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Difficulties in Daily Living Experienced by Adolescents, Transition-Aged Youth, and Adults With Fetal Alcohol Spectrum Disorder.

BACKGROUND: Individuals with fetal alcohol spectrum disorder (FASD) experience a range of problems in their cognitive, affective, and physical functioning following prenatal alcohol exposure (PAE), in addition to multiple complex difficulties in daily living that impact well-being. Using the Canadian National FASD Database, we sought to profile a range of difficulties in daily living, along with risk factors, in a large cross-sectional cohort of adolescents, transition-aged youth, and adults with PAE, of which a subset was ultimately diagnosed with FASD. METHODS: We summarized data for 9 curr

Nurses' Experiences and Perspectives on Perioperative Care During Neonatal Circumcision: A Qualitative Study.

PURPOSE: To explore nurses' knowledge, experiences and perceptions of perioperative care related to neonatal circumcision and to identify implications for nursing practice and care standardization. DESIGN: A qualitative descriptive study. METHODS: Twenty-eight nurses working in neonatal care settings and involved in neonatal circumcision care were recruited using snowball sampling. Data were collected through face-to-face, semi-structured in-depth interviews and analyzed using Braun and Clarke's reflexive thematic analysis. Reporting followed the Consolidated Criteria for Reporting Qualitati

Allocation of Users of Mental Health Services to Needs-Based Care Clusters: An Italian Pilot Study.

In Italy, despite strong community-based mental health services, needs assessment is unsatisfactory. Using the Mental Health Clustering Tool (MHCT) we adopted a multidimensional and non-diagnosis dependent approach to assign mental health services users with similar needs to groups corresponding to resources required for effective care. We tested the MHCT in nine Departments of Mental Health in four Italian regions. After a brief training, 318 professionals assessed 12,938 cases with a diagnosis of schizophrenia, depression, bipolar disorder and personality disorder through the MHCT. 53% of ca…

Implementation of processes of care to support transcatheter aortic valve replacement programs.

Transcatheter aortic valve replacement (TAVR) is increasingly accepted as a feasible and safe therapeutic alternative to open heart surgery in select patients. Procedural success and technological advances combined with favorable clinical outcomes and demonstrated prolonged survival are establishing TAVR as the standard of care in symptomatic patients who are at higher risk or not candidates for conventional surgery. The growing number of referrals and complexities of care of TAVR candidates warrants a program that ensures appropriate patient assessment and triage, establishes appropriate proc

Does engagement with an intensive outreach service predict better treatment outcomes in 'high-risk' youth?

AIM: Engagement is critical in ensuring that the most 'at risk' clients receive care from psychiatric services, but the relationship between engagement and treatment outcomes remains unclear. This study investigated possible improvements in client engagement and the relationship between engagement and treatment outcomes in a group of difficult-to-engage, 'high-risk' young people seen by the Intensive Mobile Youth Outreach Service (IMYOS) in Western Metropolitan Melbourne, Australia. METHODS: Data from standardized outcome measures on client engagement, suicidality, hostility, well-being and f

[Tools available in Spanish for clinical assessment of delirium. Systematic review].

INTRODUCTION: Delirium assessment is difficult because it involves the alteration of different mental functions in patients of any age who have serious medical-surgical conditions or dementia. Therefore, concrete assessment tools for specific needs are required. This systematic review synthetizes the information about the tools available in Spanish for delirium clinical assessment. MATERIALS AND METHODS: This is a systematic review that follows the PRISMA Diagnostic Test Accuracy guideline. Using a search algorithm, two researchers assessed five scientific indexing systems and searched for ad

Paediatric palliative care in advanced cystic fibrosis: from prognosis-based to needs-based care across the disease trajectory.

Advances in cystic fibrosis care, particularly highly effective cystic fibrosis transmembrane conductance regulator modulator therapies, hav … across increasingly heterogeneous disease trajectories. Future research should define approaches to needs assessment, escalation of palliative support, specialist referral, and implementation within multidisciplinary cystic fibrosis services, with the aim of improving quality of life alongside longer survival.

