Revista brasileira de enfermagem · 2026
Storage and retrieval of deceased patients' data: a bioethical reflection from a Kantian deontological perspective.
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Menezes Bethânia Karoline Alvaro, Ferreira Júnior Marcos Antonio, Silva Aline Moraes, Queiroz-Cardoso Andreia Insabralde, Santos Viviane Euzébia Pereira
Аннотация
OBJECTIVES: to examine the bioethical aspects of storing and retrieving deceased patients' data for scientific research from a Kantian deontological perspective.
METHODS: theoretical reflection grounded in Kantian deontological ethics and national and international legislation.
RESULTS: there are significant gaps in the regulation of the use of deceased patients' data in Brazil. National standards on research ethics and data protection do not clearly address this issue, whereas international models provide different solutions that take into account patients' ante-mortem wishes regarding the post-mortem use of their data. Kantian deontology conceives of dignity as an absolute value that persists beyond biological life and requires that autonomy and patients' previously expressed wishes be respected.
FINAL CONSIDERATIONS: we suggest creating legal instruments for ante mortem consent to the post-mortem use of personal data, allowing patients to decide how their data will be used after death and safeguarding their dignity and autonomy.
METHODS: theoretical reflection grounded in Kantian deontological ethics and national and international legislation.
RESULTS: there are significant gaps in the regulation of the use of deceased patients' data in Brazil. National standards on research ethics and data protection do not clearly address this issue, whereas international models provide different solutions that take into account patients' ante-mortem wishes regarding the post-mortem use of their data. Kantian deontology conceives of dignity as an absolute value that persists beyond biological life and requires that autonomy and patients' previously expressed wishes be respected.
FINAL CONSIDERATIONS: we suggest creating legal instruments for ante mortem consent to the post-mortem use of personal data, allowing patients to decide how their data will be used after death and safeguarding their dignity and autonomy.