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Living With Multiple Myeloma: A Focus Group Study of Unmet Needs and Preferences for Survivorship Care.

PURPOSE: To describe the unmet informational, psychological, emotional, social, practical, and physical needs and preferences for posttreatment survivorship care of individuals living with multiple myeloma to inform the development of relevant, person-centered, survivorship services. METHODS: An exploratory, descriptive study using 2 focus groups with 14 participants, 6 to 49 months postdiagnosis. RESULTS: Thematic analysis revealed 7 key themes: information needs, experience with health-care professionals, coping with side effects, communicating with family and friends, dealing with emotion

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… MM1-2 “And you wanted empathy not sympathy…But you could only get empathy from someone who was exactly where you are.” …

The Effects of Patient-Centered Communication on Patient Engagement, Health-Related Quality of Life, Service Quality Perception and Patient Satisfaction in Patients with Cancer: A Cross-Sectional Study in Türkiye.

IntroductionPatient-centered communication is a type of communication that takes place between the provider and the patient.ObjectivesIt is aimed to reveal the effects of patient-centered communication on patient engagement, health-related quality of life, perception of service quality and patient satisfaction.MethodThe study was conducted by applying multiple regression analysis to the data obtained from 312 patients with cancer treated in a training and research hospital affiliated to the Ministry of Health in Diyarbakır, Türkiye.ResultsMore than half of the patients were female and had stag

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… perceived patient satisfaction by increasing patient participation. 53 , 54 According to the results of a study conducted in Vietnam with 455 patients over the age of 18 with at least one chronic disease, it was found that patient-centered communication approach (non-verbal communication skills and empathy … Training physicians to be more attentive, informative and empathetic will transform their role from one characterized by authority to one characterized by partnership, solidarity, empathy and collaboration. 58 In this context, the findings show that especially patients’ perceptions of information exchange …

Psychosocial Factors Affecting Wellbeing and Sources of Support of Young Adult Cancer Survivors: A Scoping Review.

Background/objectivesTo identify and analyze what is known about the psychosocial factors affecting the wellbeing and sources of support of young adult (YA) cancer survivors.MethodsThe search strategy included Neoplasms, young adults, psycho* or emotional well* or mental health. The OVID Medline and CINAHL databases were searched. Included were cancer survivors (YA) ages 18-39 at the time of the study. The studies included qualitative and quantitative designs, written in English, and published between January 2016 and October 2024. The results were recorded according to PRISMA-ScR guidelines.R

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… Unconditional support and empathy were the most helpful. Mapping social networks is important for nurses to support cancer patients. | 1. Breast 2. Leukemia/ Lymphoma 3. Gynecologic Iannarino, N. T., Scott, A. M., and Shaunfield, S. … Unconditional support and empathy were also valued [ 18 , 21 ]. Informational support was important, and the needs included wanting more information on their body shape/sexuality, coping strategies, relaxation techniques, and their relationships with family and friends [ 27 ]. …

Factors Contributing to the Development of Neuropsychiatric Manifestations in Persons With Multiple Sclerosis: A Systematic Review.

Multiple sclerosis (MS) is the most common chronic demyelinating disease affecting the central nervous system (CNS) and is distinguished by neuroinflammation and neurodegeneration. It has four categories based on clinical course, with relapsing-remitting being the most common type. MS predominantly manifests with motor and sensory dysfunctions. However, neuropsychiatric manifestations such as depression, anxiety, schizophrenia, and bipolar disorder are not uncommon. Various factors may contribute to the development of these manifestations; therefore, this study aimed to unravel them. This syst

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… | Narrative review | SANRA Adamaszek et al., 2022 [ 13 ] | Clinical and neurophysiological patterns of impairments to emotion attention and empathy in multiple sclerosis | Case-control study | NOS for case-control studies Almulla et al., 2023 [ 14 ] | Mood symptoms and chronic fatigue syndrome due to … Curr Neurol Neurosci Rep Oset M Stasiolek M Matysiak M 22 20 2020 32444997 10.1007/s11910-020-01045-3 PMC7244611 13 Clinical and neurophysiological patterns of impairments to emotion attention and empathy in multiple sclerosis J Integr Neurosci Adamaszek M Krüger S Kessler C Hosten N Hamm A 7 21 2022 …

Living with relapsed myeloma: Symptoms and self-care strategies.

