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Inequities in access to palliative and end-of-life care in the black population in Canada: a scoping review.

BackgroundImproving equity and early access to palliative care for underserved populations in Canada is a priority. Little is known regarding access to palliative and end-of-life care in the Black population.MethodsWe undertook a scoping review using the framework by Arksey and O'Malley to identify knowledge, access gaps, and experiences of palliative and end-of-life care among Blacks living with life-limiting illnesses in Canada. Primary studies, discussion papers, books, and reports were considered eligible. We followed a comprehensive search strategy developed by an information scientist. S

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… .” • Preference for home care and expectation of close family members and community to provide care • Lack of respite and bereavement care. • Financial strain associated with the care of their ill family member • Limited access to information about palliative care services • Need to explore different … Two studies reported underutilization of respite and bereavement services [ 31 , 32 ] as well as limited use of long-term care facilities [ 29 ]. …

Trends in descriptions of palliative care in the cancer clinical practice guidelines before and after enactment of the Cancer Control Act (2007): content analysis.

BackgroundPalliative care was a priority issue in the Cancer Control Act enacted in 2007 in Japan, and this has resulted in efforts being made toward educational goals in clinical settings. An investigation of how descriptions of palliative care for the treatment of cancer have changed in clinical practice guidelines (CPGs) could be expected to provide a better understanding of palliative care-related decision-making. This study aimed to identify trends in descriptions of palliative care in cancer CPGs in Japan before and after enactment of the Cancer Control Act.MethodsContent analysis was us

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… Physician communication with patient/family (including communication with patient and family about personal grief and bereavement) 14. … Family roles and responsibilities (communication of patient and family member roles during the process, grief and bereavement, caregiver roles and support) a We included the following two criteria: “Palliative care” and “Palliative operation/symptomatic treatment”, which could not be classified by the …

Acute Respiratory Failure in Patients with Hematologic and Solid Malignancies: Global Approach

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… In contrast, aggressive care is associated with worse patient quality of life and worse bereavement adjustment. Ethics and palliative care consultations also greatly benefit end-of-life discussions with family members of cancer patients dying in the ICU [ 10 ]. … Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300(14):1665–1673. doi: 10.1001/jama.300.14.1665. …

The Role of Social Support in the Experience of Informal Caregivers of Cancer Patients: An Umbrella Review.

ObjectiveTo understand the role of social support in the caregiving experience of cancer patients through a narrative synthesis of systematic reviews and meta-analyses, providing a comprehensive overview in the field.MethodsA systematic search of systematic reviews and meta-analyses published between 2013 and 2024 was conducted in PubMed, EMBASE, PsycINFO, CINAHL, Web of Science, and Scopus using PCC-based search terms related to informal caregivers, social support, and cancer.ResultsThe search resulted in a total of 1377 articles, of which 32 met the inclusion criteria and quality assessment.

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… This is especially true in the pre‐bereavement phase, where a lack of social support can lead to poor adjustment and complicated grief [ 35 ]. Difficulties discussing cancer in social contexts can also exacerbate feelings of isolation, particularly during the patient's last year of life [ 34 ]. … Quintard , “ Psychosocial Factors Affecting the Bereavement Experience of Relatives of Palliative‐Stage Cancer Patients: A Systematic Review ,” BMC Palliative Care 21 , no. 1 ( 2022 ): 212 , 10.1186/s12904-022-01096-y . 36451118 PMC9713164 36 L. Heckel , N. L. Heynsbergh , and P. M. …

Meaningful changes in end-of-life care among patients with myeloma.

Patients with advanced myeloma experience a high symptom burden particularly near the end of life, making timely hospice use crucial. Little is known about the quality and determinants of end-of-life care for this population, including whether potential increases in hospice use are also accompanied by "late" enrollment (≤ 3 days before death). Using the Surveillance, Epidemiology, and End-Results-Medicare database, we identified patients ≥ 65 years diagnosed with myeloma between 2000 and 2013 who died by December 31, 2013. We assessed prevalence and trends in hospice use, including late enroll

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… Wright AA Keating NL Balboni TA Matulonis UA Block SD Prigerson HG Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers’ mental health . J Clin Oncol . 2010 ; 28 ( 29 ): 4457 – 4464 . 20837950 10.1200/JCO.2009.26.3863 PMC2988637 10. … Wright AA Zhang B Ray A Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment . JAMA . 2008 ; 300 ( 14 ): 1665 – 1673 . 18840840 10.1001/jama.300.14.1665 PMC2853806 13. …

The End-of-Life Experience of Patients With Rare Cancers and Their Caregivers.