Engaging families to improve high-risk infant follow-up participation: a mixed methods study.

OBJECTIVE: Identify factors that impact attendance at a regional high-risk infant follow-up (HRIF) program and explore caregiver perceived barriers and facilitators to participation. STUDY DESIGN: A retrospective study identified factors associated with first visit non-attendance amongst infants referred to HRIF. Results guided recruitment for a mixed methods needs assessment including surveys and structured interviews to understand caregiver perspectives through inductive qualitative thematic analysis. RESULTS: Compared to infants who attended an initial HRIF visit, infants who did not atte…

Development and implementation of the Steps to Successful Palliative Care programme in residential care homes for people with a learning disability.

BACKGROUND:: For health and social care services to meet the needs of a growing and ageing population they need to respond appropriately. This response is only going to be possible if attention is paid to the individuals within it. This includes those people living with a learning disability (LD). AIMS:: To develop and implement a palliative care programme that would meet the needs of people with a LD, their families and care home staff. METHODS:: A palliative care programme and resource folder was created following a literature review and meetings with LD and specialist palliative care expe

Developing a community based service model for disability: Listening to the needs of all beneficiaries and providers.

PURPOSE: To inform the strategic and operational development of a community based service model at the Crann Centre, Cork, Ireland for SB children, adults, their families and providers. A needs assessment was conducted by gathering the views of multiple stakeholder perspectives within the SB community in the geographical region the Centre will serve. The intention is to create project deliverables that are responsive to the needs highlighted through this research. METHODS: The study used a multi method design with a participatory research approach to explore the needs of SB individuals, famil…

Early Childhood Development of Boys with Genital Anomalies.

BACKGROUND: Male genital anomalies often require surgery in early life to address functional and cosmetic consequences. However, there has been little assessment of developmental outcomes of affected boys. METHODS: We conducted a population-based cohort study of all boys born in New South Wales, Australia, and undergoing school-entry developmental assessment in 2009 or 2012. Health and developmental information was obtained by means of record-linkage of birth, hospital and Australian Early Development Census data. Boys with hypospadias or undescended testis (UDT) were compared with those with

Потребность в помощи и соответствующий вопросник для семей, обеспечивающих уход за пациентами с множественной миеломой: исследование по вопросам развития и перекрестной проверки.

СПРАВОЧНАЯ ИНФОРМАЦИЯ: В течение всего периода болезни пациентов с множественной миеломой (ММ) те, кто ухаживает за членами семьи, играют важнейшую вспомогательную роль, и они сами имеют вспомогательные потребности в уходе (СХН), которые зачастую не удовлетворяются. Одной из неотложных проблем является быстрое и точное выявление удовлетворяемых и неудовлетворенных потребностей семей, обеспечивающих уход за членами семьи. ЦЕЛИ: Разработка вопросника для лиц, осуществляющих уход за пациентами с множественной миеломой, в целях удовлетворения потребностей в поддержке и снабжения, а также оценка ег

Совпадение в аннотации оригинала
BACKGROUND: Family caregivers play a crucial supporting role throughout the disease trajectory of patients with multiple myeloma (MM), and t … structure (Disease Information, Care Skills, Psychosocial, and Medical Service) identified for the needs assessment. The scale-level content validity index was 0.998. The reliability was proved to be receivable, with a Cronbach’s α of 0.962 and 0.981 for the needs and supply sub-questionnaires, respectively. CONCLUSIONS: A new questionnaire was developed to asses …

Hearing Assessment and Rehabilitation for People Living With Dementia.

Hearing impairment commonly co-occurs with dementia. Audiologists, therefore, need to be prepared to address the specific needs of people living with dementia (PwD). PwD have needs in terms of dementia-friendly clinical settings, assessments, and rehabilitation strategies tailored to support individual requirements that depend on social context, personality, background, and health-related factors, as well as audiometric HL and experience with hearing assistance. Audiologists typically receive limited specialist training in assisting PwD and professional guidance for audiologists is scarce. The

Resident care needs and work stressors in special care units versus non-specialized long-term care units.

