Experiences of Saudi Adults Living with Heart Failure: A Reflexive Thematic Analysis of Health-Related Quality of Life.

BACKGROUND

Heart failure is a chronic and progressive condition that substantially affects patients' physical, emotional, social, and spiritual well-being. Although the clinical burden of heart failure is well documented, limited qualitative evidence exists regarding how Saudi adults experience and interpret the condition within their cultural, familial, and religious contexts. This study explored the experiences of Saudi adults living with heart failure and their perceptions of its impact on health-related quality of life.

METHODS

A qualitative descriptive study informed by an interpretivist perspective was conducted using semi-structured interviews with 25 Saudi adults diagnosed with heart failure. Participants were recruited from specialized heart failure and cardiac outpatient clinics within a tertiary medical city in Riyadh, Saudi Arabia. Interviews were audio-recorded, transcribed verbatim, and analyzed using Braun and Clarke's reflexive thematic analysis.

RESULTS

Four themes were identified: (1) emotional distress and fear, (2) loss of independence and increased dependency, (3) social role disruption, and (4) coping and adaptation strategies. Participants described significant psychological burden, reduced autonomy, and changes in family and social roles following their diagnosis.

CONCLUSIONS

Heart failure was experienced as more than a physical illness, affecting participants' emotional well-being, social identity, family relationships, and spiritual life. The findings underscore the importance of holistic and culturally responsive care that addresses psychological, social, spiritual, and family-related needs alongside symptom management.