Developing, optimizing, and evaluating patient infographics for diagnosing cardiac amyloidosis.

OBJECTIVE

Advancements in diagnostics and treatment options for cardiac amyloidosis have improved patient outcomes, yet few patient education materials exist to help patients understand the disease and diagnosis process. We sought to develop and evaluate a set of plain language, patient-centered infographics describing the condition and common diagnostic tests.

METHODS

Using health literacy best practices, we developed 7 infographics which were further revised based on multilevel stakeholder feedback. To evaluate the materials, we recruited 100 patients from healthcare settings in Chicago, IL; participants completed a web-assisted interview during which they were randomized 1:1 to first view either our infographics or a standard material. Participants completed a knowledge assessment on their assigned material and subsequently reported impressions of both materials.

RESULTS

No differences were found between study arms in knowledge. The infographics took significantly less time to read and were more highly rated by participants in terms of appearance and understandability. Over two-thirds of participants preferred the infographics to the standard.

CONCLUSIONS

The infographics created may improve the learning process about a complex condition and diagnosis process unknown to most adults.

INNOVATION: These infographics are the first of their kind for cardiac amyloidosis and were created using health literacy best practices.