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Facing financial barriers to healthcare: patient-informed adaptation of a conceptual framework for adults with a history of cancer.

BackgroundCancer-related financial hardship is associated with negative clinical outcomes, which may be partially explained by cost-related delayed or forgone care in response to financial barriers. We sought to understand patient experiences facing financial barriers to medical care following a cancer diagnosis.MethodsWe conducted virtual, semi-structured interviews in Fall 2022 with 20 adults with a history of cancer who had experienced cancer-related financial hardship in the prior year. We used template analysis within a pragmatic paradigm, combining constructivist and critical realist the

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… Examples described by interviewees included shame associated with using social services [ “I never thought I would come to a day where I would have to apply for the food stamp program…to me that’s somewhat embarrassing” (20: 56–75 years old, blood)]; health system prioritization of patients with higher …

The Success of Cancer Crowdfunding Campaigns: Project and Text Analysis.

BackgroundRecent studies have analyzed the factors that contribute to variations in the success of crowdfunding campaigns for a specific cancer type; however, little is known about the influential factors among crowdfunding campaigns for multiple cancers.ObjectiveThe purpose of this study was to examine the relationship between project features and the success of cancer crowdfunding campaigns and to determine whether text features affect campaign success for various cancers.MethodsUsing cancer-related crowdfunding projects on the GoFundMe website, we transformed textual descriptions from the c

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… Lublóy Á Medical crowdfunding in a healthcare system with universal coverage: an exploratory study BMC Public Health 2020 11 09 20 1 1672 10.1186/s12889-020-09693-3 33167927 10.1186/s12889-020-09693-3 33167927 PMC7653851 19 Ghazal LV Watson SE Gentry B Santacroce SJ "Both a life saver and totally shameful …

Quality of Life in Caregivers of Cancer Patients: A Literature Review.

(1) Background: Cancer constitutes one of the principal causes of morbi-mortality in the world and generates an important loss of patients' self-sufficiency. People who are their caregivers usually become the main care providers, which impacts their quality of life; (2) Aim: Analyze the different problems (physical, emotional, social, and financial) faced by people who are caregivers of adults with cancer and describe the strategies required to improve their quality of life; (3) Method: A literature review was conducted on the following database: PubMed, Cinahl, PsycINFO, and Scopus. The follo

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… Besides, they described abandonment of social spheres due to lack of time/energy, or feelings of shame/guilt for letting patients in other people’s care. Caregivers described feeling uneasy at social events, as most interactions were focused on cancer. …

Advancing Palliative Care Integration in Hematology: Building Upon Existing Evidence.

Opinion statementPatients with hematologic malignancies and their families are among the most distressed of all those with cancer. Despite high palliative care-related needs, the integration of palliative care in hematology is underdeveloped. The evidence is clear that the way forward includes standard-of-care PC integration into routine hematologic malignancy care to improve patient and caregiver outcomes. As the PC needs for patients with blood cancer vary significantly by disease, a disease-specific PC integration strategy is needed, allowing for serious illness care interventions to be ind

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… Surveys have shown, however, that hematologic malignancy specialists often express discomfort discussing death or hospice referral, as well as a sense of shame that this transition in treatment goals may indicate a personal failure [ 30 , 42 , 44 , 47 ]. …

Challenges in the cultural adaptation of the German Myeloma Patient Outcome Scale (MyPOS): an outcome measure to support routine symptom assessment in myeloma care.

BACKGROUND: Patients with multiple myeloma report more problems with quality of life (QoL) than other haematological malignancies over the course of their incurable illness. The patient-centred Myeloma Patient Outcome Scale (MyPOS) was developed to assess and monitor symptoms and supportive care factors in routine care. Our aim was to translate and culturally adapt the outcome measure to the German context, and to explore its face and content validity. METHODS: Translation and cultural adaptation following established guidelines used an exploratory, sequential mixed method study design. Steps

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… Maybe they also have feelings of shame, which is easier with the nurses. So, you are somehow without fear or favour. It’s a bit more distant with the doctors, I think, there are a lot of questions coming up towards us. Can I have sex with my partner at all? What do I have to pay attention to? …

Abstracts From JADPRO Live at APSHO 2015.