Little is known about the end-of-life (EOL) experience of patients with rare cancers (PRC) or their caregivers. From September 2002 to August 2008, 618 stage IV cancer patients [195 PRC and 423 patients with common cancers (PCC)] and their caregivers participated in an interview-based cohort study. Patients were interviewed about EOL preferences, planning, medical care, and followed until death. Interviews with caregivers at baseline assessed caregiver mental and physical health; and postmortem, assessed EOL patient care. PRC were four times more likely than PCC to be receiving both radiation

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… Future research should investigate this possibility and its potential effect on caregiver burden and bereavement adjustment in caregivers of patients with rare versus common cancers, particularly in light of our finding that rare cancer caregivers self-reported worsening health after the patient’s diagnosis … Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008;300:1665-73 26. National Cancer Institute Common cancer types. 2013. Available from: http://www.cancer.gov/cancertopics/types/commoncancers 27. …

Upheaval in cancer care during the COVID-19 outbreak.

On Monday, 23 March 2020, Nigeria recorded its first mortality from the novel global COVID-19 outbreak. Before this, the country reported 36 confirmed cases (at the time of writing) and has discharged home two cases after weeks of care at a government-approved isolation centre in Lagos State. This first mortality was that of a 67-year-old man with a history of multiple myeloma, a type of blood cancer. He was undergoing chemotherapy and had just returned to Nigeria following medical treatment in the United Kingdom. The novel COVID-19 pandemic has grounded several global activities including the

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… that would be appropriate to accommodate large numbers of patients expected to die) “Systems” (e.g. develop systems for direct consultation of palliative care expertise for staff in hospitals, create a triage system to identify patients with cancer in need of specialist palliative care management) Bereavement … Families will need support with bereavement where they may have been expecting a longer trajectory of illness for a loved one with cancer. Furthermore, traditional cultural rituals and ceremonies may be prohibited in line with social distancing. …

Oncology Nursing During a Pandemic: Critical Reflections in the Context of COVID-19.

ObjectivesTo provide a critical reflection of COVID-19 in the context of oncology nursing and provide recommendations for caring for people affected by cancer during this pandemic.Data sourcesElectronic databases, including CINAHL, MEDLINE, PsychINFO, Scopus, professional web sites, and grey literature were searched using Google Scholar.ConclusionNurses are key stakeholders in developing and implementing policies regarding standards of care during the COVID-19 pandemic. This pandemic poses several challenges for oncology services. Oncology nurses are providing a pivotal role in the care and ma

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… care is defined as a person-centered approach to the provision of tailored services for those living with or affected by cancer to meet their physical, psychological, social, spiritual, or informational needs during diagnosis, treatment, or follow-up phases, including survivorship, palliation, and bereavement … Cruse Bereavement Care. Coronavirus: dealing with bereavement and grief. Available at: https://www.cruse.org.uk/get-help/coronavirus-dealingbereavement-and-grief . Accessed 26 April 2020. 72. National Institutes of Health. …

Palliative care utilization in oncology and hemato-oncology: a systematic review of cognitive barriers and facilitators from the perspective of healthcare professionals, adult patients, and their families.

BackgroundDespite the high potential to improve the quality of life of patients and families, palliative care services face significant obstacles to their use. In countries with high-resource health systems, the nonfinancial and nonstructural obstacles to palliative care services are particularly prominent. These are the cognitive barriers -knowledge and communication barriers- to the use of palliative care. To date no systematic review has given the deserved attention to the cognitive barriers and facilitators to palliative care services utilization. This study aims to synthesize knowledge on

Specialist palliative and end-of-life care for patients with cancer and SARS-CoV-2 infection: a European perspective.

BACKGROUND: Specialist palliative care team (SPCT) involvement has been shown to improve symptom control and end-of-life care for patients with cancer, but little is known as to how these have been impacted by the COVID-19 pandemic. Here, we report SPCT involvement during the first wave of the pandemic and compare outcomes for patients with cancer who received and did not receive SPCT input from multiple European cancer centres. METHODS: From the OnCovid repository (N = 1318), we analysed cancer patients aged ⩾18 diagnosed with COVID-19 between 26 February and 22 June 2020 who had complete sp

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… Place of death: correlations with quality of life of patients with cancer and predictors of bereaved caregivers’ mental health. J Clin Oncol 2010; 28: 4457–4464. 36. Bone AE, Finucane AM, Leniz J, et al. … Caregiver bereavement outcome: relationship with hospice at home, satisfaction with care, and home death. J Palliat Care 2004; 20: 69–77. 38. …

Exploring the ethical decision-making experience of caregivers of end stage cancer patients in Iran: a phenomenological study.

