Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53 · 2020
A Clinical Program for Transgender and Gender-Diverse Neurodiverse/Autistic Adolescents Developed through Community-Based Participatory Design.
СтатьяПоддержка NIH: внешняя программаНазвание и аннотация: Перевод в очереди
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Strang John F, Knauss Megan, van der Miesen Anna, McGuire Jenifer K, Kenworthy Lauren, Caplan Reid, Freeman Andrew, Sadikova Eleonora, Zaks Zosia, Pervez Noor, Balleur Anouk, Rowlands D W, Sibarium Ely, Willing Laura, McCool Marissa A, Ehrbar Randall D, Wyss Shannon E, Wimms Harriette, Tobing Joshua, Thomas John, Austen Julie, Pine Elyse, Griffin April D, Janssen Aron, Gomez-Lobo Veronica, Brandt Abigail, Morgan Colleen, Meagher Haley, Gohari Dena, Kirby Laura, Russell Laura, Powers Meredith D, Anthony Laura G
Аннотация
Objective: A series of studies report elevated rates of autism and autistic characteristics among gender-diverse youth seeking gender services. Although youth with the co-occurrence present with complex care needs, existing studies have focused on co-occurrence rates. Further, clinical commentaries have emphasized provider-centered interpretations of clinical needs rather than key stakeholder-driven clinical approaches. This study aimed to employ community-based participatory research methodologies to develop a key stakeholder-driven clinical group program.Method: Autistic/neurodiverse gender-diverse (A/ND-GD) youth (N = 31), parents of A/ND-GD youth (N = 46), A/ND-GD self-advocates (N = 10), and expert clinical providers (N = 10) participated in a multi-stage community-based participatory procedure. Needs assessment data were collected repeatedly over time from A/ND-GD youth and their parents as the youth interacted with one another through ongoing clinical groups, the curriculum of which was developed progressively through the iterative needs assessments.Results: Separate adolescent and parent needs assessments revealed key priorities for youth (e.g., the importance of connecting with other A/ND-GD youth and the benefit of experiencing a range of gender-diverse role models to make gender exploration and/or gender affirmation more concrete) and parents (e.g., the need for A/ND-related supports for their children as well as provision of an A/ND-friendly environment that fosters exploration of a range of gender expressions/options). Integration and translation of youth and parent priorities resulted in 11 novel clinical techniques for this population.Conclusions: With generally high acceptability ratings for each component of the group program, this study presents a community-driven clinical model to support broad care needs and preferences of A/ND-GD adolescents.