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… Hospital, Manchester, UK, Mary Kate Kasler, MSN, ACNP-BC, DNP, Memorial Sloan-Kettering Cancer Center, New York, NY, RuthAnn Gordon, MSN, FNP-BC, OCN, Memorial Sloan-Kettering Cancer Center, New York, NY, Vanessa Reed, MS, AGPCNP-BC, OCN, Memorial Sloan-Kettering Cancer Center, New York, NY, Yelena Shames …

Сексуальный и клинический профиль испаноязычных лиц с проблемным участием в сексуальной деятельности в Интернете: сравнение между субклиническими и клиническими группами.

С учетом быстрого роста цифровых технологий и последствий этой клинической картины все большую озабоченность вызывает проблематическое участие в онлайновой сексуальной деятельности (ОСА). Однако по-прежнему отсутствует консенсус в отношении нозологических и диагностических критериев этого формирующегося состояния. Хотя в ряде исследований были изучены характеристики и прогнозы проблемной КССА, лишь немногие из них опирались на клинические пробы или всеобъемлющие диагностические инструменты, охватывающие все существующие диагностические предложения. В рамках этого исследовательского исследовани

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… dysphoric moods; Occurrence or aggravation of sexual behavior in the face of stressful life events; Tolerance, Craving and Withdrawal symptoms, Increasing sense of tension before initiating sexual behavior; Relief and release once the sexual behavior has been performed and negative feelings (guilt, shame …

The concept of multidimensional frailty in geriatric oncology: a systematic scoping review.

BACKGROUND: One of the major challenges in geriatric oncology is to estimate the risk-benefit balance of any therapeutic proposal for each patient and frailty is one of the key components of Comprehensive Geriatric Assessment (CGA)and can also be assessed using stand-alone screening tools that predicts functional decline, treatment-related complications and mortality. This study aimed to provide an overview of the existing literature on the concept of multidimensional frailty in older adults with cancer, to clarify the dimensions included in multidimensional frailty, and the components of frai

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… Older adults with cancer may reject socialization because of the adverse physiological reactions to the disease itself, as well as the possible shame of the disease, resulting in social frailty, which later reduces socialization because of the frailty, creating a vicious cycle [ 39 ]. …

Глобальное состояние исследований и тенденции навязчивого сексуального поведения: всеобъемлющий библиометрический анализ.

СТРОИТЕЛЬНОЕ ПОЛОЖЕНИЕ В СВЯЗИ С СТРАТЕГИЧЕСКИМ ПОЛОЖЕНИЕМ В СВЯЗИ С СТРАТЕГИЧЕСКИМ ПОЛОЖЕНИЕМ (CSBD) - это состояние психического здоровья, которое привлекло к себе значительное внимание в ходе научных исследований, особенно после его включения в одиннадцатый пересмотренный вариант Международной классификации болезней (International Classification of Beasons) (International Classification of Bisons (CSBDD).ICD-11) Всемирной организацией здравоохранения. Несмотря на это признание, эта область по-прежнему является фрагментарной в связи с продолжающимся обсуждением вопроса о ее классификации и о

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… Among women, CSBD is typically motivated by emotional or relational factors and may be underreported due to shame or differing symptom patterns ( Dhuffar & Griffiths, 2016 ; Kowalewska, Bőthe, & Kraus, 2024 ; McKeague, 2014 ). …

Oncogenes: The Passport for Viral Oncolysis Through PKR Inhibition.

The transforming properties of oncogenes are derived from gain-of-function mutations, shifting cell signaling from highly regulated homeostatic to an uncontrolled oncogenic state, with the contribution of the inactivating mutations in tumor suppressor genes P53 and RB, leading to tumor resistance to conventional and target-directed therapy. On the other hand, this scenario fulfills two requirements for oncolytic virus infection in tumor cells: inactivation of tumor suppressors and presence of oncoproteins, also the requirements to engage malignancy. Several of these oncogenes have a negative i

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… therapy Cancer Lett 2009 283 2 125 134 19217204 10.1016/j.canlet.2009.01.022 7 Zhang LL Zhang J Shen L Xu XM Yu HG Overexpression of AKT decreases the chemosensitivity of gastric cancer cells to cisplatin in vitro and in vivo Mol Med Rep 2013 7 5 1387 1390 23546174 10.3892/mmr.2013.1400 8 Sunaga N Shames …

Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature.

