Progress in community health partnerships : research, education, and action · 2025
Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers.
СтатьяПоддержка NIH: внешняя программаНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Dini Megan, Schroeder Karlin, Fleisher Jori E, Carnie Martie, Kluger Benzi M, Seshadri Sandhya, Wilson Lance, Armstrong Melissa J, Evers Christiana, Gallagher Casey, Davies Patricia, Feeney Megan
Аннотация
BACKGROUND: There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap.
OBJECTIVES: To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER.
METHODS: A virtual training and toolkit on patient engagement, PABs and CER was created and used to implement PABs. Satisfaction and impact of the PAB training and pilot model was assessed via surveys.Results and Lessons Learned: PAB participants (n = 28) felt the training was comprehensive, their feedback was prioritized, and impacted the PAB goal of developing a CER question. Recommendations include giving clinic staff protected time for patient engagement and providing funding.
CONCLUSIONS: The developed model led to an increase in participation in CER and effectively trained staff, people with PD and care partners in patient engagement.
OBJECTIVES: To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER.
METHODS: A virtual training and toolkit on patient engagement, PABs and CER was created and used to implement PABs. Satisfaction and impact of the PAB training and pilot model was assessed via surveys.Results and Lessons Learned: PAB participants (n = 28) felt the training was comprehensive, their feedback was prioritized, and impacted the PAB goal of developing a CER question. Recommendations include giving clinic staff protected time for patient engagement and providing funding.
CONCLUSIONS: The developed model led to an increase in participation in CER and effectively trained staff, people with PD and care partners in patient engagement.