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Emotional Distress in Portuguese Cancer Patients: The Use of the Emotion Thermometers (ET) Screening Tool.

Cancer patients may experience significant distress. The "Emotion Thermometers" (ETs) are a short visual analogue scale used to screen patients for psychosocial risk. This study aimed to assess emotional distress in a large sample of cancer patients attending psychological services at an non-governmental organization (NGO), and to explore factors that may contribute to it. The ETs were answered by 899 cancer patients. They were, on average, 59.9 years old, the majority were female, had breast cancer, were under treatment or were disease-free survivors, and reported high levels of emotional dis

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… The active engagement in decision-making and the ability to take concrete actions to address the illness may contribute to a sense of empowerment and optimism, thus promoting emotional well-being during cancer survivorship. …

Psychosocial distress in young adults surviving hematological malignancies: a pilot study.

PurposeSurvivors of cancer during young adulthood face multiple psychosocial challenges following treatment. This study explores psychosocial distress and unmet needs among young adult survivors treated of hematological malignancies.MethodsA total of 85 young adults aged between 18 and 39 years at time of diagnosis, were invited to join the survey after the completion of treatment with curative intent. Sociodemographic data and the need for advice were gathered with a self-report questionnaire. A set of standardized questionnaires for quality of life (EORTC QLQ-C30), psychosocial stressors (PH

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… Upon further analysis of AYA cancer survivor interview data, it can be seen that the Internet, while providing a positive influence in terms of empowerment, also provides negative influence in terms of fear and uncertainty about health and the future (Cheung et al. 2021 ). …

High patient satisfaction and increased physical activity following a remote multidisciplinary team multiple myeloma clinic.

PURPOSE: Patients with multiple myeloma suffer from disease-related complications such as bone destruction, toxicities from repeated therapies and age-related co-morbidities. With improved treatment options, patients are living longer and have specific survivorship needs such as low exercise levels that need to be addressed. In this study, we designed, implemented and evaluated a multidisciplinary team (MDT) myeloma clinic that provided participants with tailored exercise and lifestyle advice. METHODS: The Promoting Individualised Self-Management and Survivorship (PrISMS) clinic was set up in

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… To conclude, PrISMS clinic offers a holistic MDT approach to myeloma outpatient care that is safe and feasible, featuring individualised management and patient empowerment. It provides bespoke guidance and promotes independent physical activity that patients find beneficial. …

A prospective, randomized trial of patient-reported outcome measures to drive management decisions in hematology and oncology.

BACKGROUND: Clinicians have limited time during patient encounters which can result in patients' concerns not being addressed. This study's objective was to test whether an electronic patient-reported outcome quality of life tool (PROQOL) in which patients identify their primary concern during clinic visits improves cancer patient quality of life (QOL). PATIENTS AND METHODS: This single center non-blinded prospective clinical trial randomized patients (2:1) to PROQOL versus usual care (UC). Two patient cohorts were enrolled: those with hematologic malignancies (multiple myeloma [MM] or light

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… Given no difference in QOL, alternative unmeasured outcomes may have demonstrated other value such as knowledge increase, patient satisfaction, patient empowerment, and improvement in patient physician communication. …

Symptom burden and health-related quality of life six months after hyperbaric oxygen therapy in cancer survivors with pelvic radiation injuries

Abstract Purpose Late radiation tissue injuries (LRTIs) after treatment for pelvic cancer may impair health related quality of life (HRQoL). Hyperbaric oxygen therapy is an adjuvant therapy for LRTIs, but limited studied. The aim of this study was to explore the development and association between symptoms of LRTI and HRQoL following hyperbaric oxygen treatment. Methods A pretest–posttest design was used to evaluate the changes in pelvic LRTIs and HRQoL from baseline (T1), immediately after treatment (T2) and at six-month follow-up (T3). EPIC and EORTC-QLQ-C30 were used to assess LRTIs and HRQ

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… Cancer survivors often feel left alone with their late effects and peer support has shown to be important for promoting positive changes, improving psychosocial function, empowerment and HRQoL [ 41 – 43 ]. …

'It was like taking an inner bath': A qualitative evaluation of a collaborative advance care planning-approach.