UNLABELLED: In July 2010, the Medical Advisory Secretariat (MAS) began work on a Chronic Obstructive Pulmonary Disease (COPD) evidentiary fr … t smoking caused or worsens their COPD. Those who believe there is a causal link may feel regret or shame. EXPERIENCES OF LIVING DAY TO DAY: COPD patients experience alternating good days and bad days. A roller-coaster pattern of ups and downs becomes apparent, and COPD becomes a way of life. Patients use many means (social, psychological, medical, orga …

Healing Environments for Cancer Care: Toward a Patient-Centered Design Guideline for Inpatient Settings.

ObjectivesThis study proposes an evidence-based design guideline for oncology inpatient rooms that addresses the physical, emotional, and psychosocial needs of cancer patients.BackgroundCancer inpatients frequently experience long hospital stays with emotional vulnerability and clinical stress. Growing evidence suggests environmental design can shape patient experience, comfort, and recovery. Yet, current literature lacks an integrated framework for the spatial and sensory needs of this population.MethodA systematic literature review was conducted across Web of Science, Scopus, and PubMed. Fro

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… Conversely, when these principles were violated, such as through mixed-gender rooming, it led to significant distress and shame, with one study noting, “All participants shared the view that male occupancy in the same room was inappropriate … feelings of anxiety and embarrassment” (Study 34). …

Current Therapies and Future Horizons in Cardiac Amyloidosis Treatment.

Purpose of reviewCardiac amyloidosis (CA) is a condition characterized by misfolding and extracellular deposition of proteins, leading to organ dysfunction. While numerous forms of CA exist, two subtypes dominate clinical prevalence: Transthyretin amyloid (ATTR) and immunoglobulin light chain amyloid.Recent findingsThe current scientific landscape reflects the urgency to advance therapeutic interventions with over 100 ongoing clinical trials. Heart failure treatment is affected by CA phenotype with poor tolerance of otherwise frequently used medications. Treating comorbidities including atrial

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… Edwards CV, Rao N, Bhutani D, Mapara M, Radhakrishnan J, Shames S, et al. Phase 1a/b study of monoclonal antibody CAEL-101 (11-1F4) in patients with AL amyloidosis. Blood. 2021;138:2632–41. 10.1182/blood.2020009039. 10.1182/blood.2020009039 96. …

Social relationship challenges perceived by cancer patients and survivors: a qualitative meta-synthesis.

BackgroundA cancer diagnosis can significantly disrupt patients' social lives, leading to strained relationships and increased social isolation. Many encounter uneasy interactions or feel judged by others, amplifying loneliness and a sense of exclusion. While existing research has predominantly focused on clinical outcomes, the social relationship challenges faced by cancer patients have not been fully explored. Consequently, this study aims to synthesize qualitative studies that examine the social relationship experiences of cancer patients and survivors, offering a deeper insight into this i

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… These moral judgments intensify the emotional burden of cancer, reinforcing feelings of shame and guilt, which complicate the patient’s emotional healing. … Cultural and religious beliefs contribute to deep feelings of shame and guilt, while judgments from family and society further intensify this distress. …

The Rise of Oncoendocrinology: How Modern Cancer Therapies Are Reshaping Endocrine Practice.

The emergence of immune checkpoint inhibitors, targeted therapies, CAR T-cell therapy, and antibody-drug conjugates has transformed modern oncology, significantly improving survival across a wide range of malignancies. However, these advances have also introduced a growing spectrum of endocrine and metabolic complications, redefining the scope of endocrine practice. Therapy-induced endocrinopathies, including thyroid dysfunction, hypophysitis, adrenal insufficiency, diabetes, pancreatitis, dyslipidemia, gonadal dysfunction, and metabolic syndrome, are recognized as clinically significant and o

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… Dine J., Gordon R., Shames Y., Kasler M.K., Barton-Burke M. Immune Checkpoint Inhibitors: An Innovation in Immunotherapy for the Treatment and Management of Patients with Cancer. Asia Pac. J. Oncol. Nurs. 2017;4:127–135. doi: 10.4103/apjon.apjon_4_17. 2. Saijo N. …

Теоретический опыт в множестве склерозов: функциональные неврологические симптомы, недовольство изображением тела и расстройство пищевой практики. Обзор описательной части.

