatment.
Consensus StatementСтатьяНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Veenhuizen Ruth, Nijsten Hanneke, van Roosmalen Paul, Lammertsen Karen, Stor Tom, de Jager Lia, de Man Jesseke, van der Doelen Rina, Landa Karin, Grond Vera, Heffels Joyce, Groenewoud Rinske, Rovers Luce, Bakker Christian, Leiwakabessy Saskia, van der Wedden Dirk, van Blitterswijk Jacqueline, van den Bosch Dieuwke
Аннотация
Huntington's disease (HD) patients and families deserve expert treatment and care throughout their lives, but uniformity in functional diagnosis and treatment was lacking. In the aim of reaching this uniformity on day-to-day treatment and care offered by multidisciplinary outreach teams from Dutch long term care facilities for ambulatory HD patients, a consensus trajectory was started to harmonise our care programme with international standards and within the country. The consensus statements, given as supplementary material, should lead to expert treatment and care for HD families throughout the Netherlands and this manuscript should contribute and revitalise a global discussion on standards of treatment and care.