Exploring Family Quality of Life Among Saudi Families of Children with Autism Spectrum Disorder.

BACKGROUND/

OBJECTIVES

Family quality of life (FQOL) among families of children with autism spectrum disorder (ASD) is influenced by family life, services, and social experiences. Although research in Saudi Arabia has examined caregiver well-being and services, less is known about how families experience FQOL in everyday life. This study explored the experiences and perceptions of Saudi parents and caregivers of children with ASD.

METHODS

A qualitative descriptive design was used. Semi-structured interviews were conducted with 12 Saudi parents and caregivers of children with ASD. Data were analyzed using thematic analysis, with the FQOL framework used as a sensitizing conceptual lens.

RESULTS

Five themes were identified: (1) Diagnostic Experiences and Family Reorientation; (2) Caregiving and Family Reorganization; (3) Responsive Services and Family Quality of Life; (4) Family Adaptation Through Knowledge and Resilience; and (5) Community Understanding and Social Inclusion. Findings showed that FQOL was influenced by caregiving demands, responsive services, family adaptation, child progress, and opportunities for social participation.

CONCLUSIONS

FQOL is shaped by families' changing experiences and needs over time. Supporting Saudi families requires responsive services, family-centered support, continuity across service systems, and more inclusive communities.