Patients with lower limb discrepancies-Long-term follow-up, quality of life, and function while mobilizing with Extension-prosthesis.

INTRODUCTION

When a child is born with or develops a lower limb discrepancy, a lifetime of functional limitations typically ensues. Lengthening surgery is commonly performed; occasionally nonsurgical treatment is chosen, i.e., the child will mobilize with a shoe lift or a personally fitted Extension-prosthesis. The literature on the long-term outcomes of surgical solutions is extensive, whereas there is only limited research describing the implications of nonsurgical alternatives. This presents a challenge when discussing the 2 options and their prognoses with newly diagnosed patients' families. The aim of this study was to provide data on the long-term quality of life (QoL) and functional capabilities of adult Extension-prosthesis users.

METHODS

We reviewed medical records of patients aged 18 years and older Extension-prosthesis users between 2000-2020, including demographics and medical diagnoses. Telephone interviews were conducted on family status, education, employment, prosthetic use, mobility, pain, participation, and QoL. The interviews included validated questionnaires such as the SF-12, Prosthesis Evaluation Questionnaire-Mobility Scale, and Trinity Amputation and Prosthesis Experiences Scales-revised.

RESULTS

Eighty-five patients met the inclusion criteria; 35 replied (41%) to the telephone survey. Twenty-five males (71%); mean age 51.4 (SD = 16.15). Twenty-three (66%) reported having pain. All participants live independently although some need assistance in dressing and bathing. Some are active in sports, and many attended some level of tertiary education, married, and work. Many participants reported that their psychological health was better ("very good") than their physical health ("good").

CONCLUSION

Study results include data on the potential ramifications of Extension-prosthesis treatment, enabling the health care team to assist families in making informed decisions when navigating critical choices about their child's future.