Palliative & supportive care · 2026
From voices to dignity: Empirical foundations of the DiRePal model in persons with advanced cancer.
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García Abejas Abel, Santos David Geraldes, Mota-Filipe Helder, Leite Fabio Costa, Cordero Botejara Aida
Аннотация
OBJECTIVES: The DiRePal model understands dignity at the end of life as relational and temporal, shaped by recognition, narrative continuity, and prudent listening. This study explores how patients with advanced cancer, informal caregivers, and physicians understand and experience dignity, providing empirical foundations for the model.
METHODS: A multicentre qualitative study comprised six semi-structured focus groups involving oncology patients (n = 10), informal caregivers (n = 14), and pulmonology/oncology physicians (n = 15), conducted via a secure digital platform between April and November 2025 with IQVIA Portugal. Transcripts underwent reflexive thematic analysis, with independent initial coding, discussion-based consensus, and researcher reflexivity. Given participants' clinical fragility, member checking was not undertaken; credibility relied on triangulation, thick description, and an audit trail.
RESULTS: Six themes emerged: personal understanding of dignity, narrative flexibility, negotiating technical rationality and relational care, temporal sensitivity, professional reciprocity, and digital/structural integration. Dignity was inseparable from personal recognition, interpersonal gestures, and listening within time-constrained encounters. Physicians' emotional overload and insufficient institutional support compromised their dignity and, indirectly, patients'; caregivers frequently rendered themselves invisible. Patients associated dignity with respect, autonomy, and relief of suffering, while depersonalised or fragmented care eroded it.
SIGNIFICANCE OF RESULTS: These findings ground a relational-temporal account of dignity in reciprocal recognition between patients, caregivers, and clinicians across shared, unevenly experienced time. Listening, temporal prudence, and recognition of clinicians' vulnerability should be clinical priorities, alongside cautious, relationally framed integration of digital tools.
METHODS: A multicentre qualitative study comprised six semi-structured focus groups involving oncology patients (n = 10), informal caregivers (n = 14), and pulmonology/oncology physicians (n = 15), conducted via a secure digital platform between April and November 2025 with IQVIA Portugal. Transcripts underwent reflexive thematic analysis, with independent initial coding, discussion-based consensus, and researcher reflexivity. Given participants' clinical fragility, member checking was not undertaken; credibility relied on triangulation, thick description, and an audit trail.
RESULTS: Six themes emerged: personal understanding of dignity, narrative flexibility, negotiating technical rationality and relational care, temporal sensitivity, professional reciprocity, and digital/structural integration. Dignity was inseparable from personal recognition, interpersonal gestures, and listening within time-constrained encounters. Physicians' emotional overload and insufficient institutional support compromised their dignity and, indirectly, patients'; caregivers frequently rendered themselves invisible. Patients associated dignity with respect, autonomy, and relief of suffering, while depersonalised or fragmented care eroded it.
SIGNIFICANCE OF RESULTS: These findings ground a relational-temporal account of dignity in reciprocal recognition between patients, caregivers, and clinicians across shared, unevenly experienced time. Listening, temporal prudence, and recognition of clinicians' vulnerability should be clinical priorities, alongside cautious, relationally framed integration of digital tools.