Exploring the Lived Experiences of Adults With Sickle Cell Disease in Nigeria Using van Manen's Phenomenological Approach.

PURPOSE: This study explores the lived experiences of adults with sickle cell disease (SCD) in Ilorin, Kwara State, Nigeria, providing insights into their struggles and coping mechanisms.

DESIGN

A qualitative phenomenological study was conducted to gain a deeper understanding of the lived experiences of adults with SCD.

METHODS

This study employed a phenomenological approach to explore the lived experiences of adults with SCD. Semi-structured interviews were conducted with 24 participants, selected through purposive sampling. Data were analyzed thematically using van Manen's phenomenological approach to capture the depth of participants' experiences.

FINDINGS: Findings revealed that adults with SCD endure recurrent pain crises, emotional distress, stigmatization, and substantial financial burdens. Participants reported difficulties in accessing specialized healthcare, leading to increased reliance on alternative treatment methods. Social support was often inadequate, with many experiencing isolation and discrimination. Coping strategies identified included spiritual reliance, engagement in peer support networks, and self-management practices.

CONCLUSIONS

The study underscores the urgent need for comprehensive healthcare interventions, improved psychosocial support systems, and public health policies tailored to the unique challenges faced by adults with SCD. Addressing these issues through multidisciplinary approaches can enhance the quality of life for individuals living with SCD in Nigeria and similar settings.

CLINICAL EVIDENCE: The findings highlight critical areas for healthcare improvement, including the need for accessible specialized care, financial support mechanisms, and community-driven psychosocial interventions. Integrating culturally relevant coping strategies, such as spiritual support and peer networks, into healthcare services may improve patient outcomes and overall well-being.