Journal of psychosocial oncology · 2026
Reconstructing the cancer journey: The impact of adolescent and young adult (AYA) patient advisory boards on survivor experiences and advocacy.
СтатьяНазвание и аннотация: Перевод пока не подготовлен
Обработка статьи · этапы, ошибки и управление
Загрузка состояния…
Ошибки и ограничения
История · было → стало
Состояние обновляется каждые 5 секунд, пока блок открыт. Процент показывается только там, где известен объём работы. Пауза останавливает продолжение этапа; текущий запрос к источнику может завершиться.
Wilsnack Catherine, Chen Qi, Carmona Yaritza, Rios Halena, Phillips Farya, Jones Barbara L
Аннотация
PURPOSE: The purpose of this study was to explore how serving on a patient advisory board shaped experiences on cancer journeys for Adolescent and Young Adult (AYA) cancer survivors.
METHODS: Data was collected from 15 participants who served on the AYA patient advisory boards at the University of Texas Health Austin Livestrong Cancer Institute (LCI) and MD Anderson Cancer Center. Participants completed in-depth, semi-structured interviews via Zoom. Narrative thematic analysis was used to analyze transcribed, de-identified interviews.
FINDINGS: Major themes emerged from the data related to advisory boards facilitating emotional and social connection, advocacy for self and others, and collaborative projects at each cancer center. The patient advisory board served as a mode for participants to find meaning out of their cancer diagnosis and experience serving on the advisory board.
CONCLUSION: Findings suggest AYA patient advisory boards are not only beneficial for providers and healthcare systems, but also for patients.
METHODS: Data was collected from 15 participants who served on the AYA patient advisory boards at the University of Texas Health Austin Livestrong Cancer Institute (LCI) and MD Anderson Cancer Center. Participants completed in-depth, semi-structured interviews via Zoom. Narrative thematic analysis was used to analyze transcribed, de-identified interviews.
FINDINGS: Major themes emerged from the data related to advisory boards facilitating emotional and social connection, advocacy for self and others, and collaborative projects at each cancer center. The patient advisory board served as a mode for participants to find meaning out of their cancer diagnosis and experience serving on the advisory board.
CONCLUSION: Findings suggest AYA patient advisory boards are not only beneficial for providers and healthcare systems, but also for patients.