Differences in how elderly residents' care needs affect staff's experiences of work stressors between special care units (SCUs) for dementia and psychiatric residents and non-SCUs were investigated. The data were drawn from 390 staff members in 38 long-term care SCUs, and 587 staff in 53 non-SCUs in Finland. Residents' care needs were based on the Resident Assessment Instrument (RAI) system measured by the Minimum Data Set 2.0. Work stressors (time-pressure and role-conflicts) were assessed with a staff survey questionnaire. Multiple-group regression analysis showed that residents' dependency

Using the service needs index to quantify complexity and identify treatment needs across youth mental health service populations: an observational study.

BACKGROUND: Digital technologies can facilitate comprehensive mental health assessment of an individual's treatment needs, while also enabling data aggregation and analysis at the population or service level. The Service Needs Index (made up of clinical, psychosocial, and comorbidity components) collectively expresses a concise metric for the type, range, and complexity of young people's treatment needs. This study aimed to examine variation in the Service Needs Index across service settings and assess its potential to inform population-level mental health planning. METHODS: Using data from 1

Prevalence and correlates of unmet supportive care needs in patients with resected invasive cutaneous melanoma.

BACKGROUND: Knowledge about supportive care needs in patients with cutaneous invasive melanoma is scarce. We examined the unmet needs of melanoma patients treated with surgery and factors associated with these needs to assist health professionals identify areas needing clinical attention. PATIENTS AND METHODS: Cross-sectional multisite survey of UK patients ascertained 3 months to 5 years after complete resection of stage I-III cutaneous melanoma. Participants completed the following validated questionnaires: Supportive Care Needs Survey (SCNS-SF34 with melanoma module), Hospital Anxiety and

Evidence that a psychopathology interactome has diagnostic value, predicting clinical needs: an experience sampling study.

BACKGROUND: For the purpose of diagnosis, psychopathology can be represented as categories of mental disorder, symptom dimensions or symptom networks. Also, psychopathology can be assessed at different levels of temporal resolution (monthly episodes, daily fluctuating symptoms, momentary fluctuating mental states). We tested the diagnostic value, in terms of prediction of treatment needs, of the combination of symptom networks and momentary assessment level. METHOD: Fifty-seven patients with a psychotic disorder participated in an ESM study, capturing psychotic experiences, emotions and circu

Nationwide survey of adolescents and young adults with end-stage kidney disease.

AIM: To better understand the health-care needs of adolescents and young adults (AYA) with end-stage kidney disease (ESKD), we sought to describe the demographic characteristics of a national cohort. METHODS: Data were retrieved from the Australia and New Zealand Dialysis and Transplant Registry. We included all patients aged 15-25 years, living in Australia and receiving renal replacement therapy (RRT) on 31 December 2009. Data included race, aetiology of kidney disease, postal code, transition and migration history. RESULTS: A total of 495 AYA were receiving RRT in Australia giving a preva

Experiences of Emotional Healing After Figurines Intervention in Rural Thai Primary School Children: A Mixed-method Study.

BACKGROUND: Reproductive donation is a challenging task, in which donors' needs are sometimes neglected. To provide reproductive donors with well-structured, evidence-based, and donor-centered care, it is essential to acknowledge their unique needs and preferences. This study aimed to synthesize the current evidence regarding donors' needs and preferences. METHODS: This mixed-methods systematic review (MMSR) was conducted based on the recommended approach for MMSR by the Joanna Briggs Institute (JBI) manual for data synthesis. The databases of Web of Science, PubMed, Cochrane Library, and Sco

Educational needs in patients with spondyloarthritis in Sweden - a mixed-methods study.

BACKGROUND: There is a demand for a flexible and individually tailored patient education to meet patients' specific needs and priorities, but this area has seldom been studied in patients with spondyloarthritis (SpA), a family of inflammatory rheumatic diseases. The aim of the present study was to identify needs and priorities in patient education in patients with SpA. A second aim was to investigate patients' experiences and preferences of receiving patient education. METHODS: Data collection included a questionnaire survey with the Educational Needs Assessment Tool (ENAT) and interviews, us…