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Factors that influence the provision of home-based rehabilitation services for people needing rehabilitation: a qualitative evidence synthesis.

BackgroundTo increase people's access to rehabilitation services, particularly in the context of the COVID-19 pandemic, we need to explore h … n of a lack of equipment, infrastructure and maintenance and patients refer to usability issues and frustration with digital technology. Providers have different opinions about whether telerehabilitation is cost-efficient for them. But many patients see telerehabilitation as affordable and cost-saving if the equipment and infrastructure have been provided. Pa …

The 2007 annual report of the Regional Infant and Child Mortality Review Committee.

The mission of the Regional Infant and Child Mortality Review Committee (RICMRC) is to review infant and child deaths so that information ca … community specifically, to address issues of parental anger management, particularly when caregiver frustration is directed at children.

CoGames: Разработка адаптивного инструмента мониторинга на основе смартфонов и gamified для когнитивной функции в мультипликационном склерозе.

AIM: В рамках разработки приложения на основе смартфонов для мониторинга активности и прогрессирования заболеваний MS (DreaMS, DREAMS). NCT05009160), мы разработали six gamificed tests с множественным уровнем сложности в качестве инструмента контроля за когницией. В этом исследовании была проведена количественная оценка относительной сложности между уровнями и были проанализированы их надежность, способность изображать практические последствия и приемлемость для пользователей. МЕТОДЫ: Здоровые добровольцы играли в каждую игру, освещая five Когнитивные области, дважды в день для 11 Непрерывные

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… This might have led to more frustration in higher levels of those games. In support of this interpretation, the “frustration” ratings showed similar changes at the same time of questionnaire completion as the enjoyment ratings (Table  18 : Questionnaire ratings). … This adaptive design is intended to promote the state of high concentration, keeping users engaged and motivated by avoiding frustration (task too difficult) and boredom (task too easy). …

Сравнение эффекта диалектической терапии поведения и арипипразола на эмоциональную разводню в пациентах с гиперсексуальностью.

Фон. Сексуальные желания являются одной из естественных потребностей каждого человека, и если они не используются в правильном направлении, они могут привести к проблемам и различным сексуальным расстройствам, включая гиперсексуальность. Целью этого исследования было сравнить эффекты диалектической поведенческой терапии (ДПТ) и арипипразола на эмоциональную разводку у пациентов с гиперсексуальностью. Материалы и методы. Это исследование было квазиэкспериментальным, с двумя экспериментальными группами, контрольной группой, предварительным тестом, посттестом и фазой последующего наблюдения. Для

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… Between the two groups regarding loss, depression and frustration, and the third angle, there was no significant difference ( P < 0.05). … As shown in Table 3 , emotional divorce and the components of lack of emotional interaction, loss, depression and frustration, the third angle, and sexual problems significantly altered over time ( P < 0.05). …

Post hoc analysis examining symptom severity reduction and symptom absence during food challenges in individuals who underwent oral immunotherapy for peanut allergy: results from three trials.

PURPOSE: Peanut allergy and its current management, involving peanut avoidance and use of rescue medication during instances of accidental exposure, are burdensome to patients and their caregivers and can be a source of stress, uncertainty, and restriction. Physicians may also be frustrated with a lack of effective and safe treatments other than avoidance in the current management of peanut allergy. Efficacy, determined using double-blind, placebo-controlled food challenges (DBPCFCs), of oral immunotherapy with peanut (Arachis hypogaea) allergen powder-dnfp (PTAH; Palforzia®) was demonstrated

"Is this the GVHD?" A qualitative exploration of quality of life issues in individuals with graft-versus-host disease following allogeneic stem cell transplant and their experiences of a specialist multidisciplinary bone marrow transplant service.

BackgroundGraft-versus-host disease (GVHD) is a significant cause of morbidity and mortality following allogeneic stem cell transplantation. These patients face unique challenges due to the complexity of GVHD which can affect multiple organ systems, and the toxicity of treatments. Despite the known impact on quality of life (QOL), qualitative data within the bone marrow transplantation (BMT) literature is rare, and there has been no qualitative work exploring patient experience of specialist healthcare provision for GVHD in the United Kingdom.MethodsWe conducted a primary explorative qualitati

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… This sense of ambiguity regarding symptoms also led to frustration over exactly what could be treated: ‘ it was just a case of I was a bit frustrated even more, you know, what the hell's going on, more than worrying about things. … Frustration was reported because GVHD was a slow or tumultuous recovery process and was chronic: “I suppose the recovery's been very slow, so there's been a large frustration during the recovery” (P6). …

Множественный склероз оказывает значительное воздействие на членов семьи/партнеров: свидетельства с использованием показателя результатов, сообщенных семьей (FROM-16).