Aims and objectivesTo explore which symptoms relapsed myeloma patients experience and what self-care strategies are used.MethodsThis was a qualitative study utilising focus group interviews (n = 4) with relapsed myeloma patients (n = 15) and carers (n = 9). The focus groups were analysed and guided by thematic analysis.ResultsThree major themes with subthemes were identified following analysis of the interview data: "difficult symptoms; "self-care" and "feeling vulnerable." These findings indicate the challenges relapsed myeloma patients experience with ongoing symptoms and highlight the impor

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… And I find that really disheartening as somebody watching it happen, do you know…There's, sometimes I feel a lack of empathy, sometimes ” (FG 2, Ruth (carer: daughter)) “ Maybe they do and they're taking notes and they're processing it. … However, although symptoms and adverse events were often acknowledged on clinic visits, participants felt that at times, there was a lack of intervention, continuity of care and empathy. …

Опыт женщин в области психосоциальной поддержки после периодических нарушений: качественный анализ содержания.

КОЛИЧЕСТВО: Дородовой уход (АНК) имеет решающее значение для сокращения материнской и неонатальной смертности путем выявления и лечения осложнений во время беременности. В Индонезии политика, предусматривающая, по крайней мере, six Введены посещения АНК (К6) на одну беременность, однако факторы, влияющие на адекватность АНК в рамках этой новой политики, остаются неоцененными. В этом исследовании рассматриваются национальные и субнациональные распространенность надлежащих посещений АНК, а также связанные с ними географические и социально-экономические факторы. МЕТОДЫ: В настоящем перекрестном и

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… However, research consistently highlights major gaps in psychosocial miscarriage care, including limited empathy, minimization of the loss, insufficient attention to grief, and poor communication about the event and subsequent steps. 11 , 15 Given the significant psychological impact of miscarriage, … This highlights just how important effective communication and empathy are in healthcare. A woman mentioned: “During my hospital stay, I felt completely ignored by the medical staff. Beyond the routine checks for vital signs a few times a day, no one ever came to see me. …

Psychological care of caregivers, nurses and physicians: a study of a new approach.

There is much evidence demonstrating that psychosocial interventions in caregivers and oncological staff produce an improvement in their patients' quality of life. The aim of this explorative study was to evaluate the effect of a new approach in promoting more functional ways to face stressful situations in the constellation of people around patients: caregivers, physicians and nurses. Thirty-four subjects were divided into three groups: 10 caregivers, 11 physicians, and 13 nurses. A "Balint Group" method modified according to a mindfulness technique was used as the intervention. Three assessm

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… Variation of mood and empathy during internship. Jama. 2002;287:3143–3146. doi: 10.1001/jama.287.23.3143. Shanafellt TD. Finding meaning, balance and personal satisfaction in the practice of oncology. J. Support Oncol. 2005;3:157–162. Brazeau CM, Schroeder R, Rovi S, Boyd L. … Association of perceived medical errors with resident distress and empathy: a prospective longitudinal study. Jama. 2006;296:1071–1078. doi: 10.1001/jama.296.9.1071. DiMatteo MR, Sherbourne CD, Hays RD, Ordway L, Kravitz R, McGlynn EA, et al. …

[Consensus, hedonism: the characteristics of new family and their consequences for the development of children].

Over the last three decades, the marital family model described by Durkheim at the end of the nineteenth century has undergone numerous chan … his own ends thanks to his grasping of social situations and to his own seduction, lacking of true empathy; The slightly-psychopathic personality: these subjects can integrate well, but for a short time, in a social structure. They need to frequently find a new job, move in another place or country. Their relationships with others are always disrupted an …

Interpersonal emotion regulation and mental health among cancer survivors: A systematic review.

ObjectiveCancer and its treatment can cause significant emotional distress, adversely affecting mental health. Interpersonal emotion regulation, the process by which individuals regulate emotions through social interactions, plays a critical role in cancer survivorship. This study systematically reviews evidence on the associations between interpersonal emotion regulation and mental health outcomes among cancer survivors, along with the theoretical models guiding this research.MethodsA systematic search was conducted in PubMed, Embase, Web of Science, and Scopus databases, yielding 6928 record

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… Likewise, recent theoretical work suggests that interpersonal emotion regulation is not always driven by empathy, but may also originate from more self-serving motives, such as empathy fatigue or the wish not to be confronted with the survivor’s distress ( Zaki, 2020 ). … The moderating effect of perceived partner empathy on body image and depression among breast cancer survivors. Psycho-Oncology. 2015;24(12):1815–1822. doi: 10.1002/pon.3868. * Feng Y., Liu X., Zhang S., Lin T., Guo X., Chen J. …

Нынешние проблемы, связанные со вторичным прогрессивным множественным склерозом: диагностика, выявление активности и лечение.

