Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society · 2024
Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team.
СтатьяОбзорConsensus StatementПоддержка исследования: вне правительства СШАНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
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Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Brown Rebekah F, Close Charlotte T, Mailes Molly G, Gonzalez Luis J, Goetz Danielle M, Filigno Stephanie S, Preslar Rebecca, Tran Quynh T, Hempstead Sarah E, Lomas Paula, Brown A Whitney, Flume Patrick A, CFF Care Model Committee
Аннотация
Interdisciplinary teams care for people with cystic fibrosis (pwCF) at specialized treatment centers. These teams have laid the foundation for the cystic fibrosis (CF) care model responsible for gains in health outcomes and quality of life within the CF community. However, the landscape of CF care is transforming, invigorated by new technologies, accessibility of cystic fibrosis transmembrane conductance regulator (CFTR) therapies, and increased utilization of telemedicine. In light of these advances, it is appropriate to re-evaluate the CF care team structure. This position paper offers guidance for the structure of a CF care center designed to meet the evolving needs of the CF community. Fundamental to the proposed center structure is recognition of pwCF and their families as integral members of their care teams, underpinning the necessity for shared decision making, awareness of social determinants of health, and active partnership between all healthcare professionals involved in the care of pwCF.