Estimating the impact of COVID-19 pandemic on services provided by Italian Neuromuscular Centers: an Italian Association of Myology survey of the acute phase.
Обработка статьи · этапы, ошибки и управление
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Mauri Eleonora, Abati Elena, Musumeci Olimpia, Rodolico Carmelo, D'Angelo Maria Grazia, Mirabella Massimiliano, Lucchini Matteo, Bello Luca, Pegoraro Elena, Maggi Lorenzo, Manneschi Letizia, Gemelli Chiara, Grandis Marina, Zuppa Angela, Massucco Sara, Benedetti Luana, Caponnetto Claudia, Schenone Angelo, Prelle Alessandro, Previtali Stefano C, Scarlato Marina, D'Amico Adele, Bertini Enrico, Pennisi Elena M, De Giglio Laura, Pane Marika, Mercuri Eugenio, Mongini Tiziana, Ricci Federica, Berardinelli Angela, Astrea Guja, Lenzi Sara, Battini Roberta, Ricci Giulia, Torri Francesca, Siciliano Gabriele, Santorelli Filippo M, Ariatti Alessandra, Filosto Massimiliano, Passamano Luigia, Politano Luisa, Scutifero Marianna, Tonin Paola, Fossati Barbara, Panicucci Chiara, Bruno Claudio, Ravaglia Sabrina, Monforte Mauro, Tasca Giorgio, Ricci Enzo, Petrucci Antonio, Santoro Lucio, Ruggiero Lucia, Barp Andrea, Albamonte Emilio, Sansone Valeria, Gagliardi Delia, Costamagna Gianluca, Govoni Alessandra, Magri Francesca, Brusa Roberta, Velardo Daniele, Meneri Megi, Sciacco Monica, Corti Stefania, Bresolin Nereo, Moroni Isabella, Messina Sonia, Di Muzio Antonio, Nigro Vincenzo, Liguori Rocco, Antonini Giovanni, Toscano Antonio, Minetti Carlo, Comi Giacomo Pietro, Italian Association of Myology
Аннотация
METHODS: We developed an electronic survey that was sent to neuromuscular centers affiliated with the Italian Association of Myology, assessing changes in pharmacological therapies provision, outpatient clinical and instrumental services, support services (physiotherapy, nursing care, psychological support) and clinical trials.
RESULTS: 40% of surveyed neuromuscular centers reported a reduction in outpatient visit and examinations (44.5% of centers in Northern regions; 25% of centers in Central regions; 50% of centers in Southern regions). Twenty-two% of centers postponed in-hospital administration of therapies for neuromuscular diseases (23.4% in Northern regions; 13.0% in Central regions; 20% in Southern regions). Diagnostic and support services (physiotherapy, nursing care, psychological support) were suspended in 57% of centers (66/43/44% in Northern, Central and Southern centers respectively) Overall, the most affected services were rehabilitative services and on-site outpatient visits, which were suspended in 93% of centers. Strategies adopted by neuromuscular centers to overcome these changes included maintaining urgent on-site visits, addressing patients to available services and promoting remote contact and telemedicine.
CONCLUSIONS: Overall, COVID-19 pandemic resulted in a significant disruption of clinical and support services for patients with neuromuscular diseases. Despite the efforts to provide telemedicine consults to patients, this option could be promoted and improved further. A close collaboration between the different neuromuscular centers and service providers as well as further implementation of telehealth platforms are necessary to ensure quality care to NMD patients in the near future and in case of recurrent pandemic waves.