YouTube videos for describing Deep Brain Stimulation: a comprehensive and quantitative review.

INTRODUCTION

Patients use online videos to learn about their condition and potential treatments. Operative techniques in Deep Brain Stimulation (DBS) vary significantly between institutions. This poses challenges to ensuring patients are adequately and accurately informed. We performed a comprehensive review of YouTube videos describing Deep Brain Stimulation.

METHODS

Text searches for DBS-related search strings were performed on YouTube. The top 25 de-duplicated videos per search were included. Each video was assessed for differences in procedural technique, educational quality using the JAMA benchmark and DISCERN tools, and audio-visual or editing quality.

RESULTS

We identified 91 DBS-related YouTube videos with 44% of videos uploaded by academic institutions and 15% by hospitals. Parkinson's disease was the most frequently described condition in 65% of videos. Variations in procedure impacting patient experience and expectations, were discussed in varying proportions: head shaving in 14.3% of videos, potential complications in 23.1%, number of stages in 33.0%, and awake vs asleep surgery in 46.2%. The JAMA benchmark criteria was fulfilled in 12% of videos and the median total DISCERN score was 46, an 'average' quality rating. High-quality images (N = 69, 75.8%), audio/music (N = 73, 80.2%), accessible language (N = 84, 92.3%), and professional production quality (N = 72, 79.1%) were present in most videos.

DISCUSSION AND

CONCLUSION

YouTube videos describing DBS are visually appealing but lack scientific quality and present potentially misleading content for future DBS recipients and caregivers. They should be viewed with caution as a source of medical communication or information for patients.