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DOI 10.1038/s41598-025-94171-2

Медицинская библиотека · Scientific reports · 2025

Translation, cross-cultural adaptation, and evaluation of psychometric properties of the cystic fibrosis stigma scale.

de Oliveira Victor Hugo Brito, Oliveira Thaianne Rangel Agra, da Silva Ivanízia Soares, Alchieri João Carlos, Pakhale Smita, Nogueira Ivan Daniel Bezerra, de Miranda Silva Nogueira Patrícia Angélica

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Аннотация

To translate, cross-culturally adapt, and evaluate the psychometric properties of the Cystic Fibrosis (CF) Stigma Scale. This exploratory methodological study involved the translation and cross-cultural adaptation using the translation, back-translation, review by experts committee, and pre-test steps. The psychometric properties were analyzed by applying the adapted instrument to a sample of 52 Brazilian individuals with CF over 18 years old. Moreover, the participants responded to the Short-Form 12-Item Survey - version 2 (SF-12v2), General Anxiety Disorder 7-item scale (GAD-7) and Cystic Fibrosis Quality of Life Questionnaire - Revised (CFQ-R). The content validity, test-retest reliability, and convergent validity were also assessed. The translation and cross-cultural adaptation obtained Cohen's kappa coefficients > 0.61 in the experts committee step and ranged between 0.48 and 0.72 in the pre-test. The Brazilian version of the CF Stigma Scale showed excellent psychometric properties, observed by the internal consistency (α = 0.836), mean correlation between items (0.3) and test-retest reliability (r = 0.886; p < 0.0001), and convergent validity (positive correlation with the anxiety scale and negative correlation with scores of overall and specific quality of life for CF). The Brazilian version of the CF Stigma Scale was accurately translated and cross-culturally adapted, with favorable psychometric properties for future studies involving the stigma experience in Brazilian individuals with CF over 18 years.

Для цитирования: de Oliveira Victor Hugo Brito, Oliveira Thaianne Rangel Agra, da Silva Ivanízia Soares, Alchieri João Carlos, Pakhale Smita, Nogueira Ivan Daniel Bezerra, de Miranda Silva Nogueira Patrícia Angélica. Translation, cross-cultural adaptation, and evaluation of psychometric properties of the cystic fibrosis stigma scale.. Scientific reports. 2025. DOI: 10.1038/s41598-025-94171-2.

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