An implementation study of a remote monitoring platform to increase access to specialist care in motor neuron disease.

INTRODUCTION

The aim was to examine the engagement and acceptability of Telehealth in MND (TiM) as part of usual care within two specialist centers.

METHODS

Fifty people with MND (pwMND) completed questionnaires. Eight pwMND and carers participated in interviews.

RESULTS

In Shefield, 163 pwMND were invited to TiM with 52% registering and 85% engagement. In Dublin, 98 pwMND were invited to TiM, with 63% registering, and 95% engagement.High levels of acceptability were reported, with users rating TiM as very low in burden. Similar findings were demonstrated within the interviews, with ease of use a strength. However, participants discussed a need for more regular feedback from TiM. Future opportunities relating to integrating TiM with community services were discussed.

DISCUSSION: TiM is feasible and acceptable to pwMND. The high engagement can generate a wealth of data facilitating solution-focused clinical appointments. The study's findings support the further implementation of TiM in other MND services.