BackgroundImpaired readiness may hinder purposeful advance care planning in cancer patients. To reduce barriers to participation in end-of-life decision-making, a collaborative intervention was developed combining a psycho-oncological approach of dignity-based and cognitive-behavioural interventions, followed by a standardised advance care planning-process.AimTo evaluate the novel collaborative advance care planning-approach by synthetising cancer patient and carer perspectives on communicational and relational effects.DesignAs a sub-project of a mixed-methods evaluation study, we conducted an

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… Additionally, carers benefit not only from information gain but also from the feeling of participation and empowerment to make end-of-life decisions in the patient’s best interest. …

Patient perspectives on BCMA-targeted therapies for multiple myeloma: a survey conducted in a patient advocacy group.

BackgroundAdvances in multiple myeloma (MM) treatment have shifted the therapeutic landscape. Understanding patients' perspectives can assist physicians in helping patients make informed decisions. This study aimed to understand the patient decision-making process and gain insights into patient perspectives on B-cell maturation antigen (BCMA)-targeted therapies for MM.MethodsAn 18-question survey was completed by patients with MM enrolled in HealthTree® Cure Hub, an online portal helping patients with plasma cell dyscrasias navigate their disease.ResultsFrom October 28, 2022, to January 12, 20

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… Furthermore, this study had a relatively large sample size for this rare-disease population, and a targeted recruitment of minority populations on a non-profit patient education, empowerment, and engagement platform likely played a key role in reaching a diverse group of patients to ensure that their …

Health-related quality of life in patients with hematologic malignancies treated with chimeric antigen receptor T-cell therapy: review and current progress.

Chimeric antigen receptor (CAR) T-cell therapy has transformed the care of patients with relapsed/refractory B-cell-derived hematologic malignancies. To date, six CAR T-cell therapies, targeting either CD19 or B-cell maturation antigen, have received regulatory approval. Along with the promising survival benefit, CAR T-cell therapy is associated with potentially life-threatening adverse events, including cytokine release syndrome and immune effector cell-associated neurotoxicity syndrome. While clinical trials evaluating CAR T-cell therapy consistently report the incidence of these adverse eve

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… involved in their management plan, identify and control their symptoms via personalized interventions/actions, and utilize medical resources less frequently (i.e., shorter duration of hospitalization, fewer emergency room visits). 6 Moreover, other patient-reported outcomes (PRO), which promote patients’ empowerment …

Mechanism of action of Asparagus officinalis extract against multiple myeloma using bioinformatics tools, in silico and in vitro study.

Introduction: Asparagus (Asparagus officinalis) is a perennial flowering plant species. Its main components have tumor-prevention, immune system-enhancement, and anti-inflammation effects. Network pharmacology is a powerful approach that is being applied increasingly to research of herbal medicines. Herb identification, study of compound targets, network construction, and network analysis have been used to elucidate how herbal medicines work. However, the interaction of bioactive substances from asparagus with the targets involved in multiple myeloma (MM) has not been elucidated. We explored t

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… Multiple myeloma incidence and mortality around the globe; interrelations between Health access and quality, economic resources, and patient empowerment . Oncologist 25 ( 9 ), e1406 – e1413 . 10.1634/theoncologist.2020-0141 32335971 PMC7485361 Mimura N. Hideshima T. Shimomura T. Suzuki R. …

The Effect of Family-Centered Supportive Program on Chemotherapy-Induced Symptoms in Patients with Acute Lymphoblastic Leukemia (ALL).

Background: Acute lymphoblastic leukemia is a disease of the hematopoietic system and chemotherapy is recommended as the primary treatment. As many chemotherapeutic agents have severe adverse effects, patients require to be supported by their family to deal with chemotherapy-related symptoms. This study attempted to investigate the effect of family-centered supportive programs on chemotherapy symptom control in patients with acute lymphoblastic leukemia. Materials and Methods: Sixty-six patients with acute lymphoblastic leukemia undergoing chemotherapy along with their caregivers participated

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… Patient- and Family-Centered Care as an approach to reducing disparities in asthma outcomes in urban African American children: A review of the literature J Natl Med Assoc 2015 107 2 4 17 10.1016/S0027-9684(15)30019-5 PMC4901523 27269485 22 Sanaie N Nejati S Zolfaghari M The effect of family-centered empowerment …

Adapting Yoga Therapy to Meet the Needs of Inpatients Undergoing Hematopoietic Stem Cell Transplantation: Insights From an International, Multisite, Qualitative Study.

