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Смертность среди лиц, находящихся на длительном лечении: ретроспективное национальное когортное исследование.

Недостатки понимания тенденций в области развития среди лиц, живущих в условиях долгосрочного ухода за детьми. Увязка данных открывает возможности для осуществления последующей деятельности на национальном уровне в реальном и долгосрочном плане. Наша цель заключалась в том, чтобы описать модели и связи с смертностью среди лиц, переезжающих в дома по уходу в Шотландии. Эти данные были индексированы и увязаны с национальными данными в области здравоохранения и данными о смертности лиц, переехавших в детские дома в Шотландии в период между 1 апрель 2013 и 31 Март 2016. Сообщается о месте смерти,

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… It is therefore imperative that care home staff are provided with support to equip them to undertake this aspect of their role, including support in managing the impact of loss and bereavement. 29 The dominance of dementia as a cause of death in this population also provokes further reflection, given … "Death Is Part of the Job” in Long-Term Care Homes: Supporting Direct Care Staff With Their Grief and Bereavement. Sage Open. 2015;5:2158244015573912. doi: 10.1177/2158244015573912. 30. Sampson EL, Candy B, Davis S, et al. …

Latent profile analysis of fear of progression in Chinese hematologic malignancy survivors.

Fear of disease progression (FoP) is a multidimensional concept that refers to the fear or worry about disease progress. Little is known about the distinct FoP profiles and their determinants in culturally specific contexts, especially among hematologic malignancies (HM) patients in China. This study aimed to identify heterogeneous profiles of FoP and their associated predictors among Chinese patients with HM. A convenience sample of patients suffering from HM were enrolled from March 2023 to February 2024. To gather multidimensional data from the Fear of Progression Questionnaire-Short Form (

High Hospital-related Costs at the End-of-life in Patients With Multiple Myeloma: A Single-center Study.

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… Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA . 2008 ; 300 : 1665 – 1673 . 18840840 10.1001/jama.300.14.1665 PMC2853806 7. Zhang B Nilsson ME Prigerson HG . …

How to talk about death? A cross-sectional survey on patients', informal caregivers' and health care professionals' views in the setting of allogenic hematopoietic stem cell transplantation.

Allogeneic hematopoietic stem cell transplantation (allo-HSCT) is a potentially curative treatment, which carries a high risk of complications and mortality, highlighting the necessity of discussions about life threat. This study explores the perspectives of patients, informal caregivers (ICs), and healthcare professionals (HCPs) regarding the timing, content, and challenges of these discussions. Multicenter cross-sectional survey in comprehensive care centers across Germany, involving patients with allo-HSCT, ICs, and HCPs. Questionnaires assessed perceived concerns about life threat, communi

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… Wright AA Zhang B Alaka Ray M Mack JW Elizabeth Trice M Balboni T Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment JAMA 2008 300 1665 10.1001/jama.300.14.1665 18840840 PMC2853806 Wright AA, Zhang B, Alaka Ray M, Mack JW … , Elizabeth Trice M, Balboni T et al (2008) Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment. …

Predictors of institutionalization of dementia patients in mild and moderate stages: a 4-year prospective analysis.

BackgroundInstitutionalization is the most important milestone in the care of dementia patients. This study was aimed at identifying relevant predictors of institutionalization in a broad empirical context and interpreting them on the basis of the predictor model proposed by Luppa et al. [Dement Geriatr Cogn Disord 2008;26:65-78].MethodsAt the start of this study, 357 patients with mild to moderate dementia were examined by their general practitioners, and a telephone interview was conducted with their caregivers. Four years later, the outcomes 'institutionalization' and 'death' were determine

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… geronj/24.3.330 7 Zarit SH Whitlatch CJ Institutional placement: phases of the transition Gerontologist 1992 32 665 672 1427279 10.1093/geront/32.5.665 8 Grant I Adler KA Patterson TL Dimsdale JE Ziegler MG Irwin MR Health consequences of Alzheimer's caregiving transitions: effects of placement and bereavement … Psychiatry 2011 26 56 64 20661877 10.1002/gps.2488 85 Lloyd BT Stirling C Ambiguous gain: uncertain benefits of service use for dementia carers Sociol Health Illn 2011 33 899 913 21371052 10.1111/j.1467-9566.2010.01332.x 86 Haley W Bergman E Roth D McVie T Gaugler J Mittelman M Long-term effects of bereavement …

When and for Whom Does Intensive Care Unit Admission Change the Prognosis in Oncology?-A Scoping Review.

Background: The intersection between oncology and intensive care has shifted from predominantly end-of-life care to a therapeutic bridge that can preserve anticancer trajectories in carefully selected patients. Yet, criteria separating benefit from futility remain fragmented. Objective: This paper seeks to map contemporary evidence (2015-2025) on outcomes after Intensive Care Unit (ICU) admission in adults with cancer and to identify clinical constellations in which ICU-level care still changes prognosis. Methods: PRISMA-ScR scoping review (PCC framework). PubMed search (2015-2025), dual scree

Pharmacists are initiators in palliative care for patients with rare diseases.