BackgroundEthical decision making is a complex issue because it strongly depends on the religion, beliefs, traditional laws and moral views of each society. The purpose of this study was to explore the experience of Iranian family caregivers of end stage cancer patients about ethical decision making.MethodsThis qualitative study is based on van Manen's method of hermeneutic phenomenology. In-depth interviews were carried out to collect data. Participants were 12 caregiver. Audiotapes were transcribed and analyzed for common themes that represented the participants' experiences. Trustworthiness

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… Street A Love A Blackford J Exploring bereavement care in inpatient settings Clin Nurse 2004 17 3 240 50 10.5172/conu.17.3.240 15551675 Street A, Love A, Blackford J. Exploring bereavement care in inpatient settings. Clin Nurse. 2004;17(3):240–50. 10.5172/conu.17.3.240 15551675 20. …

Poster Presentation

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… PP-43 Relationship between so called “best possible care” and end of life care and quality of bereavement services in a cancer hospital Dr. Amit Jain, Dr. … Bereavement Calls were never been made so far from ICU. Around in 15% of cases, Physicians received updates of funerals and other things on mobile as a message Conclusions: Lack of communications skills in EOLC and bereavement policy to be developed effectively. …

Resilience in Cancer Patients.

Background: Being diagnosed with cancer and undergoing its treatment are associated with substantial distress that can cause long-lasting negative psychological outcomes. Resilience is an individual's ability to maintain or restore relatively stable psychological and physical functioning when confronted with stressful life events and adversities. Posttraumatic growth (PTG) can be defined as positive life changes that result from major life crises or stressful events. Objectives: The aims of this study were to 1) investigate which factors can strengthen or weaken resilience and PTG in cancer pa

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… spouses and parents in the United States and the People’s Republic of China | Prospective study design (4 and 18 months of bereavement) | 68 US participants 78 PRC participants | 13-item Grief Processing Scale 7-item Grief Avoidance Scale SCL-90 | Both grief processing and deliberate grief avoidance … In: Handbook of bereavement research: Consequences, coping, and care | Book chapter | – | – | In this chapter, the authors reviewed numerous studies that provide support for the assumption that most individuals can and do cope with loss and grief, without professional intervention. …

Manic and hypomanic states in cancer patients: A systematic review.

OBJECTIVES: While there have been reports on the relationship between cancer and depression, reports on the association between cancer and manic states, a reciprocal state of depression, have been relatively few. Therefore, we conducted a systematic review on the relationships between cancer and manic states, focusing on their etiology, clinical course, and impact on cancer treatments. METHODS: A systematic review was conducted using four electronic databases, following the PRISMA guidelines. The scope of the study included research on manic or hypomanic states associated with cancer in patie

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… JAMA Dermatology 149 ( 4 ), 500 – 501 . doi: 10.1001/jamadermatol.2013.1321 . 23715381 Carmassi C , Shear KM , Corsi M , et al. ( 2020 ) Mania following bereavement: State of the art and clinical evidence . … World Journal of Clinical Cases 11 ( 12 ), 2631 – 2636 . doi: 10.12998/wjcc.v11.i12.2631 . 37214569 PMC10198113 Morgan JF , Beckett J and Zolese G ( 2001 ) Psychogenic mania and bereavement . …

The unseen symptom: A longitudinal qualitative interview study exploring mobility loss in people with advanced cancer.

BACKGROUND: Mobility loss is a common symptom in people with advanced cancer and is associated with reduced function and quality of life. While its physical consequences are well documented, less is known about how individuals and their families experience and adapt to these changes over time. AIM: To explore how individuals with advanced cancer and their caregivers experience and respond to mobility loss. DESIGN: A qualitative longitudinal study using Interpretative Phenomenological Analysis. Participants completed two semi-structured interviews, with follow-ups prompted by changes in mobil

The experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care: A qualitative study.

