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40th Annual CAPO Conference-Responding to the Human Experience of Cancer and Caring for the Soul: Building on 40 Years of Global Leadership in Psychosocial Oncology.

On behalf of the Canadian Association of Psychosocial Oncology, we are pleased to present the Abstracts from the 2025 Annual Conference, titled "Responding to the Human Experience of Cancer and Caring for the Soul: Building on 40 years of global leadership in psychosocial oncology". The 40th Annual CAPO Conference was held in Toronto from 23 April 2025 to 25 April 2025. In an era marked by the rapid advancement of biologically focused precision medicine, it is imperative to redirect our attention towards the human experience of illness and the soul of medicine. Biomedicine has conceptualized i

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… Grief caused by such experiences can be particularly difficult for caregivers and clinicians to navigate, yet hospital-based grief initiatives remain limited. This symposium highlights three such initiatives: two supporting AYA caregiver grief and one supporting AYA clinician grief. … Initially developed for parents grieving the loss of a child to cancer, Meaning-Centered Grief Therapy (MCGT) is an evidence-based, 16-session intervention that utilizes a cognitive-behavioral-existential approach to address grief and meaning-related challenges. …

The Role of Social Support in the Experience of Informal Caregivers of Cancer Patients: An Umbrella Review.

ObjectiveTo understand the role of social support in the caregiving experience of cancer patients through a narrative synthesis of systematic reviews and meta-analyses, providing a comprehensive overview in the field.MethodsA systematic search of systematic reviews and meta-analyses published between 2013 and 2024 was conducted in PubMed, EMBASE, PsycINFO, CINAHL, Web of Science, and Scopus using PCC-based search terms related to informal caregivers, social support, and cancer.ResultsThe search resulted in a total of 1377 articles, of which 32 met the inclusion criteria and quality assessment.

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… Conversely, insufficient social support is recognized as a risk factor that may also hinder effective grief processing [ 15 , 16 ]. Social support also differently impacts the caregiver experience based on gender differences. … in caregivers during the palliative phase. | Non‐specific | Perceived social support and professional discussions aid grief adaptation, while ambivalent or conflictual patient relationships predict poor adjustment. …

Trends in descriptions of palliative care in the cancer clinical practice guidelines before and after enactment of the Cancer Control Act (2007): content analysis.

BackgroundPalliative care was a priority issue in the Cancer Control Act enacted in 2007 in Japan, and this has resulted in efforts being made toward educational goals in clinical settings. An investigation of how descriptions of palliative care for the treatment of cancer have changed in clinical practice guidelines (CPGs) could be expected to provide a better understanding of palliative care-related decision-making. This study aimed to identify trends in descriptions of palliative care in cancer CPGs in Japan before and after enactment of the Cancer Control Act.MethodsContent analysis was us

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… Physician communication with patient/family (including communication with patient and family about personal grief and bereavement) 14. … Family roles and responsibilities (communication of patient and family member roles during the process, grief and bereavement, caregiver roles and support) a We included the following two criteria: “Palliative care” and “Palliative operation/symptomatic treatment”, which could not be classified by the …

Oncology Nursing During a Pandemic: Critical Reflections in the Context of COVID-19.

ObjectivesTo provide a critical reflection of COVID-19 in the context of oncology nursing and provide recommendations for caring for people affected by cancer during this pandemic.Data sourcesElectronic databases, including CINAHL, MEDLINE, PsychINFO, Scopus, professional web sites, and grey literature were searched using Google Scholar.ConclusionNurses are key stakeholders in developing and implementing policies regarding standards of care during the COVID-19 pandemic. This pandemic poses several challenges for oncology services. Oncology nurses are providing a pivotal role in the care and ma

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… The limited capacity of services to deal with the volume of affected people and families and protective isolation measures that aim to contain transmission can both result in limited or no visits from family members, impacting the preparatory grief processes and the notion of having a good death. … Coronavirus: dealing with bereavement and grief. Available at: https://www.cruse.org.uk/get-help/coronavirus-dealingbereavement-and-grief . Accessed 26 April 2020. 72. National Institutes of Health. Guidance for NIH-funded clinical trials and human subjects’ studies affected by COVID-19. …

Major depression.