The World Health Organization supports early delivery of palliative care as it reduces unnecessary hospital admissions and the inappropriate use of health care services. A community pharmacist can play a key role in advocating timely access to palliative care. Medication reconciliation must alert them to start communicating with the patient and/or his relatives about refocusing treatment and care as part of palliative and terminal care. Pharmaceutical activities for these patients include dispensing of devices and medicinal products, compounding personalized medication and participating as a m

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… terminal illnesses 71% Psychological aspects of dying (eg, anxiety, depression) 71% The range of settings including home care, nursing homes, and hospice 69% The impact of ethnic, religious, and cultural differences 67% Psycho social interventions to alleviate pain across the life cycle 65% Grief and bereavement …

Transforming End-of-Life Care

Currently, hospice care which focuses on caring for a terminally ill person delivers holistic, supportive, interdisciplinary, and patient-centered management. There have been nu-merous efforts to establish hospice care for people who are in the end-stage of their illness.

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… Hospice care for people with end-stage illnesses, which can involve complex end- of-life care in a wide variety of settings, including bio-psycho-social symptom management, care related to cultural and ethical issues, bereavement care, and after-death care. …

Promoting primary palliative care in Western Kenya using Project ECHO®.

Currently less than 2% of Kenyans with severe symptoms receive palliative care (PC). Moreover, PC services are concentrated in urban settings and most rural healthcare providers have limited PC expertise. Project ECHO® Palliative Care for Western Kenya was developed as part of a hub-and-spoke model for improving primary PC in rural Kenya. The programme is based at Moi University and Moi Teaching and Referral Hospital, a public, tertiary care facility with a catchment of 25 million Kenyans, the majority of whom live in rural settings. Self-reported assessments by primary care providers found th

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… aspects of diagnosis, management and supportive care | Human sexuality and PC | Hospice care Paediatric oncology: survivorship and supportive care post treatment | Death and dying | Pressure ulcers I: staging and prevention Management of nausea and vomiting during cancer treatment | Loss grief and bereavement …

Towards a definition of an existential approach in cancer patients: a co-produced scoping review.

BackgroundAttention to existential needs has become part of daily treatment. Studies have described the concepts of existential experiences and existential interventions. However, a consensus or conceptual clarity regarding an existential approach in cancer patients is currently missing. This scoping review investigates the term existential approach and suggests a definition.MethodsWe searched PubMed, Embase, Web of Science, and PsycINFO databases until March 2024. We used the Joanna Briggs Institute guidance, and the Preferred Reporting Items for Systematic reviews and Meta-Analyses extension

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… their resuscitation preferences, living wills and their preferred place of death, involve caregivers in discussions about end-of-life care (with patients’ consent), communicate the patient’s care plan with all other services, including after-hours services, maintain contact and support the caregiver Bereavement … : provide an initial bereavement visit from a known and key professional and offer further contact. …

Chronic stress: a fourth etiology in tumorigenesis?

Chronic stress, driven by persistent psychological, environmental, or physiological factors, is a prolonged heightened state of stress response that disrupts homeostasis. When unmanaged, it will lead to sustained negative emotions such as depression, loneliness, anxiety, and emotional adversity. This persistent emotional distress not only exacerbates mental health disorders but also poses significant risks to physical health. Increasing evidence suggests a strong link between chronic stress, stress-related hormones, and the rising incidence of malignancies. As a result, chronic stress might be

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… is associated with higher incidence of certain malignancies, or accelerates mortality Bereavement Questions Different cancer types [ 208 ] Prospective 54,710 women Nurses’Health Study II Significantly associated between PTSD symptoms and increased risk of ovarian cancer Trauma Interview with modification … is associated with higher incidence of certain malignancies, or accelerates mortality | Bereavement Questions | Different cancer types | [ 208 ] Prospective | 54,710 women | Nurses’Health Study II | Significantly associated between PTSD symptoms and increased risk of ovarian cancer | Trauma Interview …

How should multiple myeloma research change in a patient-oriented world? Findings and lessons from the pan-Canadian myeloma priority setting partnership.

BACKGROUND: Over the last decade there has been considerable research into the treatment, management, and quality of life of people living with multiple myeloma. However, there has been limited investigation into topics deemed important to patients and caregivers within this community. We conducted a James Lind Alliance Priority Setting Partnership to establish the 'Top 10 Priorities for Myeloma Research', informed by patient and public partners. METHODS: A research team and steering group were established in 2019 to conduct the myeloma priority setting partnership. Steering group members inc

Картирование ухода в конце жизни для пациентов с неврологическими заболеваниями на немецких хоспезах: обследование распространенности точечных заболеваний.