ЦЕЛЬ: Множественный склероз (МС) может оказывать серьезное воздействие на физическое, социальное и психологическое благополучие людей с множественным склерозом (СМС) и членов их семей/партнеров. AIM: Измерять влияние MS человека на качество жизни членов его семьи/партнера и сообщников воздействия среди членов семьи с использованием проверенного типового инструмента оценки качества жизни для конкретной семьи (FROM-16). МЕТОДЫ: Было проведено онлайновое межсекторальное исследование с целью набора членов семей/партнеров ПТМС через группы поддержки пациентов Соединенного Королевства.Результаты: В

The use of Open Dialogue in Trauma Informed Care services for mental health consumers and their family networks: A scoping review.

UNLABELLED: WHAT IS KNOWN ON THE SUBJECT?: Open Dialogue was developed in Finland in the 1980s by clinical psychologist, Jaakko Seikkula. It … ring consumer narratives while building a network of support. However, consumers identified similar frustrations with service delivery as with the family therapy literature. For example, it was difficult to bring family members together and difficult to discuss previous traumatic events in front of family. People experiencing training in Open Dialogue reporte …

[Treatment and rehabilitation programs for young alcoholics: acquiring the ability through group therapies and cognitive-behavioral therapies to communicate with others to lead a new life].

UNLABELLED: The number of young alcoholics increased rapidly around Tokyo during these several years has resulted in the emergence of AA (Alcoholics Anonymous) groups consisting mainly of 20- 30-year-olds. It is well known, however, that young alcoholics are difficult to be treated in traditional alcoholic wards where most of the patients are 50- 60-years old and are treated through group therapy, such as AA or Dansyu-kai (Japanese style AA). With their immature brains and limited experience, young people are extremely vulnerable to the effects of alcohol. Young alcoholics have missed the oppo

Facing financial barriers to healthcare: patient-informed adaptation of a conceptual framework for adults with a history of cancer.

BackgroundCancer-related financial hardship is associated with negative clinical outcomes, which may be partially explained by cost-related delayed or forgone care in response to financial barriers. We sought to understand patient experiences facing financial barriers to medical care following a cancer diagnosis.MethodsWe conducted virtual, semi-structured interviews in Fall 2022 with 20 adults with a history of cancer who had experienced cancer-related financial hardship in the prior year. We used template analysis within a pragmatic paradigm, combining constructivist and critical realist the

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… This frustration toward the systems and policies influencing cancer care costs had the potential to affect individual resiliency and outlook. … For some interviewees, systemic frustration led to individual despair; in contrast, other interviewees reflected substantial frustration at the systemic level but maintained an individual determination fueled by motivation to survive and be around for family members. …

Patient experiences of fertility clinic closure during the COVID-19 pandemic: appraisals, coping and emotions.

STUDY QUESTION: What are appraisals, coping strategies and emotional reactions of patients to coronavirus disease 2019 (COVID-19) fertility … negative than positive emotions (P ≤ 0.001) and, almost all participants reported stress, worry and frustration at the situation, while some expressed anger and resentment at the unfairness of the situation. Overall, 11.8% were not at all able to cope, with reports of intense feelings of hopelessness and deteriorating well-being and mental health. LIMITATION …

Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.

UNLABELLED: Despite growing appreciation of the need for research on autism in adulthood, few survey instruments have been validated for use … said that, if taking a survey that used the original instruments, they would experience confusion, frustration, anxiety, or anger. They repeatedly stated that, faced with such measures, they would offer unreliable answers, leave items blank, or just stop participating in the study. Common concerns included the use of difficult vocabulary, confusing terms, co …

Teasing out specific language impairment from an autism spectrum disorder.

Marcus is a handsome, sweet, 7½-year-old boy with a significant history of delayed development, specifically in speech and language skills, as well as difficulties with social interactions that have led other specialists to be concerned about a diagnosis of an autism spectrum disorder.He has been seen in our primary care practice since birth. He was born full-term after vaginal delivery weighing 6 pounds, 6 ounces. There were no pregnancy or delivery complications noted. Genetic testing revealed normal chromosomes, fragile X, and microarray testing. Marcus was a picky eater and good sleeper an

'I think it affects every aspect of my life, really': Cancer survivors' experience of living with chronic pain after curative cancer treatment in England, UK.

AimTo explore cancer survivors' experiences of living with chronic pain after curative cancer treatment in England, UK.MethodsA qualitative study using telephone interviews with adult cancer survivors experiencing chronic pain after curative cancer treatment. Interview data was analysed using a reflexive thematic approach [1-3].FindingsNineteen participants: 14 female, 5 male, mean age 62.4 years, 1.5-48 years since cancer diagnosis, eight tumour groups represented. Six participants (31.6%) developed chronic pain more than ten years after completing cancer treatment (range 0-25 years). Five th

Qualitative Exploration of a Tele-exercise Program to Inform the Design of Adaptive Intervention Strategies for Adults With Multiple Sclerosis.