Major depression is a common, disabling condition seen frequently in primary care practices. Non-psychiatrist ambulatory providers are increasingly responsible for diagnosing, and primarily managing patients suffering from major depressive disorder (MDD). The goal of this review is to help primary care providers to understand the natural history of MDD, identify practical tools for screening, and a thoughtful approach to management. Clinically challenging topics like co-morbid conditions, treatment resistant depression and pharmacotherapy selection with consideration to side effects and medica

Resilience in Cancer Patients.

Background: Being diagnosed with cancer and undergoing its treatment are associated with substantial distress that can cause long-lasting negative psychological outcomes. Resilience is an individual's ability to maintain or restore relatively stable psychological and physical functioning when confronted with stressful life events and adversities. Posttraumatic growth (PTG) can be defined as positive life changes that result from major life crises or stressful events. Objectives: The aims of this study were to 1) investigate which factors can strengthen or weaken resilience and PTG in cancer pa

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… processing and deliberate grief avoidance: a prospective comparison of bereaved spouses and parents in the United States and the People’s Republic of China | Prospective study design (4 and 18 months of bereavement) | 68 US participants 78 PRC participants | 13-item Grief Processing Scale 7-item Grief … Avoidance Scale SCL-90 | Both grief processing and deliberate grief avoidance predicted poor long-term adjustment for U.S. participants. 13 | Bonanno et al. ( 30 ) | Resilience to loss and potential trauma | Review article | – | – | This review focuses on the heterogeneity of outcomes following aversive …

The experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care: A qualitative study.

BackgroundThis study explores the experience of palliative patients and their family members of a family meeting model, utilised as an instrument for the provision of spiritual and psychosocial care. In doing so the study embraces a broad understanding of spirituality which may or may not include formal religious practice and a concept of psychosocial care that includes: social and emotional well-being, communication, self esteem, mental health and adaptation to illness. The meeting of spiritual and psychosocial needs is considered to be an important aspect of palliative care.MethodsThis quali

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… A literature review did not identify any examples of a family meeting being used solely to address spiritual and psychosocial issues although its use to address potential bereavement issues for families identified as at risk of complex grief has been reported [ 23 ]. … These family meetings were facilitated by the first author who has training and experience in grief and palliative care counselling, spiritual care, working with family groups and had completed a training program with the author of the model. …

Death, bereavement and randomised controlled trials (BRACELET): a methodological study of policy and practice in neonatal and paediatric intensive care trials.

BACKGROUND: Researchers have seldom included bereaved parents in studies of participants' views of randomised controlled trials (RCTs); henc … ay result from the positioning of clinicians' encounters with parents only in the initial stages of grief when trials were not a priority. Trial teams used a range of bereavement strategies, from no further contact to a pioneering multipart follow-up package. Communication with bereaved parents was complicated by limited contact opportunities. Trial tea …

Music Therapy and Nursing Cotreatment in Integrative Hospice and Palliative Care.

Integrative hospice and palliative care is a philosophy of treatment framing patients as whole persons composed of interrelated systems. The interdisciplinary treatment team is subsequently challenged to consider ethical and effective provision of holistic services that concomitantly address these systems at the end of life through cotreatment. Nurses and music therapists, as direct care professionals with consistent face-to-face contact with patients and caregivers, are well positioned to collaborate in providing holistic care. This article introduces processes of referral, assessment, and tr

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… The bereavement counselor affirmed that feeling out of control and feelings of guilt are normal responses to anticipatory grief. … Grief choir: a retrospective narrative study of lived experiences. Qual Inq Mus Ther . 2019;15:1–33. 13. Potvin N, Bradt J, Ghetti C. A theoretical model of resource-oriented music therapy with informal hospice caregivers during pre-bereavement. J Music Ther . 2018;55(1):27–61. 14. …

A Qualitative Study to Assess Collusion and Psychological Distress in Cancer Patients.

IntroductionCollusion is frequently encountered but least studied entity in palliative care services in India. Impact of collusion is manifold and identifying it requires good communication skills. Once identified, it gives an indication for existing healthy versus developing unhealthy collusion to be dealt within families.ObjectiveThe objective of this study was to identify the prevalence of collusion and its clinical and psychological correlates among patients and caregivers in a palliative cancer care.Materials and methodsWe describe systematic identification and unraveling of collusion acr

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… Furthermore, grief about the continuous loss of health may change their perceived disability, spiritual well-being, and expectations from treating team which has been hardly studied in a single study so far. … | 27 (43.5) Oral morphine solution for pain control | 51 (82.3) Adverse effect of treatment | Nil | 40 (64.5) Vomiting | 17 (27.4) Lymphedema | 5 (8.1) Regarding psychological needs of patients, it was found that 56% had healthy acceptance of the illness as per Kubler-Ross stages of assessment of grief …

Family presence during resuscitation.

