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Caregiver strain among patients of palliative care in Sri Lanka: validation of modified caregiver strain index - Sinhala version.

BackgroundCare givers of Palliated patients are at risk of adverse physical, psychosocial and emotional sequelae in varied nature. Efficient and valid assessment tools facilitate early detection to take corrective measures. The Modified Caregiver Strain Index (MCSI), composed of domains associated with caregiver strain is a simple and brief tool that can be used in both clinical and field settings. This study aimed to adapt and validate this in order to cater effective palliative care services in Sri Lanka.MethodsAfter cross-cultural adaptation, 200 primary caregivers in 3 teaching hospitals w

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… The main religions practised in Sri Lanka; Buddhism, Christianity, Islam and Hinduism highlight the importance of love and care, particularly for those who are sick. …

Emergency department-initiated palliative care for advanced cancer patients: protocol for a pilot randomized controlled trial.

BackgroundFor patients with advanced cancer, visits to the emergency department (ED) are common. Such patients present to the ED with a specific profile of palliative care needs, including burdensome symptoms such as pain, dyspnea, or vomiting that cannot be controlled in other settings and a lack of well-defined goals of care. The goals of this study are: i) to test the feasibility of recruiting, enrolling, and randomizing patients with serious illness in the ED; and ii) to evaluate the impact of ED-initiated palliative care on health care utilization, quality of life, and survival.Methods/de

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… voluntary/private practice | Medical Record Primary MD specialty | Heme/Onc, general medicine, other | Medical Record Age | Years | Medical Record Gender | Female, Male | Medical Record Race/Ethnicity | Asian, Black, Hispanic Black, Hispanic White, Native American, White, Other | Patient Interview Religion …

Psychological Impact in Individuals with Monoclonal Gammopathy of Undetermined Significance and Smoldering Multiple Myeloma.

In our study of 246 newly diagnosed individuals with MGUS or SMM (115 MGUS, 131 SMM), we found that 19% reported anxiety, with no significant difference between the MGUS and SMM groups (22% vs. 17%). Those with a history of psychiatric disorders or belonging to certain racial groups were more likely to experience anxiety. Initial coping responses included religious coping, denial, frustration, irritability, and seeking social support. Given anxiety's detrimental effects, our findings emphasize the importance of incorporating psychosocial assessments to optimize care for MGUS and SMM patients.

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… Patients with MGUS or SMM use various coping strategies, including turning to religion for comfort and meaning, denial to initially protect themselves from distress, and expressing frustration and irritability as natural responses to stress. …

Факторы, связанные с содержанием витамина D у монгольских пациентов с множественным склерозом.

ЦЕЛЬ: Множественный склероз (МС) вызывается генетическими и экологическими факторами. Витамин D был определен в качестве фактора экологического риска, причем в широтах, расположенных дальше от экватора, отмечается более высокий уровень его распространенности. В Монголии при температуре 45°N воздействие солнечного света ограничено, что повышает риск для населения в связи с дефицитом витамина D. ЦЕЛИ: Сопоставление уровней содержания витамина D среди лиц с НР (ПМК) и лиц, не имеющих НР, и выявление факторов, связанных с низким содержанием витамина D. Мы изучили связи с уровнями витамина D, испол

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… All participants completed a questionnaire covering information on their demographics and lifestyle (education, marital status, employment, living situation, smoking, alcohol, religion, and ethnicity). …

Факторы риска для перинатальных психических заболеваний при многочисленных склерозах.

СПРАВОЧНАЯ ИНФОРМАЦИЯ: Матери с РС сталкиваются с возросшей распространенностью и распространенностью перинатальных психических заболеваний по сравнению с матерями, не имеющими НР. ЦЕЛЬ: Определение факторов, связанных с риском перинатальных психических заболеваний у матерей с НР. МЕТОДЫ: В период с 2002 по 2019 год мы выявили матерей с НР с живыми родами с использованием увязанных с демографическими данными административных данных из Онтарио, Канада. Используя подтвержденные определения, мы оценивали распространенность психических заболеваний (депрессия, беспокойство, биполярное расстройство)

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… Racialized and newcomer populations relates to proportions of individuals in the area who are recent immigrants or belong to racialized groups based on race, ethnicity, language, religion, or culture. …

Стратегии охраны мозга у лиц среднего возраста с незначительным нейрокогнитивным расстройством: аналитическая оценка.

