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Healing Environments for Cancer Care: Toward a Patient-Centered Design Guideline for Inpatient Settings.

ObjectivesThis study proposes an evidence-based design guideline for oncology inpatient rooms that addresses the physical, emotional, and psychosocial needs of cancer patients.BackgroundCancer inpatients frequently experience long hospital stays with emotional vulnerability and clinical stress. Growing evidence suggests environmental design can shape patient experience, comfort, and recovery. Yet, current literature lacks an integrated framework for the spatial and sensory needs of this population.MethodA systematic literature review was conducted across Web of Science, Scopus, and PubMed. Fro

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… This empowerment was eloquently captured in one study: “Adjusting the light with their mood gives them a feeling of flexibility and a right of choosing their own space” (Study 6). … The choice itself is a form of empowerment, and its emotional impact was also mediated by personality traits. …

Emphasizing Patient-Centricity Through a Tailored Training Program to Empower Patients, Advocates, and Ethics Committees in Good Clinical Practice.

ObjectivesGood Clinical Practices (GCP) are essential for patient-centric research. The standard bioethics and GCP training emphasizing a "one-size-fits-all" approach may not adequately equip ethics committee members, especially the lay and social scientist members, towards their critical role in reviewing clinical trials and related documentation. This article explores a patient-centered, patient advocates-driven training program focused on raising awareness about research ethics and GCP among patients, advocates and ethics committee members.MethodsA patient advocates-driven program called Pa

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… By prioritizing patient empowerment, ensuring access to quality information, and fostering collaboration between all stakeholders, this approach holds the potential to revolutionize healthcare delivery and improve patient outcomes on a global scale. … | Patient Advocates for Clinical Research Engineers and Report Frameworks | 20 | 22.0% | 23 | 25.3% Patient Advocates for Clinical Research | 64 | 70.3% | 67 | 73.6% Public Advocates for Clinical Reports Empowerment and Regulatory Frameworks | 3 | 3.3% | 1 | 1.1% Patient Advocates for Clinical Research …

Practical recommendations for the implementation of shared decision-making in multiple myeloma care.

BackgroundMultiple myeloma (MM) is characterized by complex and evolving treatment pathways, involving multiple preference-sensitive decisions across the disease trajectory. Shared decision-making (SDM) is widely recognized as a best-practice approach for such decisions, yet practical, context-specific guidance for implementing SDM in MM care remains limited.ObjectiveTo develop a set of practical, stakeholder-informed recommendations to support the implementation of SDM in MM care.MethodsThis study was conducted as part of a European mixed-methods research project initiated by the patient orga

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… Encourage patient preparation and empowerment to support active participation in consultations Patients from the interviews described difficulties remembering information and formulating questions during consultations. … Additionally, hospitals can support patient empowerment by placing flyers or showing slides on hospital screens, prompting patients to ask specific questions to initiate the SDM process. 7. …

Development of a Patient-Centered Preference Tool for Patients With Hematologic Malignancies: Protocol for a Mixed Methods Study.

BackgroundThe approval of novel therapies for patients diagnosed with hematologic malignancies have improved survival outcomes but increased the challenge of aligning chemotherapy choices with patient preferences. We previously developed paper versions of a discrete choice experiment (DCE) and a best-worst scaling (BWS) instrument to quantify the treatment outcome preferences of patients with hematologic malignancies to inform shared decision making.ObjectiveWe aim to develop an electronic health care tool (EHT) to guide clinical decision making that uses either a BWS or DCE instrument to capt

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… We intend to engage all stakeholders in the design process by inviting them to participate at levels that will promote empowerment in the shared decision-making process [ 38 ]. … Future research should continue to evaluate the levels at which older adults participate in the full development process, and how this can either limit or encourage their collaboration and empowerment. …

Culturally appropriate health education for people in ethnic minority groups with type 2 diabetes mellitus.

BACKGROUND: Ethnic minority groups in upper-middle-income and high-income countries tend to be socioeconomically disadvantaged and to have a … at any follow-up point. Other outcome measures (blood pressure, body mass index, self-efficacy and empowerment) also showed neutral effects compared with control groups. Data on the secondary outcomes of diabetic complications, mortality and health economics were lacking or were insufficient.Because of the nature of the intervention, participants and personn …

[Prevention of diabetic foot].

