Patterns of care and follow-up care of patients with uveal melanoma in German-speaking countries: a multinational survey of the German Dermatologic Cooperative Oncology Group (DeCOG).
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Steeb Theresa, Wessely Anja, Alter Mareike, Bayerl Christiane, Bender Armin, Bruning Guido, Dabrowski Evelyn, Debus Dirk, Devereux Nina, Dippel Edgar, Drexler Konstantin, Dücker Pia, Dummer Reinhard, Emmert Steffen, Elsner Peter, Enk Alexander, Gebhardt Christoffer, Gesierich Anja, Goebeler Matthias, Goerdt Sergij, Goetze Steven, Gutzmer Ralf, Haferkamp Sebastian, Hansel Gesina, Hassel Jessica C, Heinzerling Lucie, Kähler Katharina C, Kaume Kjell M, Krapf Wolfgang, Kreuzberg Nicole, Lehmann Percy, Livingstone Elisabeth, Löffler Harald, Loquai Carmen, Mauch Cornelia, Mangana Johanna, Meier Friedegund, Meissner Markus, Moritz Rose K C, Maul Lara Valeska, Müller Verena, Mohr Peter, Navarini Alexander, Van Nguyen Ahn, Pfeiffer Christiane, Pföhler Claudia, Posch Christian, Richtig Erika, Rompel Rainer, Sachse Michael M, Sauder Stefanie, Schadendorf Dirk, Schatton Kerstin, Schulze Hans-Joachim, Schultz Erwin, Schilling Bastian, Schmuth Matthias, Simon Jan C, Streit Markus, Terheyden Patrick, Thiem Alexander, Tüting Thomas, Welzel Julia, Weyandt Gerhard, Wesselmann Ulrich, Wollina Uwe, Ziemer Mirjana, Zimmer Lisa, Zutt Markus, Berking Carola, Schlaak Max, Heppt Markus V, German Dermatologic Cooperative Oncology Group (DeCOG, committee ocular melanoma)
Аннотация
METHODS: A questionnaire addressing the patterns of care and surveillance in the management of patients with uveal melanoma was distributed to 70 skin cancer centers in Austria, Germany and Switzerland. Frequency distributions of responses for each item of the questionnaire were calculated.
RESULTS: 44 of 70 (62.9%) skin cancer centers completed the questionnaire. Thirty-nine hospitals were located in Germany (88.6%), three in Switzerland (6.8%) and two in Austria (4.5%). The majority (68.2%) represented university hospitals. Most patients with metastatic disease were treated in certified skin cancer centers (70.7%, 29/41). Besides, the majority of patients with UM were referred to the respective skin cancer center by ophthalmologists (87.2%, 34/39). Treatment and organization of follow-up of patients varied across the different centers. 35.1% (14/37) of the centers stated to not perform any screening measures.
CONCLUSION: Treatment patterns of patients with uveal melanoma in Germany, Austria and Switzerland remain extremely heterogeneous. A guideline for the treatment and surveillance is urgently needed.