Здравоохранение мозга означает оптимальное функционирование и целостность мозга, определяемые сложными когнитивными, психологическими и социальными детерминантами. Лица с легким нейрокогнитивным расстройством (mNCD) подвергаются повышенному риску развития слабоумия. Первостепенное состояние мозга имеет важное значение на протяжении всей жизни, особенно в период среднего возраста, когда риск для здоровья часто возникает наряду с тяжелыми жизненными обязанностями. В международных рамочных программах особое внимание уделяется изменению факторов риска на протяжении всей жизни в целях снижения риск

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… SDoH can be characterised using the PROGRESS-Plus framework to synthesise equity-relevant characteristics (Place of residence, Race/ethnicity/culture/language, Occupation, Gender/sex, Religion, Education, Socioeconomic status, Social capital, and “Plus” factors such as age and disability) [ 22 ]. … Author(s); Country | Place of residence | Race/ ethnicity/ culture/ language | Occupation | Gender/ sex | Religion | Education | Socio-economic status (SES) | Social capital (social relations) | PLUS Factors Chen et al., China | Participants recruited in China; Majority of participants lived in urban …

Acceptance in Patients With Cancer: A Scoping Review.

BackgroundCancer is generally perceived as a major stressor. Occasionally, patients are able to accept their diagnosis and prognosis, and it is not uncommon for patients who initially experience great distress to eventually learn to accept their disease. A deeper understanding of acceptance can enable clinicians to better support patients in achieving a more peaceful state of mind. The purpose of this literature review was to provide a comprehensive overview of existing research on acceptance in patients with cancer.Recent findingsStudy selection resulted in the inclusion of 54 studies. All st

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… Akin‐Odanye | 2015 | Impact of active coping, religion and acceptance on quality of life of patients with breast cancer in the department of radiotherapy, UCH, Ibadan | Nigeria | The study seeks to assess the impact of active coping, religion and acceptance on the QoL of patients with breast cancer. …

Living with pain-a systematic review on patients' subjective experiences.

BACKGROUND: Understanding the subjective experiences of patients living with chronic, acute, and cancer pain can significantly enhance the selection of treatment approaches, care, and support, ultimately improving their quality of life. This qualitative systematic review aimed to analyze if the patients' subjective experiences of living with pain differ between acute, chronic, and cancer pain states. METHODS: After registration in PROSPERO (CRD42023491745), an electronic search was conducted in the databases Medline (Ovid), Embase (embase.com), Cochrane (Wiley), Web of Science (Clarivate Anal

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… Marita status ( n ) = Married (12) Education level ( n ) = Illiterate (2), Primary school (3), High School (3), University (8) Religion ( n ) = Shia Muslim (11), Sunni Muslim (6) Clinical diagnosis ( n ) = Colon cancer (3), Vulvar cancer (1), Breast cancer (5), Gastric cancer (1), Lymphoma (3), Lung … Patients stated how their belief in God and the practice of their religion/spirituality were effective coping strategies used to reduce the feelings of distress and anxiety: I have been a believer for a long time. Even now, I call on God hundreds of times a day. …

Quality of Life as a Non-mortality Patient-centred Outcome in the Critically Ill: A Retrospective Analysis.

ObjectivesMortality is a common gauged endpoint in critically ill patients. Reduced quality of life is an aligned repercussion of protracted critical illness. Baseline status, severity of illness and its trajectory influence the outcomes. Patient-oriented outcomes are those that matter the most to a patient. However, quite often, family approves of trade-offs with survivorship in the Indian context. We looked at non-mortality outcomes in patients on high-intensity life-sustaining interventions admitted to the intensive care unit (ICU) despite poor prognosis and died on full support or survived

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… The quality of dying may also differ across varying religions and socioeconomic status, as well as healthcare providers and the systems they work in. [ 12 ] Our findings We analysed a spectrum of proximal endpoints, such as the use of life-sustaining therapies, the need for cardiopulmonary resuscitation …

Added value of post-mortem computed tomography (PMCT) to clinical findings for cause of death determination in adult "natural deaths".

PurposeThe aim of this study was to investigate whether post-mortem computed tomography (PMCT) provides additional information regarding the cause of death and underlying diseases in a general practitioners' (GP), out-of-hospital population.Methods and materialsBodies donated to our anatomy department between January 2014 and January 2018, who consecutively underwent a total body PMCT and had given permission for retrieval of their medical records during life, were included. PMCT scans were assessed by a radiologist and compared with the cause of death as stated in the medical records. Discrep

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… The invasive character of autopsy can be deterring to relatives or be in conflict with by their religion. As a result of a combination of all the aspects mentioned, the number of autopsies has been decreasing worldwide over the last decades [ 7 – 9 ]. …

The effects of a financial navigation intervention on financial toxicity among patients with breast cancer in China: A randomized controlled trial.