Diabetic foot (DF) is the most common chronic complication, which depends mostly on the duration and successful treatment of diabetes mellit … cation should be performed. In this group, it is necessary to include more frequent and intensified empowerment for lifestyle changes, appropriate diet, regular exercise (including frequent breaks for short exercise during sedentary work), regular self control of body weight, quit smoking, and appropriate treatment of glycemia, lipid disorders (treatment with …

Сочетание виртуальной реальности и гипноза? Исследование опыта работы с пациентами с множественной миеломой после трансплантации стволовых клеток.

Множественная миелома (ММ) и трансплантация стволовых клеток (ЦТ) оказывают значительное влияние на качество жизни пациентов. Виртуальная реальность с гипнозом (ОВГ) стала многообещающим нефармакологическим вмешательством для решения этих проблем, однако данных о ее приемлемости и опыте пользователей по-прежнему недостаточно. В ходе этого исследования была проведена оценка приемлемости и опыта использования ОВЗ среди взрослых пациентов с МИ, прошедших аллогенный СХТ. Участники использовали прикладную программу VRH и оценили свой опыт с помощью стандартизированных вопросников и полуструктуриров

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… This approach is becoming crucial to ensure that intervention meet patients’ needs and making them feel empowered. 43 Indeed, empowerment of patients is recognized as a key goal in rehabilitation. 44 In that sense, the literature identifies core elements of patient-centered care including Patient participation … Rehabilitation as empowerment: The role of advanced technologies. In: Advanced technologies in rehabilitation. IOS Press; 2009:3-22. 45. Kitson A, Marshall A, Bassett K, Zeitz K. What are the core elements of patient-centred care? …

A smartphone app to improve the safety of patients undergoing treatment with oral antineoplastic agents: 4 years of experience in a university hospital.

ObjectiveThis study aims to analyze the impact of the eOncosalud app on the management and follow-up of adverse effects (AE) in patients receiving oral antineoplastic agents.Material and methodsWe performed an observational, prospective study of cancer outpatients treated with oral antineoplastic agents (OAA), monitored by the eOncosalud app between August 2017 and October 2021. Safety variables were collected from eOncosalud: the number of AE; severity of the AE according to CTCAE, version 4.03; timelapse from app installation to first recorded AE; automatic recommendations issued; and the pa

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… A recent systematic review of cancer patient empowerment apps ( 31 ). describes and evaluates the features, quality, and evidence supporting these apps. App contents were very varied, and focused on communication, social support, and cancer treatment information. … Finally, we did not analyze some variables, such as reduced visits to the emergency room, patient empowerment, or usability to better evidence the added value of the app for the patient. …

A web-based knowledge database to provide evidence-based information to cancer patients: Utilization within the PIKKO study.

PurposeCancer is associated with an urgent need for understandable and reliable information, which is often not satisfied by information available online. Therefore, as part of the PIKKO project, a web-based knowledge database (WDB) was introduced to provide cancer patients with quality-assured, evidence-based information. This paper aims to provide insights into the usage (Who? How? What?) and the effects regarding health literacy of the WDB.MethodsA patient survey and automatically generated logfile data were evaluated. Two user groups, patients and patient navigators (PNs), were compared.Re

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… Setting This analysis was part of the project “Patient information, communication and competence empowerment in oncology” (PIKKO). The PIKKO project PIKKO was a care concept for cancer patients. … Schneider N, Bäcker A, Strauß B, Hübner J, Rubai S, Wagner S, Schwarz-Fedrow D, Hager L, Brenk-Franz K, Keinki C, Brandt F, Altmann U (2023) Patient information, communication and competence empowerment in oncology: results and learnings from the PIKKO study. …

Factors influencing physical activity in individuals with head and neck cancer: a scoping review.

ObjectivesHigher physical activity (PA) levels are associated with better quality of life in people with head and neck cancer (HNC). Despite this positive association, most individuals with these cancer types have a sedentary or low-activity lifestyle. Limited knowledge exists regarding the factors that influence PA in this group. Therefore, we reviewed and mapped the available literature on factors that may influence PA in people with HNC.DesignWe conducted a scoping review based on the framework of Arksey and O'Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses

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… Study participants reported that PA contributed to their well-being, both physically and mentally, 47 52 providing them with a sense of personal empowerment. 45 They were motivated to increase their PA levels to improve their physical and mental health, as well as their fitness levels. 48 They suggested … attitude and intention | Health behaviour change interventions and psychological strength building should be offered to increase patient’s self-efficacy and engagement. 46 48 Assistance by medical professionals or exercise specialist should be given to find a suitable type of PA. 36 46 Supporting the empowerment …

Patients' and family members' dyadic experience of post-operative delirium in the intensive care unit: A qualitative study.