BackgroundThis study explores the experience of palliative patients and their family members of a family meeting model, utilised as an instrument for the provision of spiritual and psychosocial care. In doing so the study embraces a broad understanding of spirituality which may or may not include formal religious practice and a concept of psychosocial care that includes: social and emotional well-being, communication, self esteem, mental health and adaptation to illness. The meeting of spiritual and psychosocial needs is considered to be an important aspect of palliative care.MethodsThis quali

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… A literature review did not identify any examples of a family meeting being used solely to address spiritual and psychosocial issues although its use to address potential bereavement issues for families identified as at risk of complex grief has been reported [ 23 ]. … Milligan S Perceptions of spiritual care among nurses undertaking post registration education Int J Palliat Nurs 2004 10 4 162 171 15150450 10.12968/ijpn.2004.10.4.12792 Spiritual Care Work Group of International Work Group on Death Dying and Bereavement Assumptions and principle of spiritual care Death …

Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers' and healthcare professionals' perspectives about carers' responsibilities and content needs.

ObjectiveTo gather preliminary qualitative data that will assist in the codesign and development of a new informational and supportive website to assist informal cancer carers in Australia.Design and settingUtilising a previously tested codesign process, informal carers' experiences and perspectives, including those of healthcare professionals', were examined via focus groups and/or interviews. Data were analysed via thematic analysis.ParticipantsRural (n=9) and urban (n=11) carers', and healthcare professionals' (n=8) perspectives were collected. Carers participated in a focus group (n=9) or

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… Bereavement issues. Dealing with boredom. How to ask for and accept help. Tips for communicating with HCPs. Illness information | Information about patients’ illnesses ‘to be more prepared’ (C-U6). Symptoms across stages. Treatments. … Best practice in patient care in cancer should involve parallel and continued assessments of carer support needs from diagnosis through to bereavement (eg, what to expect during palliative care). …

'It was like taking an inner bath': A qualitative evaluation of a collaborative advance care planning-approach.

BackgroundImpaired readiness may hinder purposeful advance care planning in cancer patients. To reduce barriers to participation in end-of-life decision-making, a collaborative intervention was developed combining a psycho-oncological approach of dignity-based and cognitive-behavioural interventions, followed by a standardised advance care planning-process.AimTo evaluate the novel collaborative advance care planning-approach by synthetising cancer patient and carer perspectives on communicational and relational effects.DesignAs a sub-project of a mixed-methods evaluation study, we conducted an

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… (range) | 64 (49–82) | 68 (49–78) | 60 (50–82) Cancer site Lung | | 5 | Pancreatic | | 2 | Bowel | | 2 | Oesophageal | | 1 | Breast | | 1 | Multiple myeloma | | 1 | Relationship to patient Spouse/life partner | | | 10 Mother | | | 1 Daughter | | | 1 Brother-in-law | | | 1 Carers bereaved … Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008; 300: 1665–1673. 11. Nagelschmidt K, Leppin N, Seifart C, et al. …

Important End-of-Life Topics among Latino Patients and Caregivers Coping with Advanced Cancer.

There is a known end-of-life related disparity among Latino individuals, and there is a need to develop culturally sensitive interventions to help patients and caregivers cope with advanced cancer. Latino patients and caregivers coping with advanced cancer were asked to list important end-of-life topics to culturally inform a psychosocial intervention adaptation process. A qualitative study was conducted, and semi-structured interviews were performed, audio-recorded, and transcribed. Recordings and transcriptions were reviewed and analyzed using thematic content coding. The semi-structured int

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… Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment Jama 2008 300 1665 1673 10.1001/jama.300.14.1665 18840840 PMC2853806 17. Githaiga J.N. Swartz L. … Socio-cultural contexts of end-of-life conversations and decisions: Bereaved family cancer caregivers’ retrospective co-constructions BMC Palliat. Care 2017 16 1 8 10.1186/s12904-017-0222-z 28806952 PMC5557528 18. Keeley M. Family communication at the end of life Behav. …

Disparities in Palliative and Hospice Care and Completion of Advance Care Planning and Directives Among Non-Hispanic Blacks: A Scoping Review of Recent Literature.

ObjectivesPublished research in disparities in advance care planning, palliative, and end-of-life care is limited. However, available data points to significant barriers to palliative and end-of-life care among minority adults. The main objective of this scoping review was to summarize the current published research and literature on disparities in palliative and hospice care and completion of advance care planning and directives among non-Hispanc Blacks.MethodsThe scoping review method was used because currently published research in disparities in palliative and hospice cares as well as adva

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… An effective hospice care program is expected to provide services ranging from pain and symptom management to bereavement care. 156 Hospice care is typically provided in the patient’s home. … non-Hispanic blacks’ family members with hospice care services It is important to evaluate the satisfaction of bereaved family members with the quality of hospice care. …