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DOI 10.1093/jamia/ocae212

Медицинская библиотека · Journal of the American Medical Informatics Association : JAMIA · 2024

Designing the Australian Cancer Atlas: visualizing geostatistical model uncertainty for multiple audiences.

Goodwin Sarah, Saunders Thom, Aitken Joanne, Baade Peter, Chandrasiri Upeksha, Cook Dianne, Cramb Susanna, Duncan Earl, Kobakian Stephanie, Roberts Jessie, Mengersen Kerrie

СтатьяПоддержка исследования: вне правительства СШАПеревод пока не подготовлен

Аннотация

OBJECTIVE

The Australian Cancer Atlas (ACA) aims to provide small-area estimates of cancer incidence and survival in Australia to help identify and address geographical health disparities. We report on the 21-month user-centered design study to visualize the data, in particular, the visualization of the estimate uncertainty for multiple audiences.

MATERIALS AND

METHODS

The preliminary phases included a scoping study, literature review, and target audience focus groups. Several methods were used to reach the wide target audience. The design and development stage included digital prototyping in parallel with Bayesian model development. Feedback was sought from multiple workshops, audience focus groups, and regular meetings throughout with an expert external advisory group.

RESULTS

The initial scoping identified 4 target audience groups: the general public, researchers, health practitioners, and policy makers. These target groups were consulted throughout the project to ensure the developed model and uncertainty visualizations were effective for communication. In this paper, we detail ACA features and design iterations, including the 3 complementary ways in which uncertainty is communicated: the wave plot, the v-plot, and color transparency.

DISCUSSION: We reflect on the methods, design iterations, decision-making process, and document lessons learned for future atlases.

CONCLUSION

The ACA has been hugely successful since launching in 2018. It has received over 62 000 individual users from over 100 countries and across all target audiences. It has been replicated in other countries and the second version of the ACA was launched in May 2024. This paper provides rich documentation for future projects.

Для цитирования: Goodwin Sarah, Saunders Thom, Aitken Joanne, Baade Peter, Chandrasiri Upeksha, Cook Dianne, Cramb Susanna, Duncan Earl, Kobakian Stephanie, Roberts Jessie, Mengersen Kerrie. Designing the Australian Cancer Atlas: visualizing geostatistical model uncertainty for multiple audiences.. Journal of the American Medical Informatics Association : JAMIA. 2024. DOI: 10.1093/jamia/ocae212.

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