The Role of Specialty Pediatric Palliative Care in Pulmonary Hypertension: A Case Series.

Comprehensive care of pediatric Pulmonary Hypertension (PH) patients may include multiple subspecialty and supportive services, including specialized pediatric palliative care (PPC). PPC is interdisciplinary, patient- and family-centered care that supports the physical, emotional, and spiritual well-being of children with serious illnesses to promote quality of life. We present a case series of three patients that highlight several of the unique approaches used by specialized PPC in pain and symptom management, assessing patient and caregiver coping, advance care planning, care coordination, complex medical decision-making, end-of-life care, and grief and bereavement support. Our aim is to define the role of PPC in the longitudinal care of PH patients and to initiate discussions on best practices and optimal outcomes in this population.