BACKGROUND: Post-operative delirium is a complication with long-lasting consequences for both patients and their families. This is particularly true for those transferred to the intensive care unit after surgery, where the incidence of post-operative delirium is high, and patient outcomes are often poor. Despite the acknowledged role of family engagement in delirium management, previous research has mainly focused on patients, with limited exploration of the shared experiences between patients and family members. AIM: This study aims to explore the experiences of patients and family members d

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… The ABCDEF Bundle had become part of clinical nursing practice. 30 , 74 However, there still exists a gap between the existing and best practice as recommended by the guidelines, 75 , 76 mainly in the inadequate implementation of the ‘F’, which represents family engagement and empowerment. … In future POD management, the clinical use of family engagement and empowerment should be strengthened. …

Снижение стигматизации, укрепление психического здоровья и индивидуальности при множественном склерозе: обзор текущей практики и направлений будущей деятельности.

Стигма - это широко распространенный, хотя и недостаточно изученный, психосоциальный фактор, затрагивающий людей с множественным склерозом. В этом обзоре обобщается литература о воздействии воспринимаемого, внедренного и интернализованного стигматизации на психологическое здоровье и идентичность заболеваний в PwMS. МЕТОДЫ: Был принят всеобъемлющий подход к обзору описательной части с учетом выводов, сделанных в результате проведенных экспертными экспертами количественных и качественных исследований. Базы данных, включая PubMed, PsycINFO и Scopus, искали с помощью таких комбинаций терминов, как

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… Ultimately, adopting a trauma-informed, stigma-sensitive care model that validates lived experiences, promotes empowerment, and recognizes the multifaceted nature of stigma is essential. … For example, the Honest, Open, Proud (HOP) intervention, which targets stigma-related disclosure issues, has been shown to be extremely helpful in alleviating stigma stress and increasing empowerment [ 99 , 100 ]. …

40th Annual CAPO Conference-Responding to the Human Experience of Cancer and Caring for the Soul: Building on 40 Years of Global Leadership in Psychosocial Oncology.

On behalf of the Canadian Association of Psychosocial Oncology, we are pleased to present the Abstracts from the 2025 Annual Conference, titled "Responding to the Human Experience of Cancer and Caring for the Soul: Building on 40 years of global leadership in psychosocial oncology". The 40th Annual CAPO Conference was held in Toronto from 23 April 2025 to 25 April 2025. In an era marked by the rapid advancement of biologically focused precision medicine, it is imperative to redirect our attention towards the human experience of illness and the soul of medicine. Biomedicine has conceptualized i

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… To address this gap, the Cancer Patient Empowerment Program (CancerPEP) was developed as a home-based, multimodal intervention incorporating physical activity, dietary guidance, and social support. … Building on the success of the Prostate Cancer-Patient Empowerment Program (PC-PEP), CancerPEP aims to reduce psychological distress across various cancer types and stages. …

Совместные мероприятия по самоуправлению взрослых, живущих с кишечной остомией: обзор.

Справочная информация/задачи: Цель этого аналитического обзора заключалась в определении существующих данных о целях, характеристиках, результатах и посредниках по осуществлению, а также о препятствиях, с которыми сопряжены мероприятия по поддержке со стороны сверстников, направленные на содействие самоуправлению у лиц, живущих с кишечной остомией. Методы: В соответствии с методологией Института Джоанны Бриггс был проведен обзор аналитического исследования, результаты которого были представлены в соответствии с программой PRISMA Presponse for Screpting Reviews (PRISMA-ScR). В декабре был прове

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… OR AB empowerment OR TI “quality of life” OR AB “quality of life” OR TI selfcare OR AB selfcare OR TI self-care OR AB self-care OR TI selfefficacy OR AB selfefficacy OR TI self-efficacy OR AB self-efficacy OR TI selfmanagement OR AB selfmanagement OR TI self-management OR AB self-management OR TI selfmonitor … Empowerment in Cancer Patients: Does Peer Support Make a Difference? A Systematic Review. Psycho-Oncology. 2022;31:683–704. doi: 10.1002/pon.5869. 37. Heydari A., Manzari Z., Pouresmail Z. Nursing Intervention for Quality of Life in Patients with Ostomy: A Systematic Review. Iran. J. Nurs. …

Effects of Social Prescribing for Older Adults: An Evidence and Gap Map.

BACKGROUND: Many factors such as declining physical function, low socioeconomic status and unemployment play a role in the complex health an … icles; codesign of the interventions in 6% of reviews and 15% of primary studies, while participant empowerment was described in 24% of reviews and 19% of primary studies.Most articles focused on a population at risk of or experiencing inequity (91% of reviews and 96% of primary studies). Less than 10% of both reviews and primary studies conducted any equity …

The advantages, disadvantages, threats, and opportunities of electronic patient-reported outcome systems in cancer: A systematic review.