Множественный склероз (MS) — хроническое заболевание центральной нервной системы, связанное с целым рядом физических, когнитивных и психологических трудностей. Помимо классических неврологических симптомов, нарушения физического опыта, включая функциональные неврологические симптомы, соматизацию, расстройства, связанные с изображением тела, и расстройство питания, представляют собой недооцененный, но клинически значимый аспект болезни. В настоящем докладе обобщаются данные, полученные от взрослого и педиатрического населения, с уделением особого внимания частому соучастию этих нарушений в рабо

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… This discrepancy can undermine the sense of agency and self-continuity, contributing to body dissatisfaction and feelings of shame ( Price, 1990 ). Beyond their direct emotional impact, these disruptions in body image may interfere with psychological adjustment to chronic illness. …

Acceptance and commitment therapy reduces psychological distress in patients with cancer: a systematic review and meta-analysis of randomized controlled trials.

ObjectiveThis study aimed to systematically review and meta-analyze the clinical efficacy of acceptance and commitment therapy (ACT) in patients with cancer and psychological distress.MethodsRandomized controlled trials (RCTs) from seven English electronic databases were systematically investigated from inception to 3 October 2023. A total of 16 RCTs from 6 countries with 711 participants were included in this study. Estimated pooled effect sizes (ESs) were calculated via inverse-variance random-effects or fixed-effects (I2 ≤ 50%) model and presented by standardized mean difference (SMD). Subg

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… Slow and steady wins the race: a randomized clinical trial of acceptance and commitment therapy targeting shame in substance use disorders . J. Consult. Clin. Psychol. 80 , 43 – 53 . doi: 10.1037/a0026070 , PMID: 22040285 PMC5067156 Mani A. Mehdipour Z. Ahmadzadeh L. Tahmasebi S. Khabir L. …

Сексуальная дисфункция при расстройствах движения: распространенность, клинические особенности, связанные с этим факторы и управление.

Сексуальная дисфункция является распространенным, но недостаточно изученным симптомом немоторного расстройства движения. В то время как болезнь Паркинсона (PD) чаще всего исследуется, сексуальная дисфункция также отмечается в болезни Хантингтона, диспропорции и других расстройствах движения. Клинические представления являются разнородными и включают в себя сокращение желания, эректильную дисфункцию, эякуляционные и оргазмические расстройства, трудности с смазкой, диспаревинию и гиперсексуальность. В ДИ оценки распространенности заболеваний в различных исследованиях сильно различаются, главным

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… Studies on partnerships indicate that these behaviors may harm intimacy, trust and relationship stability, while partners often face distress, shame, anxiety, depression, or broader psychosocial challenges [14] , [138] , [143] , [145] . …

Symptoms, Symptom Profiles, and Healthcare Utilization in Patients with Hematologic Malignancies: A Retrospective Observational Cohort Study and Latent Class Analysis.

Symptom burden is known to be high in patients with hematologic malignancies and can adversely impact patients' quality of life. The aims of this retrospective observational cohort study were to explore symptoms in patients with hematologic malignancies, including during the last year of life, to explore symptom profiles in patients with hematologic malignancies, and to explore associations among symptoms/symptom profiles and demographic, clinical, and treatment-related variables. Symptom prevalence and severity and symptom profiles were explored in patients with hematologic malignancies who c

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… The stigma surrounding opioid use as a barrier to cancer-pain management: An overview of experiences with fear, shame, and poorly controlled pain in the context of advanced cancer Curr. Oncol. 2023 30 5835 5848 10.3390/curroncol30060437 37366920 PMC10296997 115. Makhlouf S.M. Pini S. Ahmed S. …

Patients' and family members' dyadic experience of post-operative delirium in the intensive care unit: A qualitative study.

BACKGROUND: Post-operative delirium is a complication with long-lasting consequences for both patients and their families. This is particularly true for those transferred to the intensive care unit after surgery, where the incidence of post-operative delirium is high, and patient outcomes are often poor. Despite the acknowledged role of family engagement in delirium management, previous research has mainly focused on patients, with limited exploration of the shared experiences between patients and family members. AIM: This study aims to explore the experiences of patients and family members d

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… Patients suffered the greatest psychological shock from POD, with one patient even developing a stress reaction to surgery and ICU; along with descriptions of disconnection, helplessness, and loss of identity, they showed a strong decline in self‐identity and the resulting shame made them avoid mentioning …