Примерно 50% диагностировали повторное склерозное склерозное излучение (RRMS), переходя к вторичному прогрессивному множественным склерозу (SPMS) в течение 20 лет после возникновения болезни. Однако ранняя диагностика СМПС и эффективное лечение по-прежнему являются важными клиническими проблемами. Отсутствие установленных диагностических критериев часто приводит к задержкам с определением СМПС. Кроме того, для прогрессивных форм MS имеется ограниченный доступ к методам лечения, позволяющим сглаживать заболевания (DMT), и эти методы требуют подтверждения активности заболеваний, которая должна б

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… Effective communication—characterized by empathy, validation of emotions, clarity, and active listening—plays a key role in managing patients. … In fact, empathy has been reported by older patients with MS as an area for improvement among neurologists ( 143 ). Therefore, improving soft skills, especially oral communication skills, is more important than ever when discussing sensitive topics with patients, such as disease progression. …

New directions in nursing home ethics.

We believe that a new agenda for the ethics of long-term nursing home care could be set by seeing nursing homes as communities of caring and interdependency. The goal should be not simply to eliminate or minimize dependency whenever possible, but to make a genuinely creative and nurturing use of the dependency that is an inevitable reality for most nursing home residents. Nursing homes are rarely places of curing, but they can and should be places of healing -- of making whole -- of enabling frail or chronically ill persons to use their dependency to grow as human beings... In general, nursing

The Architect of Trust: Dr Tom Ferguson's Legacy.

UnlabelledThis article serves as a formal tribute to the legacy of Dr Tom Ferguson and his foundational 2007 white paper on the "e-patient." Despite its widespread influence, Dr Ferguson's original vision has often been internalized by the broader medical community without clear historical attribution, leading to a drift in the term's original meaning. This article restores the intellectual genealogy of the "e-patient" as defined by Dr Ferguson as "equipped, enabled, empowered, and engaged." We argue for the continued relevance of his "quiet giant" leadership. By formalizing Dr Ferguson's foun

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… They define empathy as constructive action rather than emotional obligation [ 21 ]. … Empathy as a state beyond feeling: a patient and clinician perspective. J R Soc Med. 2019 Feb;112(2):57–60. doi: 10.1177/0141076818790665. doi. …

Травматический стресс затронул людей с множественным склерозом во время пандемии SARS-COV-2.

Фон/цели: Травма представляет собой психологическое повреждение в результате тревожного или подавляющего события. Пандемия SARS-COV-2 была разрушительной и травмирующей для многих людей с множественным склерозом (pwMS). Взаимосвязь между характеристиками пациентов и травмами, полученными в ходе пандемии, еще не была тщательно изучена. Цель этого бицентрического перспективного когортного исследования состояла в том, чтобы проанализировать распространенность и развитие вероятного посттравматического стрессового расстройства (ПТСР) среди ПТСР во время пандемии SARS-COV-2 и определить параметры па

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… High scores for agreeableness may indicate cooperativeness, interpersonal trust, empathy, and a preference for social harmony [ 53 ]. Schwartz et al. investigated the use of the NEO-FFI in pwMS and found it to be appropriate [ 54 ]. … This can also manifest in difficulties when working with others, often due to a lack of empathy toward others [ 142 ]. Consequently, those affected should be provided with the necessary support to develop and utilize social support systems. …

'It was like taking an inner bath': A qualitative evaluation of a collaborative advance care planning-approach.

BackgroundImpaired readiness may hinder purposeful advance care planning in cancer patients. To reduce barriers to participation in end-of-life decision-making, a collaborative intervention was developed combining a psycho-oncological approach of dignity-based and cognitive-behavioural interventions, followed by a standardised advance care planning-process.AimTo evaluate the novel collaborative advance care planning-approach by synthetising cancer patient and carer perspectives on communicational and relational effects.DesignAs a sub-project of a mixed-methods evaluation study, we conducted an

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… (Patient 6, male) Content readiness Relationship dynamics Empathy and mindfulness Our collaborative advance care planning-approach exceeds a mere patient-centred intervention by providing for close involvement of relatives. … Many participants, patients and carers alike, showed empathy for their relatives who were emotionally burdened by the discussions. And then he started to cry, because I mean, hats off! Death is breathing down your neck! Well, that’s. . .living with it. . . I admire him. …

"Like building on top of Auschwitz": on the symbolic meaning of using data from the Nazi experiments, and on nonuse as a form of memorial.

