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DOI 10.1093/eurheartj/ehac426

Медицинская библиотека · European heart journal · 2022

CODE-EHR best practice framework for the use of structured electronic healthcare records in clinical research.

Kotecha Dipak, Asselbergs Folkert W, Achenbach Stephan, Anker Stefan D, Atar Dan, Baigent Colin, Banerjee Amitava, Beger Birgit, Brobert Gunnar, Casadei Barbara, Ceccarelli Cinzia, Cowie Martin R, Crea Filippo, Cronin Maureen, Denaxas Spiros, Derix Andrea, Fitzsimons Donna, Fredriksson Martin, Gale Chris P, Gkoutos Georgios V, Goettsch Wim, Hemingway Harry, Ingvar Martin, Jonas Adrian, Kazmierski Robert, Løgstrup Susanne, Thomas Lumbers R, Lüscher Thomas F, McGreavy Paul, Piña Ileana L, Roessig Lothar, Steinbeisser Carl, Sundgren Mats, Tyl Benoît, van Thiel Ghislaine, van Bochove Kees, Vardas Panos E, Villanueva Tiago, Vrana Marilena, Weber Wim, Weidinger Franz, Windecker Stephan, Wood Angela, Grobbee Diederick E, Innovative Medicines Initiative BigData@Heart Consortium, European Society of Cardiology, CODE-EHR international consensus group

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Аннотация

Big data is central to new developments in global clinical science aiming to improve the lives of patients. Technological advances have led to the routine use of structured electronic healthcare records with the potential to address key gaps in clinical evidence. The covid-19 pandemic has demonstrated the potential of big data and related analytics, but also important pitfalls. Verification, validation, and data privacy, as well as the social mandate to undertake research are key challenges. The European Society of Cardiology and the BigData@Heart consortium have brought together a range of international stakeholders, including patient representatives, clinicians, scientists, regulators, journal editors and industry. We propose the CODE-EHR Minimum Standards Framework as a means to improve the design of studies, enhance transparency and develop a roadmap towards more robust and effective utilisation of healthcare data for research purposes.

Для цитирования: Kotecha Dipak, Asselbergs Folkert W, Achenbach Stephan, Anker Stefan D, Atar Dan, Baigent Colin, Banerjee Amitava, Beger Birgit, Brobert Gunnar, Casadei Barbara, Ceccarelli Cinzia, Cowie Martin R, Crea Filippo, Cronin Maureen, Denaxas Spiros, Derix Andrea, Fitzsimons Donna, Fredriksson Martin, Gale Chris P, Gkoutos Georgios V, Goettsch Wim, Hemingway Harry, Ingvar Martin, Jonas Adrian, Kazmierski Robert, Løgstrup Susanne, Thomas Lumbers R, Lüscher Thomas F, McGreavy Paul, Piña Ileana L, Roessig Lothar, Steinbeisser Carl, Sundgren Mats, Tyl Benoît, van Thiel Ghislaine, van Bochove Kees, Vardas Panos E, Villanueva Tiago, Vrana Marilena, Weber Wim, Weidinger Franz, Windecker Stephan, Wood Angela, Grobbee Diederick E, Innovative Medicines Initiative BigData@Heart Consortium, European Society of Cardiology, CODE-EHR international consensus group. CODE-EHR best practice framework for the use of structured electronic healthcare records in clinical research.. European heart journal. 2022. DOI: 10.1093/eurheartj/ehac426.

Предметные рубрики MeSH

COVID-19Delivery of Health CareElectronic Health RecordsElectronicsHumansPandemics
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