BACKGROUND: Patients and their relatives often expect to be actively involved in decisions of treatment. Even during resuscitation and acute … difference was found in favor of FPDR when looking at PTSD, anxiety and depression, and complicated grief after 1 year.  One of the included studies also measured duration of patient resuscitation and personal stress in healthcare professionals during FPDR and found no difference between groups. Both studies had high risk of bias, and the evidence for a …

Exploring the ethical decision-making experience of caregivers of end stage cancer patients in Iran: a phenomenological study.

BackgroundEthical decision making is a complex issue because it strongly depends on the religion, beliefs, traditional laws and moral views of each society. The purpose of this study was to explore the experience of Iranian family caregivers of end stage cancer patients about ethical decision making.MethodsThis qualitative study is based on van Manen's method of hermeneutic phenomenology. In-depth interviews were carried out to collect data. Participants were 12 caregiver. Audiotapes were transcribed and analyzed for common themes that represented the participants' experiences. Trustworthiness

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… This theme consisted of several sub-themes which are described below: Emotional distress Caring and decision making for individuals who are dying evokes a range of emotions, such as a sense of running out of patience, losing power, a sense of crisis, anger, denial, shock, fear, anxiety, and endless grief … At the end of life, the care ethics emphasize that care does not end with the death and should continue until the family has received support with their grief responses [ 19 ]. …

Work Outcomes Among Patients with Light Chain (AL) Amyloidosis: Findings from Three Patient Cohorts.

BackgroundLight chain (AL) amyloidosis is a rare and progressive disease that affects myriad organs and systems. Patients with cardiac involvement have the highest risk of death. This report compiles findings across three cohorts of patients with AL amyloidosis to understand patterns of employment and work impacts.MethodsData came from three cohorts recruited through patient advocacy organizations in the US. Patients in Cohort 1 completed the SF-36v2® Health Survey (SF-36v2), the Work Productivity and Activity Impairments - Specific Health Problem (WPAI) questionnaire, and the 12-item Kansas C

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… And then all of the sudden I will be aware of oh good grief, did my boss just walk by? … And then all of the sudden I will be aware of oh good grief, did my boss just walk by? …

Psychobiographical Reflections on Marilyn Yalom's Experience of Death and Dying.

The universal awareness of death is central to the framework of existential psychology. However, its subjective confrontation remains deeply personal. Marilyn Yalom (1938-2019), distinguished feminist scholar and cultural historian, documented her intimate reflections on dying in a book co-authored with her husband, Irvin Yalom, renowned existential psychotherapist and author. This single-case psychobiography sought to examine her experience, focusing on her diarised reflections on living with and dying from a terminal illness in this book as the primary data source. Data analysis examined Mar

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… This theme highlights how the mourning of one’s own demise is often tied to the anticipated disconnection from loved ones, further complicated by concerns over their grief. This idea echoed throughout her entries, as she noted in a later chapter (wittingly titled Whose death is this anyway?) … It saddens me greatly to imagine him alone” ( Yalom & Yalom, 2021 , p. 63) and described being “moved and unsettled” (p. 63) by her husband’s anticipatory grief. …

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… However, for paediatric patients, guilt often results in complicated grief patterns. Parents think that they could have done things differently following the death of their child. It is important to address this guilt for parents to move on in their grief. … For the parents, the mere consideration of the possible death of their child propels them into a sphere of denial, disbelief, anticipatory grief and often into deep existential crisis. …

[Etiology of adult insomnia].

In the article, the author develops an analysis of external and intrapsychic factors related to adults' insomnia. First she undertakes a lit … clusion when we have to face overcharge of external events, deep intrapsychic conflicts (related to grief, unemployment, damage or hospitalization) or interpersonal conflicts' situations where we are confronted to stress related to socio-affective environment, lack of social support or conjugal difficulties. Medical and physiologic causes: legs impatien …

Воздействие непрерывного лечения леналидомидома на людей, живущих с множественным исследованием по оценке качества услуг в одном центре миэломы.

