The Rett syndrome program project at Baylor College of Medicine.

The Baylor Rett syndrome (RS) program project has enrolled more than 60 of the anticipated 70 children to be evaluated over 5 years. The program is composed of 6 individual projects and a Core center for coordinating the evaluations and managing the data. The projects consist of I) Clinical assessment of RS; II) Status of communication skills in RS; III) Clinical neurophysiology and sleep in RS; IV) Epidemiology of RS; V) Molecular genetics in RS; and VI) Neuropathology of RS. This program project and a similar program at the Johns Hopkins University School of Medicine are complementary.