PurposeYoga therapy (YT) is a growing mind-body approach in oncology. However, its integration into hematopoietic stem cell transplantation (HSCT) remains limited, particularly in non-Western and resource-constrained settings. This formative qualitative study aimed to explore the lived experiences of HSCT patients in the United States, India, and Tanzania to inform the development of a culturally adapted YT protocol.MethodsFifteen post-HSCT adult participants were recruited from three international cancer centers using purposive sampling. Semistructured interviews were conducted in participant

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… afternoon, three times per week to daily | Adaptive coping | Align sessions with patient-preferred timing and frequency Interruptions during meditation | Hospital routines disrupt practice | Coordinate with nursing staff to reduce interruptions Introduce yoga 2-3 weeks pretransplant | Preparation, empowerment …

Determining the Relationship Between Perceptions of Nursing Care Quality and Satisfaction Status in Multicultural Patients with Hematological Malignancies.

AIM: This study aims to investigate the correlation between multicultural patients with hematologic malignancies' perceptions of nursing care and their level of satisfaction, with the objective of providing recommendations for enhancing the quality of nursing care based on the findings. METHODS: This descriptive and cross-sectional study was conducted with 140 patients aged 18 years and over who were hospitalized in the hematology and bone marrow transplantation unit between January and October 2024, who agreed to participate in the study and were able to communicate. Data were collected usin

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… Effects of unit empowerment and perceived supportiveness on nurses’ workplace mental health: A test of basic psychological needs theory . Journal of Nursing Management , 24 ( 5 ), 610 – 622 . (doi: 10.1016/j.ijnurstu.2014.04.010 ) Laschinger H. K. S. Wong C. A. Grau A. L. ( 2016b ). …

Influence of PSMB6 and PSMB9 Genetic Polymorphisms on Bortezomib-Based Therapy Response in Newly Diagnosed Multiple Myeloma.

BACKGROUND: Bortezomib (BTZ)-based regimens play a crucial role in the treatment of multiple myeloma (MM), significantly improving patient outcomes. BTZ, a proteasome inhibitor, interferes with cellular processes essential for cancer cell growth and survival, resulting in high response rates. Its use in initial and recurrent treatment strategies has been associated with extended disease control and improved long-term outcomes, contributing to overall survival. This study aimed to delineate the clinical characteristics of newly diagnosed MM patients and investigate the influence of single nucle

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… Multiple myeloma incidence and mortality around the globe; interrelations between health access and quality, economic resources, and patient empowerment. Ludwig H, Novis Durie S, Meckl A, Hinke A, Durie B. Oncologist. 2020;25:0–13. doi: 10.1634/theoncologist.2020-0141. 6. …

Феноменологическое понимание старения с множественным склерозом.

СПРАВОЧНАЯ ИНФОРМАЦИЯ И ЗАДАЧИ: По мере увеличения продолжительности жизни сообщества, занимающегося множественным склерозом (МС), необходимы новые новшества и понимание того, что такое возраст «здорового». Опираясь на ряд направлений работы по изучению значения и опыта старения с нетрудоспособным состоянием и показав, как и почему люди, стареющие с MS, по-разному ощущают это явление, эта газета развивает литературу по вопросам старения и инвалидности путем (пере) концептуализации того, что «благосостояние» означает для людей, стареющих с MS, и как благополучие может быть повышено или поставле

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… A further concept that can enhance the empowerment of working with persons aging with MS in regard to wellbeing is the Heideggerian concept of Care. …

Opportunities for Participation in Randomized Controlled Trials for Patients with Multiple Myeloma: Trial Access Depends on Restrictive Eligibility Criteria and Patient Expectations.

Randomized controlled trials (RCT) are the driver of therapeutic innovations. However, it has been frequently shown that less than 5% of adult cancer patients enroll in clinical trials, although 70% of patients are considered as being willing to participate. Barriers to trial participation have been extensively studied. Although there is evidence that trial participation correlates with improved survival and reduced mortality, the rate of participation has not changed substantially. We provide retrospective data from a single-center analysis of 411 patients with multiple myeloma (MM) who were

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… Multiple Myeloma Incidence and Mortality Around the Globe; Interrelations Between Health Access and Quality, Economic Resources, and Patient Empowerment. Oncologist. 2020;9:e1406–e1413. doi: 10.1634/theoncologist.2020-0141. 2. …

Decision making in surgical treatment of chronic low back pain: the performance of prognostic tests to select patients for lumbar spinal fusion.