PMOPSE: Непрерывное лечение линалидомида после аутологической трансплантации стволовых клеток способствует повышению уровня свободного развития и общей выживаемости вновь диагностированных пациентов с множественными миеломами и является стандартом ухода в Соединенном Королевстве с марта 2021. Однако имеется мало информации о ее воздействии на повседневную жизнь пациентов. Эта оценка услуг была направлена на качественную оценку пациентов, проходящих курс лечения линалидомидом в раковом центре в Лондоне, с тем чтобы эта служба могла лучше соответствовать потребностям и ожиданиям пациентов.МЕТОДЫ

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… A meta-aggregation of 11 qualitative studies examining experiences of MM suggests that grief and isolation are common [ 11 ], with quantitative surveys suggesting that patients can experience depression [ 12 ], anxiety [ 13 ], and poor health-related quality of life (QoL) [ 14 , 15 ]. … Managing grief, loss, and connection in oncology—what COVID-19 has taken. JAMA Oncol. 2020;6(11):1700–1701. doi: 10.1001/jamaoncol.2020.2839. 48. Weaver MS, Neumann ML, Navaneethan H, Robinson JE, Hinds PS. …

Quality of life and distress assessed with self and external assessment screening tools in patients with hematologic malignancies attending treatment in an acute hospital.

PurposeIn this study, we examined distress levels and quality of life (QoL) of patients with hematologic malignancies under treatment in an acute setting. We used external- and self-assessment instruments for distress. Additionally, we investigated the relation between distress and QoL as well as whether highly distressed patients differed from less distressed patients concerning their QoL.MethodsA cross-sectional study with patients of the Medical Clinic II of the University Hospital Frankfurt was conducted. One hundred and nine patients were assessed with an expert rating scale and completed

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… Table 2 Descriptive statistics for distress and quality of life | N | M | SD | Cut-off value | n (%) above cut-off PO-Bado-SF | | | | Fatigue/tiredness | 109 | 1.5 | 1.2 | Mood swings/vulnerability/helplessness | 109 | 1.4 | 1.1 | Anxiety/worries/tension | 109 | 1.7 | 1.1 | Depression/grief | … | Fatigue/tiredness | 71 | 1.8 | 1.2 | 38 | 0.8 | 0.8 | 98.51 | − 5.232 | > .001 | 0.83 Mood swings/vulnerability/helplessness | 71 | 1.8 | 1.1 | 38 | 0.6 | 0.7 | 102.69 | − 7.483 | > .001 | 1.09 Anxiety/worries/tension | 71 | 2.1 | 0.9 | 38 | 1.0 | 0.9 | 107 | − 5.553 | > .001 | 1.00 Depression/grief …

Critically ill patients with cancer: chances and limitations of intensive care medicine-a narrative review.

This narrative review deals with the challenge of defining adequate therapy goals and intensive care unit (ICU) admission criteria for critically ill patients with cancer. Several specific complications of critically ill patients with cancer require close collaborations of intensive care and cancer specialists. Intensivists require a basic understanding of the pathophysiology, diagnosis and therapy of common cancer-specific problems. Cancer specialists must be knowledgeable in preventing, detecting and treating imminent or manifest organ failures. In case of one or more organ dysfunctions, ICU

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… Family members have an increased risk for symptoms of anxiety, depression, complicated grief and post-traumatic stress disorder. 44 Involving a PC team into the treatment of critically ill ICU (cancer) patients can alleviate some of the symptoms in up to 90%. 45 Implementation of structured communication … Crit Care Med 2001 ; 29 : 277 – 82 . 10.1097/00003246-200102000-00010 11246306 44 Anderson WG , Arnold RM , Angus DC Posttraumatic stress and complicated grief in family members of patients in the intensive care unit . …

The indignities of shielding during the COVID-19 pandemic for people with sickle cell disorders: an interpretative phenomenological analysis.

This article seeks to understand the first-hand experiences of people with sickle cell, a recessively inherited blood disorder, who were identified as clinically extremely vulnerable during the COVID-19 pandemic. Part of a larger sequential mixed-methods study, this article uses a selective sample of eight qualitative semi-structured interviews, which were analysed using interpretative phenomenological analysis (IPA). The first stage of IPA focused on practical concerns participants had correlated to understanding shielding and their feelings about being identified as clinically extremely vuln

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… So, I think there needs to be like a recognition that there needs to be some kind of grief counselling. … Noteworthy are the connections being made to the death of a person with SCD at age 30, the heightening of fears of mortality, and the lack of recognition of grief and the need for psychological support. …