Journal of perinatology : official journal of the California Perinatal Association · 2026
Developing a prioritized research agenda for necrotizing enterocolitis.
СтатьяСистематический обзорНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Patel Ravi Mangal, Rose Allison T, Neves Stacey, Giacinto Rebeca, Perez Susan, Kim Jae, Martin Camilia R, Good Misty, Yanowitz Toby, Profit Jochen, Scottoline Brian, Markel Troy A, Spruce Marie, Hair Amy, Underwood Mark, Quinn Jenny, Rosito Simone, Pryor Erin, Vernon Lelis, Mebane Amena, Green Linseigh, Umberger Erin, Canvasser Jennifer, NEC Society Patient-Centered Outcomes Research Leadership Team
Аннотация
BACKGROUND: Necrotizing enterocolitis (NEC) research priorities informed by a broad group of stakeholders have not been previously determined.
METHODS: We recruited 11 patient-families and 11 clinician-researchers to develop a prioritized research agenda from 11/19 to 8/22. We identified topics to prioritize through a systematic literature review, analysis of patient stories, and an open-ended survey, and prioritized these in a two-round Delphi process.
RESULTS: We identified and consolidated 157 potential topics from 1754 research articles, 236 patient-family stories, and 10 survey themes, focusing on patient-centered or comparative effectiveness research. The top 6 priorities were: (1) Medications and treatment to prevent NEC; (2) Human milk and lactation support; (3) Tools for diagnosing NEC; (4) Acute management of NEC; (5) Patient-family engagement; (6) Long-term gastrointestinal outcomes.
CONCLUSIONS: The top 6 research topics, identified collaboratively through patient-family and clinician-researcher partnerships, should be prioritized by scientists, administrators, funders, policymakers, and others to accelerate research meaningful to NEC stakeholders.
METHODS: We recruited 11 patient-families and 11 clinician-researchers to develop a prioritized research agenda from 11/19 to 8/22. We identified topics to prioritize through a systematic literature review, analysis of patient stories, and an open-ended survey, and prioritized these in a two-round Delphi process.
RESULTS: We identified and consolidated 157 potential topics from 1754 research articles, 236 patient-family stories, and 10 survey themes, focusing on patient-centered or comparative effectiveness research. The top 6 priorities were: (1) Medications and treatment to prevent NEC; (2) Human milk and lactation support; (3) Tools for diagnosing NEC; (4) Acute management of NEC; (5) Patient-family engagement; (6) Long-term gastrointestinal outcomes.
CONCLUSIONS: The top 6 research topics, identified collaboratively through patient-family and clinician-researcher partnerships, should be prioritized by scientists, administrators, funders, policymakers, and others to accelerate research meaningful to NEC stakeholders.