Chronic low back pain (CLBP) is one of the main causes of disability in the western world with a huge economic burden to society. As yet, no … invasive treatment. The current approach of CLBP, in which emphasis is laid on self-management and empowerment of patients to take an active course of treatment in order to prevent long-term disability and chronicity, is recommended.

A Glimpse into the Epidemiology of Geriatric Cancers in India: Report from the Indian Population Based Cancer Registries.

IntroductionIndian population is aging and the cancer rates are rising. Older adults (OAs)(≥60 years) with cancer require specialized care. However, data on geriatric cancer epidemiology is scarce.MethodsThe study compiled the geriatric cancer data from the published reports(2012-2014) of Indian population-based cancer registries(PBCRs).ResultsOf the 1,61,363 cancers registered in the Indian PBCRs, 72,446(44.9%) occur in OAs, with 21,805(30.1%), 18,349(25.3%), 14,645(20.2%), and 17,647(24.4%) occurring in 60-64, 65-69, 70-74, and ≥75year age groups. The truncated incidence rates for OAs are 55

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… Ministry of social justice and empowerment government of india. National policy for older persons: Ageing with security and dignity. 1991:1–32. 12. Giri m. National policy for senior citizens national policy on senior citizens 2011. 2011;(march):1–10 . 13. …

Experiences and preferences for psychosocial support: a qualitative study exploring the views of patients with chronic haematological cancers.

OBJECTIVES: Patients with chronic haematological cancers are often treated on a relapsing-remitting pathway, which may extend for many years. Such diagnoses are associated with uncertainties that often cause anxiety and distress, meaning patients (and families) are susceptible to potentially prolonged emotional difficulties, across the cancer journey. Experiences and preferences regarding psychosocial needs and support over time are relatively unexplored, which this study aimed to address. SETTING AND DESIGN: Set within the UK's Haematological Malignancy Research Network (an ongoing populatio

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… research has discussed the impact of cancer on patients’ families and carers, including worsening psychological well-being, physical health and financial security, 50–53 which may vary throughout illness. 54 Suggestions to improve family outcomes include formally measuring caregiver needs, education and empowerment …

Adaptation and Evaluation of a Symptom-Monitoring Digital Health Intervention for Patients With Relapsed and Refractory Multiple Myeloma: Pilot Mixed-Methods Implementation Study.

BACKGROUND: Relapsed and refractory multiple myeloma (RRMM) is a bone marrow cancer that requires systemic treatment, which often results in severe symptom burden. Recent studies have found that electronic patient-reported outcome (ePRO) interventions implemented in the clinic setting have had positive outcomes for other oncology populations. Evidence of the efficacy of a similar approach is lacking for patients with RRMM. OBJECTIVE: Recent recommendations for digital health interventions call for the publication of descriptions of iterative development processes in order to improve reproduci

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… symptom management; (2) more control over their symptoms through increased symptom awareness, recognition of symptom patterns, and easily accessible self-management guidance; (3) an improved relationship with the clinical team due to consistent communication through a trustworthy platform; and (4) empowerment …

Новая программа сознательности и психообразования для лечения усталости головного мозга, оценённая после повреждения мозга и множественных склерозов.

Фон: Усталость является общей долгосрочной проблемой после заболеваний, затрагивающих мозг, оказывающих существенное воздействие на трудоспособность, социальную деятельность и качество жизни. Лечение запрашивалось в системе здравоохранения и пациентами. Цель этого случайного экспериментального исследования состоит в том, чтобы оценить новую программу " Усталость мозга " и " Уменность " (BF-M) для участников, страдающих длительной усталостью после приобретенного повреждения мозга или множественным склерозом. БФ-М состоит из шести совещаний групп раз в две недели. Ведется мед

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… As suggested in the example quote for this sub-theme ( Table 1 ), the feeling of not being alone with one’s problem can have a therapeutic effect and can imply empowerment as one continues to deal with BF. Theme 2. …