ОБРАЩЕНИЕ: Доступ пациентов с неврологическими заболеваниями к паллиативной помощи по-прежнему ограничен. К числу факторов, способствующих этому, относятся трудности с прогнозированием траекторий заболеваний, ограниченность ресурсов для долгосрочного ухода и трудности с выявлением фазы завершения жизни, которая зачастую усугубляется коммуникационными и когнитивными нарушениями. МЕТОДЫ: Мы провели национальное обследование точечной распространенности среди германских стационарных хоспей с использованием онлайнового вопросника. Результаты: доля ответивших 44%, с 83% - наличие у участников хоспей

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… can lead to concerns that institutional care may not be able to meet all of the patient’s demands, a fear that has been substantiated by research. 15 Particularly in Parkinson’s disease, access to palliative care depends on timely information, emotional preparation and support around end-of-life and bereavement …

A Qualitative Study to Assess Collusion and Psychological Distress in Cancer Patients.

IntroductionCollusion is frequently encountered but least studied entity in palliative care services in India. Impact of collusion is manifold and identifying it requires good communication skills. Once identified, it gives an indication for existing healthy versus developing unhealthy collusion to be dealt within families.ObjectiveThe objective of this study was to identify the prevalence of collusion and its clinical and psychological correlates among patients and caregivers in a palliative cancer care.Materials and methodsWe describe systematic identification and unraveling of collusion acr

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… Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful? Is it helpful? Arch Intern Med. 2004;164:1999–2004. doi: 10.1001/archinte.164.18.1999. 5. Jeba J, Jacob A, Kandasamy R, George R. …

Perspectives of patients, partners, primary and hospital-based health care professionals on living with advanced cancer and systemic treatment.

PurposeAn emerging group of patients lives longer with advanced cancer while receiving systemic treatment. This study aimed to investigate psychosocial aspects of living longer with advanced cancer, and experiences with psychosocial care, from the perspectives of patients, partners, and health care professionals (HCPs).MethodsFrom May to December 2020, participants were purposively selected. In-depth, semi-structured interviews were conducted by video or phone call, containing open questions regarding psychosocial aspects and psychosocial care in oncology. The data was analysed following thema

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… Wright AA Zhang B Ray A Mack JW Trice E Balboni T Mitchell SL Jackson VA Block SD Maciejewski PK Prigerson HG Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment JAMA 2008 300 14 1665 1673 10.1001/jama.300.14.1665 18840840 … Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008;300(14):1665–73. 18840840 10.1001/jama.300.14.1665 PMC2853806 37. …

Palliative Care in Musculoskeletal Oncology.

Patients in advanced stages of illness trajectories with local and widespread musculoskeletal incurable malignancies, either treatment naive or having recurrence are referred to the palliative care clinic to relieve various disease-related symptoms and to improve the quality of life. Palliative care is a specialized medicine that offers treatment to the disease-specific symptoms, places emphasis on the psychosocial and spiritual aspects of life and help the patients and their family to cope with advance stage cancer in a stronger and reasonable way. The overall outcome of musculoskeletal malig

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… It enables the supportive and palliative care needs of both patient and family to be identified and met throughout the last phase of life and into bereavement. …

Keyword Index for Volume 108

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… plasma marker 163 platinum 2039 podocalyxin-like protein 2321 polyamines 512 polymorphism 438, 1126 polyunsaturated fatty acids 486 pooled analysis 727 population-based 1195 population-based data 691 population-based study 775 population studies 2455 positive predictive values 25 post-bereavement …

Oral Presentation

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… Caregivers connect is a safe space where current and bereaved parents/ caregivers can grieve, vent pent-up emotions, stress and anxiety and relate with one other. … Mobile: 9892566156 Introduction: Palliative care principles can be used throughout the disease trajectory, from before diagnosis to treatment completion or towards end- of-life care through bereavement. …

Collusion in Cancer Care: An Investigation into its Facets at a Tertiary Care Center in South India.

Background and aimsCollusion, the practice of concealing a diagnosis or prognosis from a close relative to prevent emotional distress, is a complex issue in cancer care. This study aimed to estimate the prevalence of collusion among cancer patients and identify the associated factors, including educational status, time since diagnosis, and prognosis.MethodsThis 6-month cross-sectional study recruited 121 consenting cancer patients (aged >18 years) via convenient sampling at a tertiary care center in South India. Patients with psychiatric conditions or communication difficulties were excluded.

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… Talking with terminally ill patients and their caregivers about death, dying, and bereavement: Is it stressful?Is it helpful?Arch Intern Med. 2004;164:1999–2004. doi: 10.1001/archinte.164.18.1999. 15. Arbabi M, Rozdar A, Taher M, Shirzad M, Arjmand M, Ansari S, et al. …

Abstracts from the 13th International Conference for Healthcare and Medical Students (ICHAMS).

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… With the incorporation of Transforming Healthcare Education Project (THEP) into the Royal College of Surgeons in Ireland (RCSI) curriculum, a course on Dying, Death, and Bereavement (DDB) was developed as a Student Engagement Partnership initiative. … By reflecting on their personal experiences with death, the DC provides a unique opportunity for students to begin sharing in conversations and experiences of death and bereavement, which will aid them in their careers as doctors. …