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Assessing the relationship between the distress levels in patients with irreversible terminal delirium and the good quality of death from the perspective of bereaved family.

BACKGROUND: Research on achieving a good death for terminally delirious patients is scarce, with limited knowledge about the level of good death and influencing factors. This study investigates the level of good death among delirium patients, factors influencing it, and the correlation between distress, end-of-life care needs, and achieving a good death by surveying bereaved family members of deceased patients in Chinese hospitals. METHODS: This cross-sectional study from January 2022 to January 2024 was conducted among bereaved family members of patients using an online questionnaire. The qu

Healing grief - an online self-help intervention programme for bereaved Chinese with prolonged grief: study protocol for a randomised controlled trial.

Background: In China, mental health services do not currently meet the needs of bereaved people with symptoms of prolonged grief disorder (P … intervention may play an important role in easing the imbalance between the delivery and receipt of bereavement psychological services in China.

Are cancer patients living alone more or less likely to achieve a good death? Two cross-sectional surveys of bereaved families.

This study examined differences in sociodemographic characteristics and the achievement of a good death between cancer patients who live alone and those who do not live alone prior to death in different settings. Secondary analysis of data collected across two cross-sectional self-reported questionnaire surveys was undertaken. The participants were bereaved family members of cancer patients who had died in palliative care units (PCUs), acute hospitals or homes. We stratified the data by the place of death and examined the differences in sociodemographic characteristics to determine the relatio

Internet-based grief therapy for bereaved individuals after loss due to Haematological cancer: study protocol of a randomized controlled trial.

BACKGROUND: Approximately 10% of the individuals experiencing the death of a loved one develop prolonged grief disorder (PGD) after bereavement. Family members of haematological cancer patients might be particularly burdened since their loss experience is preceded by a very strenuous time of disease and aggressive treatment. However, support needs of relatives of cancer patients often remain unmet, also after the death of the patient. Therapeutic possibilities are enhanced by providing easily available and accessible Internet-based therapies. This study will adapt and evaluate an Internet-base…

What are the physical and psychological health effects of suicide bereavement on family members? Protocol for an observational and interview mixed-methods study in Ireland.

INTRODUCTION: Research indicates that experiencing the suicide of a relative can have a significant impact on family members' emotional health. However, research incorporating the impact of suicide bereavement on family members' physical health is sparse. This paper details the protocol for a mixed-methods study of suicide-bereaved family members. The study will primarily examine the physical and mental health needs of those bereaved by suicide. A secondary objective of the study is to describe the support service needs of family members bereaved by suicide. METHODS AND ANALYSIS: A mixed-meth…

Thriving without driving: Exploring the impact of a driving retirement intervention on older adults through a dual process model of coping with bereavement.

BACKGROUND AND OBJECTIVES: Driving retirement is an increasingly significant life transition for older adults, yet few plan for this change despite its emotional, practical, and social implications. Older adults commonly experience mobility challenges, diminished well-being, and strong negative emotions-including grief, frustration, and loss of identity-when they stop driving. The dual process model of coping with bereavement offers a useful framework for understanding this transition, as it distinguishes between loss-oriented stressors (emotional reactions to giving up driving) and restoratio…

Reproductive function in the sons of women who experienced stress due to bereavement before and during pregnancy: a nationwide population-based cohort study.

OBJECTIVE: To estimate the association between prenatal exposure to maternal stress and reproductive disorders in Danish men, where prenatal … posed men (HR 0.93; 95% CI, 0.89-0.98). CONCLUSION(S): Prenatal stress in the form of the mother's bereavement during the first trimester of pregnancy is associated with a higher risk of reproductive disorders from congenital malformations of the genital organs in the male offspring. The lack of an association between maternal bereavement and later infertili …

An exploration of health workers' experiences in providing bereavement care to mothers following a stillbirth: results from a subnational level health system in Uganda.

BACKGROUND: Stillbirth is a profound emotion-laden event to the mothers and health workers who provide care due to its sudden and unexpected occurrence. Health workers offering support in regions shouldering the highest-burden experience providing support to a stillbirth mother in their professional lifetime. However, their experiences seldom get documented as much of the focus is on mothers causing a dissonance between parental and clinical priorities. This study aimed to explore the health worker's experiences in the provision of bereavement care to mothers following a stillbirth. METHODS: …

Navigating arrested parenthood: Bereaved parents' and healthcare professionals' experiences of less-invasive autopsy using micro-focus computed tomography.

BACKGROUND: Little is known about the experiences of bereaved parents who agree to less-invasive autopsy (LIA) investigations following pregnancy loss. This study aimed to explore parental and professional views and experiences of LIA using a new imaging technique, micro-focus computed tomography (Micro-CT). METHODS: This mixed methods study involved interviews and surveys with parents offered LIA using Micro-CT at our institution and healthcare professionals (HCPs) involved in service delivery. RESULTS: Interviews were conducted with 14 parents that consented to Micro-CT and 6 HCPs. Surveys

Providing life-sustaining treatments at home for those with Motor Neurone Disease: A qualitative study of bereaved family members' experiences of responsibility.

BACKGROUND: Motor neurone disease is an incurable neurodegenerative condition that progressively impairs motor function. It affects mobility, speech, swallowing and breathing, leading to significant dependence on others. Home mechanical ventilation can alleviate respiratory symptoms and improve survival. AIM: To examine the experiences of bereaved family members involved in the care of someone with motor neurone disease who had died with home mechanical ventilation in place, or following its withdrawal. DESIGN: An interpretive constructivist approach was used to carry out qualitative intervi

Grief and Depression Among Bereaved Parents Who Have Lost an Adult Child to Cancer: A National Death Follow-Up Study.

