[Portrayal of tics and Tourette's syndrome on TikTok: a qualitative analysis of TikTok videos].

BACKGROUND

During the COVID-19 pandemic, clinicians observed an increase in young people with sudden-onset tics related to watching videos about tics and Tourette’s syndrome (TS) on TikTok. It was notable that the displayed symptoms did not fully align with descriptions from the DSM-5.

AIM: To examine the portrayal of tics and TS on TikTok: which messages are conveyed and how.

METHOD: Through a qualitative analysis of TikTok videos, we investigated how tics and TS are presented: what informational messages are conveyed, how creators experience having tics, and how these messages are communicated.

RESULTS

Informational messages were largely accurate. However, disproportionate attention was given to sensational symptoms (cursing, aggression and complex tics). The experiences of creators with tics and TS were diverse and helped broaden the perspective on these conditions.

CONCLUSION

These videos create an unbalanced portrayal of tics and TS. For healthcare professionals, it is crucial to be aware of the influence of social media on the perception of tics and TS. There is a need for nuanced psychoeducation and for supporting patients in navigating online information. The involvement of individuals with lived experience is a valuable addition.