ObjectiveElectronic patient-reported outcome (ePRO) systems hold promise for revolutionizing communication between cancer patients and healthcare providers across various care settings. This systematic review explores the multifaceted landscape of ePROs in cancer care, encompassing their advantages, disadvantages, potential risks, and opportunities for improvement.MethodsIn our systematic review, we conducted a rigorous search in Scopus, Web of Science, and PubMed, employing comprehensive medical subject heading terms for ePRO and cancer, with no date limitations up to 2024. Studies were criti

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… The most prominent advantage identified was the “Improved Quality of Life and Care”. 14 – 16 , 18 , 31 – 71 This finding is consistent with the study by Gressel et al., which emphasized the prevalence of web-based ePRO systems for long-term monitoring and patient empowerment. 101 Similarly, Moradian … Focusing on enhancing symptom management, patient empowerment, and patient-doctor communication improves continuous improvement in ePRO platforms, ensuring they remain responsive to the evolving needs and preferences of cancer patients and healthcare providers. …

Evaluating Integrative Cancer Clinics With the Claim Assessment Profile: An Example With the InspireHealth Clinic.

BackgroundThe evaluation of freestanding integrative cancer clinical programs is challenging and is rarely done. We have developed an approach called the Claim Assessment Profile (CAP) to identify whether evaluation of a practice is justified, feasible, and likely to provide useful information.ObjectivesA CAP was performed in order to (1) clarify the healing claims at InspireHealth, an integrative oncology treatment program, by defining the most important impacts on its clients; (2) gather information about current research capacity at the clinic; and (3) create a program theory and path model

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… Improved quality of life, empowerment and self-efficacy, reduced cost of health care, and survival were commonly discussed as key outcomes. … While program staff highlighted expected outcomes such as better quality of life, higher levels of self-efficacy and empowerment, and survival, they did not mention characteristics like length of care in the program, which may also be a key variable influencing compliance, participation, and outcomes …

Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey.

BackgroundDespite reported benefits, many women do not attend breast cancer support groups. Abundant online resources for support exist, but information regarding the effectiveness of participation is lacking. We report the results of a Twitter breast cancer support community participant survey.ObjectiveThe aim was to determine the effectiveness of social media as a tool for breast cancer patient education and decreasing anxiety.MethodsThe Breast Cancer Social Media Twitter support community (#BCSM) began in July 2011. Institutional review board approval with a waiver of informed consent was o

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… “Lurking” (observing but not actively participating) on social media forums is a well-described phenomenon, although it has been reported that lurkers obtain the same benefits in terms of empowerment as those who actively participate [ 28 , 29 ]. … Self-reported differences in empowerment between lurkers and posters in online patient support groups. J Med Internet Res. 2008;10(2):e18. doi: 10.2196/jmir.992. http://www.jmir.org/2008/2/e18/ v10i2e18 29. Han JY, Kim J, Yoon HJ, Shim M, McTavish FM, Gustafson DH. …

От генов к окружающей среде: жизненный подход к профилактике педиатрических аутоиммунных заболеваний.

Аутоиммунные заболевания у детей, включая тип 1 Все более серьезной проблемой для здоровья людей во всем мире являются диабет, болезни селиака и детский артрит. Этот всплеск, слишком быстрый для того, чтобы его можно было объяснить только генетическими изменениями, подчеркивает важнейшую роль экологических факторов и подчеркивает настоятельную необходимость принятия активных превентивных мер. Этот обзор представляет собой комплексную, основанную на фактических данных основу для профилактики педиатрических аутоиммунных заболеваний по всему спектру услуг, начиная с первичной и заканчивая третичн

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… Education and empowerment Education and empowerment are cornerstones of tertiary prevention in children with established autoimmune diseases. … Empowerment strategies go beyond education by encouraging active participation in care planning and shared decision-making. It involves fostering the child’s self-advocacy as they grow. …

Caregiver-mediated exercises for improving outcomes after stroke.

BACKGROUND: Stroke is a major cause of long-term disability in adults. Several systematic reviews have shown that a higher intensity of trai … caregivers are more actively involved in the rehabilitation process, which may increase feelings of empowerment with reduced levels of caregiver burden and could facilitate the transition from rehabilitation facility (in hospital, rehabilitation centre, or nursing home) to home setting. As a consequence, length of stay might be reduced and early supported dis …