Background: Parents who have lost their children to death often experience high levels of grief and depression. However, studies on the grief and depression experienced by parents who have lost an adult child to cancer are scarce. Objectives: To clarify the risk and characteristics of grief and depression in parents who have lost an adult child to cancer. Design: A nationwide mortality follow-back survey was conducted in Japan with participants identified using death certificate data for cancer. Between February 2019 and February 2020, a questionnaire was distributed to 110,990 bereaved family

The Unfinished Business Scale for Families: A Measure for Evaluating the Unfinished Business of Bereaved Family Members of Terminally Ill Patients with Cancer in Japan.

OBJECTIVES: Although unfinished business is associated with psychological states in bereaved families of patients with cancer, no evaluation tools have been developed for such families in Japan. This study aimed to develop and examine the validity and reliability of an evaluation tool for unfinished business among families of terminally ill patients with cancer in Japan. METHODS: In August 2020, a cross-sectional online survey consisting of the Unfinished Business Scale for Families, Unfinished Business in Bereavement Scale (UBBS), Brief Grief Questionnaire (BGQ), and Patient Health Questionn…

What is the quality of care at the end of life? Qualitative findings from a nationally-representative post-bereavement survey across England and Wales.

ObjectivesTo explore the quality of end-of-life care in England and Wales using the experiences of bereaved family carers, and to develop person-centred quality of care domains for end-of-life care.MethodsQualitative analysis of free-text responses from a nationally-representative cross-sectional post-bereavement survey. Inductive thematic analysis of free-text responses to open-ended questions about care in last 3 months of life, circumstances of death, and experiences of care and bereavement, guided by the Institute of Medicine's quality domains. Participants were adults who registered the d…

Current and bereaved caregivers' experiences of participating in the adapted Telehealth Making Sense of Brain Tumour program in the context of high-grade glioma.

BACKGROUND: The Telehealth Making Sense of Brain Tumour program (Tele-MAST) was adapted for caregivers (cTele-MAST) to address the lack of caregiver-specific psychological support interventions in the context of high-grade glioma. This study aimed to explore current and bereaved caregivers' reasons for seeking psychological support, experiences of participating in cTele-MAST, and impacts on mental health and quality of life. METHODS: A longitudinal multi-methods design was employed, capturing qualitative and quantitative data prior to cTele-MAST (Time 1), 1-week (Time 2), and 3-month post-int

What is known about the health service use and follow-up of immediate family members bereaved by suicide? Scoping review protocol.

INTRODUCTION: Suicide remains a major public health issue around the world. People bereaved by suicide are a vulnerable group who are at considerable risk of developing mental and physical health problems, such as complicated grief, post-traumatic stress disorder or cardiovascular disease. Many unanswered questions remain, in particular, in terms of their use of healthcare services. This protocol describes how we aim to systematically scope the existing literature on the professional follow-up and health service use by families bereaved by suicide. The scoping review will help to identify rese

Relationship between serum lipid concentrations and posttraumatic stress symptoms in the bereaved after the Sewol ferry disaster: A prospective cohort study.

The objective of this study was to investigate the relationship between serum lipid concentrations and PTSD symptoms in the bereaved after a traumatic familial loss. Eighteen months after the Sewol ferry disaster, 107 subjects who experienced traumatic losses as a result of the accident completed a mental and medical survey as well as laboratory tests for lipid profiles. At 30 months after the trauma, a total of 64 individuals completed a follow-up psychometric survey and biochemical measurements. We performed multiple linear regression analyses, examining the association between PTSD symptoms

The contributions of family care-givers at end of life: A national post-bereavement census survey of cancer carers' hours of care and expenditures.

BackgroundFamily members provide vital care at end of life, enabling patients to remain at home. Such informal care contributes significantly to the economy while supporting patients' preferences and government policy. However, the value of care-givers' contributions is often underestimated or overlooked in evaluations. Without information on the activities and expenditures involved in informal care-giving, it is impossible to provide an accurate assessment of carers' contribution to end-of-life care.AimThe aim of this study was to investigate the contributions and expenditure of informal, fam

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… Unlike other causes of death, cancer does not display seasonal variation 24 , 25 and ONS data show no variation in cancer deaths by day of week or time of month. 26 Dates were chosen to avoid other ONS post-bereavement surveys while allowing appropriate time post-bereavement for those contacted. … National bereavement survey (VOICES) 2011 , ONS statistics bulletin, http://www.ons.gov.uk/ons/rel/subnational-health1/national-bereavement-survey—voices-/2011/national-bereavement-survey—voices—2011.html ( 2012 , accessed 13 April 2016 ). 38 Pivodic L Harding R Calanzani N ; On behalf of EURO IMPACT …

'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.

AIM: Spinal muscular atrophy (SMA) type 1 is a relatively common, untreatable and invariably fatal neuromuscular disorder of early childhood. Psychosocial care is vital in management of families affected by this disease. There are few studies examining the impact of having a family member with a neuromuscular disorder, and none describing parents' experiences of having a child with SMA type 1. This study explored parents' perspectives of having a child with SMA type 1, from diagnosis to bereavement, in order to inform clinical practice by identifying aspects most meaningful to parents and to a…