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«Я пропустил своего другого онколога»: сложившиеся отношения как барьеры и посредники в доступе к CAR-T и автономной трансплантации.

: Автологическая трансплантация стволовых клеток (ASCT) и химерика антигенного рецептора Т-клетотерапия (CAR-T) может принести значительные клинические выгоды, но не все пациенты имеют равный доступ к ним. Онкологическая преемственность и доверие имеют важное значение для пациентов и могут служить препятствием для получения лечения. Однако отсутствуют подробные данные о механизме, с помощью которого они могут повлиять на получение лечения, или о том, каким образом этот барьер может быть преодолен. Мы провели качественное исследование с пациентами с неходгкинской лимфомой (NHL), классической Хо

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… explained things to me in a way he handled himself and how confident he seemed when he told me the different options.” (72, NHL) “Like I was confident the way she was talking, she looked like—she sounded like she knew what she was doing” (50, cHL) Perception of strong, individualized communication and empathy … Other factors included the provider demonstrating a high level of knowledge, including about the specific disease being treated, a provider's confidence, and the patient's feeling that there was strong and individualized communication accompanied by empathy. …

Implementation of Virtual Integrative Oncology Shared Medical Appointment Series (VIOSMAS) Within Mixed Diagnosis Population.

BackgroundIntegrative oncology [IO] is sought-after by patients, endorsed by clinical guidelines, and valued within National Cancer Institute Centers. Shared Medical Appointments [SMA] leverage health education and social connection to deliver enhanced patient experience, population health, cost-reduction, and clinician well-being. Integrative Oncology Shared Medical Appointments increase access to integrative medicine but delivering these services via telehealth have not been evaluated.ObjectiveWe created, and pilot tested a Virtual Integrative Oncology Shared Medical Appointment Series (VIOS

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… Thank everyone for their sense of shared empathy and compassion and for reminding me it is not what happens when you fall down but what happens when you get up. This group is incredible. . .this is joy! … Reconsidering empathy: an interpersonal approach and participatory arts in the medical humanities . J Med Humanit . 2021 ; 42 : 627 - 640 . doi: 10.1007/s10912-021-09701-6 34100177 PMC8664795 49 Kakareka R Stone TA Plsek P Imamura A Hwang E. …

Роль окситоцина и Васопрессина в нейропсихиатрических расстройствах: терапевтический потенциал агонистов и антагонистов.

Окситоцин (OT) и вазопрессин (AVP) являются гипоталамическими нейропептидами, которые традиционно ассоциируются с их регулирующей ролью в размножении, гомеостазисе воды и социальном поведении. Интересно, что в последние годы эта роль расширилась и эти нейропептиды стали лечебными мишенями для различных нейропсихиатрических заболеваний, таких, как аутизм, зависимость, шизофрения, депрессия и тревожное расстройство. В связи с химическими и физическими характеристиками этих нейропептидов, включая короткий период полураспада, плохое проникновение через мозговые барьеры, беспорядочность для AVP и O

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… On the other hand, it is believed that disturbances of the OT system are involved, at least in part, in the dysfunctions observed in the social reward and empathy circuitries. … Therefore, diverse research has focused on OT administration and social functioning improvement, since it is presumed that OT could reduce the attention bias to social threat cues, regulate poor affect regulation and poor social reward experiences, and recover maladaptive empathy [ 141 ]. …

Искусственный интеллект и наука о вкладе пациента: точка зрения людей с множественным склерозом.

Искусственный интеллект (АИ) может сыграть жизненно важную роль в переходе к прогнозной, профилактической и индивидуализированной медицине при условии, что мы руководствуемся наукой с помощью и с помощью пациента. Меры по достижению результатов, о которых сообщают пациенты (ПРОМ), представляют собой уникальную возможность для получения практических знаний от людей, живущих в условиях здоровья, и обеспечения их научной актуальности для всех других заинтересованных сторон. Несмотря на это, использование стандартизированных результатов, включая ПРОМ, в рамках научно-исследовательской системы и си

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… A study comparing responses to frequently asked questions showed that people with MS rated those written by ChatGPT as higher in empathy compared by those written by a neurologist ( 41 ). …

Support during pregnancy for women at increased risk of low birthweight babies.

BACKGROUND: Studies consistently show a relationship between social disadvantage and low birthweight. Many countries have programmes offerin … routine care. We defined additional social support as some form of emotional support (e.g. caring, empathy, trust), tangible/instrumental support (e.g. transportation to clinic appointments, home visits complemented with phone calls, help with household responsibilities) or informational support (advice and counselling about nutrition, rest, stress manag …