OBJECTIVE: (1) To examine the experiences and perceptions of people with multiple sclerosis (MS) who previously completed a 3-month tele-exercise program; (2) to identify modifiable factors regarding the program components and implementation procedures that could be used to develop an adaptive tele-exercise intervention. DESIGN: A qualitative study using a semistructured interview guide. SETTING: An extension of a comparative effectiveness trial delivered for 761 people with MS between 2016 and 2021. Interviews were conducted over Zoom or phone. PARTICIPANTS: Twenty-two adults with MS who c

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… Overly challenging exercises created feelings of frustration, anxiety, and loss of confidence during performance In contrast, when the exercises were perceived as too difficult, participants reported feelings of frustration, anxiety, and decline in confidence. … Participants reported that 1-way IVR communication often led to frustration, as participants did not have options to call back or provide detailed responses beyond simple yes, no, or number. The value of human support was discussed by participant 11. …

Понимание иранскими пациентами, страдающими множественным склерозом, источников поддержки, необходимых для корректировки: качественный анализ содержания.

ЦЕЛЬ: Большинство людей с множественным склерозом (МС) всегда стремятся получить многочисленные источники поддержки, чтобы приспособиться к этому состоянию здоровья; однако имеется ограниченная информация об их восприятии и опыте использования таких источников. Цель этого исследования заключалась в изучении представлений пациентов с НР об источниках поддержки, необходимой для их адаптации. МАТЕРИАЛЫ И МЕТОДЫ: Это качественное исследование было проведено в 2020-2022 годах на основе традиционного подхода к анализу содержания. Тринадцать пациентов с MS, одна пациентка, одна медсестра и один врач

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… In many cases, the sufferers also requested the physicians to give them enough time and attention so that they could easily raise their questions and talk about their concerns with no fear of reactions, making them feel frustrated. … In this line, Tabuteau-Harrison et al .[ 24 ] had indicated that the development of disabilities had a profound impact on marital life, in a way that frustration and despair on both sides over time could lead to separation. …

Perceptions and experiences of labour companionship: a qualitative evidence synthesis.

BACKGROUND: Labour companionship refers to support provided to a woman during labour and childbirth, and may be provided by a partner, famil … uld lead to conflict. Lay companions were often not integrated into antenatal care, which may cause frustration (low confidence).We compared our findings from this synthesis to the companionship programmes/approaches assessed in Bohren's review of effectiveness. We found that most of these programmes did not appear to address these key features of labour comp …

Carcinomas arising in multilocular thymic cysts of the neck: a clinicopathological study of three cases.

BACKGROUND: The high prevalence rate of malaria due to the proliferation of drug-resistant strains of Plasmodium falciparum could mitigate the realization of sustainable development goals in Nigeria, necessitating research on the discovery of novel chemotherapies against resistant strains of the parasite. However, Solanum anomalum with ethnopharmacological claims could foster this breakthrough, prompting an investigation on the antiplasmodial and hepatoprotective activities of the plant's fruit, semi-purification and characterization of its constituents, as well as in silico studies on its com

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… Some papers also pointed out drawbacks, one of them being frustration among patients when they noticed that PRO-results were not being reviewed by their physicians (Rotenstein et al. 2017 ). … Barriers in a real-life setting As opposed to that, doctors and nurses at our facility expressed remarkable frustration. In their opinion, ePRO monitoring caused an increase of workload without providing any benefits. …

The impact of patients' chronic disease on family quality of life: an experience from 26 specialties.

BackgroundPrevious studies have assessed family quality of life in individual disease areas and specialties. The aim of this study was to investigate the impact of disease on family members of patients over a wide range of specialties and identify key impact areas. This information is essential in order to reveal the extent of this impact and to allow strategies to be developed to support the family members of patients with chronic disease.MethodsSemi-structured interviews were carried out with 133 family members of mostly chronically ill patients from 26 medical specialties. Family members we

Chronic Non-cancer Pain Management and Addiction: A Review.

The use of opioids in chronic non-cancer pain (CNCP) has been a fast-rising treatment phenomenon in the last two decades. Though opioids are advocated in various chronic pain management guidelines, their use in chronic non-cancer pain still remains controversial as evidence of this approach is still weak. This paper highlights potential adverse effects associated with opioid use in pain management, including an increase in tolerance, dependence, and addiction outcomes. Nonetheless, opioids have an important place in contemporary CNCP management for selected patients. However, pain management m

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… These continuous and endless struggles contribute to frustrations and depression among these patients. Frustration among these patients is linked to the complexity and unpredictability of pain. … Frustration: a challenge in chronic conditions. Alavi NM. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4228539/#__ffn_sectitle . Nurs Midwifery Stud. 2013;2:1–2. doi: 10.5812/nms.14166. …