BACKGROUND: Financial toxicity (FT) is a common issue faced by breast cancer patients worldwide. Although financial navigation (FN) is a promising approach to alleviate FT, its effectiveness in China's context remains underexplored. OBJECTIVES: To evaluate the effects of a FN intervention on FT, cost-related health literacy (CRHL), shared decision-making (SDM) ability, and perceived stress of patients with breast cancer. METHODS: This was a cluster randomized controlled trial. Participants were randomized to the FN group or control group (n = 41 per group). Outcomes including FT (primary out

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… 27(36.0%) 13(33.3%) 14(38.9%) χ [ 2 ] = 0.267 0.875 some are adults but financially dependent 17(22.7%) 9(23.1%) 8(22.2%) all are adults and financially independent 31(41.3%) 17(43.6%) 14(38.9%) Caregivers Relatives 68(82.9%) 34(82.9%) 34(82.9%) 0.000 1.000 Others 14(17.1%) 7(17.1%) 7(17.1%) Having religion … 0.875 some are adults but financially dependent | 17(22.7%) | 9(23.1%) | 8(22.2%) | | all are adults and financially independent | 31(41.3%) | 17(43.6%) | 14(38.9%) | | Caregivers Relatives | 68(82.9%) | 34(82.9%) | 34(82.9%) | 0.000 | 1.000 Others | 14(17.1%) | 7(17.1%) | 7(17.1%) | | Having religion …

Выявление потребностей пациентов с множественной миеломой: исследование на основе вопросника для израильских пациентов.

Ввод: Множественная миелома — неизлечимое хроническое злокачественное заболевание. Сама болезнь и ее лечение ухудшают качество жизни (QoL), однако нет данных о биопсихосоциальных потребностях пациентов в эпоху новых методов лечения. В текущем исследовании мы стремились определить биопсихосоциальные потребности пациентов с множественной миеломой. МЕТОДЫ: Это описательное исследование пациентов с множественной миеломой в Израиле. 2024. Эта информация была основана на вопроснике, в котором рассматривались физические, психологические и социальные потребности пациентов миэломы. Мы проанализировали

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… Characteristics | Frequency (%) Age <50 years | 12 (7.6) 50–59 years | 29 (18.4) 60–69 years | 62 (39.2) 70–79 years | 44 (27.8) ≥80 years | 11 (7.0) Gender (female) | 79 (50) Country of birth Israel | 127 (80.4) Former USSR | 5 (3.2) Europe | 10 (6.3) Other | 11 (7.0) Religion (Jewish) | 148 (93.7) …

The concept of exceptionality: a legal farce?

How do we decide which treatments should be offered by the National Health Service (NHS) when we cannot afford to fund them all? In the absence of a positive appraisal by the National Institute for Health and Clinical Excellence (NICE), which mandates the provision of a treatment by the NHS, Primary Care Trusts (PCTs) are free to decide whether to provide a particular drug to some, or all, of their population. However, as public bodies, it is a well-established principle of Administrative Law that PCTs are not at liberty to fetter the exercise of their own discretion. They must recognise the p

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… received funding for trastuzumab, whereas Ann Rogers was not and had to seek judicial review of her PCT's decision in order to obtain funding for identical treatment. 40 If discriminating on the basis of age, colour, culture, ethnic or national origin, gender, lifestyle, marital or parental status, race, religion … This includes personal views about a patient's age, colour, culture, disability, ethnic or national origin, gender, lifestyle, marital or parental status, race, religion or beliefs, sex, sexual orientation, or social or economic status. …

Indications and contraindications of dental implants in medically compromised patients: update.

OBJECTIVES: People with systemic sclerosis (SSc) are vulnerable in COVID-19 and face challenges related to shifting COVID-19 risk and protective restrictions. We evaluated mental health symptom trajectories in people with SSc through March 2022. METHODS: The longitudinal Scleroderma Patient-centred Intervention Network (SPIN) COVID-19 cohort was launched in April 2020 and included participants from the ongoing SPIN Cohort and external enrolees. Analyses included estimated means with 95% CIs for anxiety and depression symptoms pre-COVID-19 for ongoing SPIN Cohort participants and anxiety, depr

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… Magalhaes P Viola L Simoes R Loneliness in middle and old age: demographics, perceived health, and social satisfaction as predictors Arch Gerontol Geriatr 2014 59 613 623 25109808 10.1016/j.archger.2014.06.010 33 VanderWeele TJ Jackson JW Li S Causal inference and longitudinal data: a case study of religion …

The patient reported transformation of identity and voice in life-limiting illness.

