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DOI 10.1145/3710973

Медицинская библиотека · Proceedings of the ACM on human-computer interaction · 2025

Exploring Design Recommendations for Promoting Brain Health, ADRD Health Literacy, and Participation in clinical ADRD trials in Older African American/Black Adults.

Theisz Alec Andrew, Bosco Cristina, Torres John Osorio, Shojaei Fereshtehossadat, Lin Jenny, Cureton Bianca, Himes Anna K, Jessup Nenette M, Barnes Priscilla A, Lu Yvonne, Hendrie Hugh C, Hill Carl V, Shih Patrick C

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Alzheimer's Disease and related dementia (ADRD) is prevalent in one in nine individuals age 65 or above, and it has a 65% higher risk of incidence for African American/Black adults. With an aging population in the United States and persisting healthcare inequities for African American/Black adults, our research aims to explore design requirements of a digital health platform for delivering culturally relevant content that informs African Americans/Black adults (45 years and older) about brain health and participation in clinical ADRD studies. We conducted seven focus groups (n = 44) to collect information on facilitators and barriers to brain health literacy and participation in clinical ADRD research, followed by seven participatory design workshops (n = 44) to collaboratively develop solutions for improving brain health literacy and participation in clinical ADRD research. Our findings provide insights into incorporating community into accessible, technological design for reducing brain health disparities for African American/Black adults.

Для цитирования: Theisz Alec Andrew, Bosco Cristina, Torres John Osorio, Shojaei Fereshtehossadat, Lin Jenny, Cureton Bianca, Himes Anna K, Jessup Nenette M, Barnes Priscilla A, Lu Yvonne, Hendrie Hugh C, Hill Carl V, Shih Patrick C. Exploring Design Recommendations for Promoting Brain Health, ADRD Health Literacy, and Participation in clinical ADRD trials in Older African American/Black Adults.. Proceedings of the ACM on human-computer interaction. 2025. DOI: 10.1145/3710973.
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