BMJ paediatrics open · 2026
'She's surrounded by everybody, but yet seen by nobody.' Parents' experiences and priorities for neonatal developmental follow-up care.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Marcroft Claire, Basu Anna Purna, Kolehmainen Niina, Thomson Richard, Exley Catherine, Parent Advisory Group
Аннотация
BACKGROUND: Infants born very preterm (<30 weeks' gestational age) are at increased risk of long-term developmental challenges. Monitoring health and development after discharge home is an essential aspect of neonatal follow-up care; however, there is limited understanding of how parents and carers experience this care with their child or how their own needs are addressed.
METHODS: This study aimed to understand and evaluate parents' experiences of neonatal developmental follow-up. Participants were recruited purposively from three diverse National Health Service providers in England. Semi-structured qualitative interviews were conducted, and data were generated and analysed using a Constructivist Grounded Theory approach. Data collection and analysis occurred concurrently, supported by memoing, reflexivity and peer debriefing. Initial and focused coding led to the iterative development of categories.
RESULTS: Between January 2023 and October 2024, 24 interviews were conducted with parents of infants born before 30 weeks of gestation. Three categories were generated from the data analysis: parent support needs, disintegrated care and healthcare professional (HCP) experience and behaviours.
CONCLUSION: Parents highlighted that their psychological support needs were unmet during their child's neonatal developmental follow-up, and they found navigating healthcare services after discharge home challenging. Changes to care priorities are required, emphasising the development of integrated systems across service providers and geographical areas, and training for universal healthcare providers.
METHODS: This study aimed to understand and evaluate parents' experiences of neonatal developmental follow-up. Participants were recruited purposively from three diverse National Health Service providers in England. Semi-structured qualitative interviews were conducted, and data were generated and analysed using a Constructivist Grounded Theory approach. Data collection and analysis occurred concurrently, supported by memoing, reflexivity and peer debriefing. Initial and focused coding led to the iterative development of categories.
RESULTS: Between January 2023 and October 2024, 24 interviews were conducted with parents of infants born before 30 weeks of gestation. Three categories were generated from the data analysis: parent support needs, disintegrated care and healthcare professional (HCP) experience and behaviours.
CONCLUSION: Parents highlighted that their psychological support needs were unmet during their child's neonatal developmental follow-up, and they found navigating healthcare services after discharge home challenging. Changes to care priorities are required, emphasising the development of integrated systems across service providers and geographical areas, and training for universal healthcare providers.