BackgroundIndividuals facing life-limiting illnesses undergo a profound transformation that encompasses significant physiological changes, in the level of medical care received, and a shift in overall goals of care. This transformation is irreversible and involuntary. However, individuals living with mental health conditions and life-limiting illnesses are not able to go through transformation due to diagnostic overshadowing. Previous research has examined the transformations experienced by caregivers in the context of spinal cord injuries, as well as by professional caregivers in palliative c

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… was seen not as a mere tragic ending or pitiful epitaph but rather as a liberating force. 34 Research evidence shows a significant correlation between spirituality, hope, finding meaning, and accepting a life-limiting diagnosis. 35 For instance, a philosophical worldview, particularly one rooted in religion …

Quality of life, psychological distress, and prognostic perceptions in caregivers of patients with multiple myeloma.

Although caregivers of patients with multiple myeloma (MM) play a critical role in supporting their loved ones throughout the illness course, studies examining caregiver quality of life (QOL), psychological distress, and prognostic awareness are lacking. We conducted a cross-sectional, multisite study of patients undergoing treatment with MM and their caregivers. Eligible caregivers were enrolled to 1 of 3 cohorts based on lines of therapy. Caregivers completed validated questionnaires to assess their QOL, psychological distress, and perceptions of prognosis. We enrolled 127 caregivers of pati

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… Caregivers completed a demographic questionnaire at the time of baseline data collection detailing their age, sex, race, ethnicity, religion, relationship status with the patient, education level, annual household income, and living situation. QoL. …

Оценка иглоукалывания и аурикулотерапии при борьбе с тошнотой и рвотой, вызванной химиотерапией: экспериментальное исследование.

ЦЕЛЬ: Оценка эффективности иглоукалывания и аурикулотерапии в деле уменьшения тошноты, вызванной химиотерапией, и рвоты у больных раком, по сравнению с антиэметическим протоколом. МЕТОД: Пилотное исследование прагматического two- Клинические испытания с применением огнестрельного оружия: группа иглоукалывания получила системную иглоукалывание, аурикулотерапию и антиеметический протокол; контрольная группа использовала антиеметический протокол. Образец состоял из: 42 больные раком желудочно-кишечной системы или множественной миеломой. Результаты были оценены с помощью инструмента химиотерапии п

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… | White | 10 | 38.5 | 16 | 61.5 | Race | Black | 4 | 57.1 | 3 | 42.9 | 0.468 ** | Brown | 4 | 44.4 | 5 | 55.6 | Occupation | Retired | 9 | 40.9 | 13 | 59.1 | | Self Employed/Employee | 3 | 60.0 | 2 | 40.0 | | Unemployed | 3 | 42.9 | 4 | 57.1 | 0.791 ** | INSS/LOAS 2 | 3 | 37.5 | 5 | 62.5 | Religion …

Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.

PurposeThis study aimed to examine the (age-specific) informational needs and support sources used by Adolescent and Young Adult (AYA) cancer survivors throughout their cancer trajectory and socio-demographic and clinical factors associated with most common AYA-related informational needs.MethodsA cross-sectional questionnaire study was conducted among AYA cancer survivors (mean, 10.3 years after diagnosis, SD = 5.6). Informational needs and sources of support were examined via open questions and analyzed via a thematic inductive approach. Responses on informational needs were categorized acco

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… consequences” Appearance 22 (4.6%) “How to hide physical features such as baldness” “Scar reconstruction” “Acceptance of body disfigurement” “Info on changes in appearance (hair loss, where to buy good wigs or scarves, make-up)” Complementary care 10 (2.1%) “Alternative medicine” Spirituality 5 (1.0%) “Religion … features such as baldness” | | | | “Scar reconstruction” | | | | “Acceptance of body disfigurement” | | | | “Info on changes in appearance (hair loss, where to buy good wigs or scarves, make-up)” Complementary care | 10 (2.1%) | | | “Alternative medicine” Spirituality | 5 (1.0%) | | | “Religion …

Exposure to hate in online and traditional media: A systematic review and meta-analysis of the impact of this exposure on individuals and communities.

THE PROBLEM: People use social media platforms to chat, search, and share information, express their opinions, and connect with others. But these platforms also facilitate the posting of divisive, harmful, and hateful messages, targeting groups and individuals, based on their race, religion, gender, sexual orientation, or political views. Hate content is not only a problem on the Internet, but also on traditional media, especially in places where the Internet is not widely available or in rural areas. Despite growing awareness of the harms that exposure to hate can cause, especially to victims…