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A qualitative study of cancer survivors' exercise behaviour 4 months after a telerehabilitation program.

PURPOSE: Although telerehabilitation can improve access to exercise programs for cancer survivors, it is not known if these programs lead to ongoing change in exercise habits. This study explored participant experiences of exercise 4 months after finishing specialized cancer exercise-based telerehabilitation. METHOD: A qualitative study embedded in a randomized controlled trial evaluated exercise-based cancer telerehabilitation delivered in groups. Data were collected via semistructured interviews that were audio-recorded and transcribed verbatim. Seventeen adult cancer survivors (age 21 to 8

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… It also provides insights on how telerehabilitation might facilitate exercise maintenance behavior from the participants’ perspective, despite published concerns in the literature about health literacy, lack of social support, and inequitable access to technology being potential barriers to telerehabilitation … Contextual factors such as health literacy, cultural background, and geographic location may influence the experience of people from other areas of the world and their experience exercising after telerehabilitation. …

Эффективность Leder Falls, онлайновая программа группового саморегулирования для людей с множественным склерозом: протокол случайного контролируемого испытания.

ВВЕДЕНИЕ: Меньшее число водопадов представляет собой ручную программу по предотвращению осенних осадков, разработанную совместно для лиц с множественным склерозом (PwMS) и без амбулаторного лечения (PwMS). Результаты технико-экономического обоснования указывают на необходимость проведения полномасштабного выборочного контролируемого испытания (КРП). МЕТОДЫ И АНАЛИЗ: Будет проведена параллельная группа по РТС с оценкой смешанных методов, а также оценка эффективности затрат. Мы намерены вербовать 240 PwMS, который будет стратифицирован на уровне амбулирования и случайным 1::1 в блоках eight к вм

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… , other diagnosis and aids); formal/informal care; cognitive function (collected through the short version of the Montreal Cognitive Assessment Scale 36 ); anxiety and depression (collected through the Hospital Anxiety and Depression scale 37 ); fatigue (assessed by the Fatigue Severity Scale 38 ); health … literacy (assessed via the Swedish version of the Health Literacy Survey European Questionnaire/16 item version 39 ); self-reported falls and fall related injuries in the previous 6 months; and expectations on the programme. …

Duke Cancer Care Experience: a longitudinal, multidisciplinary oncology curriculum for medical students.

BackgroundCancer prevalence continues to rise in the United States with a projected shortage of oncologists in the workforce. Despite this need, medical schools often lack oncology-focused education in their curriculum. Duke's Cancer Care Experience (CCE) is a multi-disciplinary elective designed to meet the growing demand for highly competent, compassionate, and diverse physicians of all medical specialties who are aware of the unique needs of patients diagnosed with cancer. CCE integrates principles of adult learning theory to increase learner engagement and prioritize knowledge retention of

Время для последующей терапии (TTST) в качестве конечной точки в клинических исследованиях: разработка стандартизованной документации о последующей терапии на основе систематического обзора литературы, опросов экспертов и обследования Делфи.

СПРАВОЧНАЯ ИНФОРМАЦИЯ: конечная точка " Время для последующей терапии " (TTST) является промежуточной точкой, используемой в исследованиях и оценках регулирования. TTST означает начало последующей терапии и является четко определенным, клинически значимым мероприятием для медицинских работников. Однако она не была систематически установлена, в какой степени TTST субъективно значима для пациентов. Цель этого исследования заключалась в том, чтобы определить TTST как промежуточный конечный показатель, учитывающий интересы пациентов.МЕТОДЫ: Изученное исследование five Онкологические пока

Тенденции смертности от почечной недостаточности среди многих пациентов в возрасте от миэломы ≥ 45 годы, 1999-2023Анализ данных ЦКЗ.

Множественная миелома (ММ) — плазменная порча клеток, которая часто осложняется почечным расстройством, что значительно ухудшает прогноз. Несмотря на то, что терапевтический прогресс улучшил выживание ММ, почечная недостаточность по-прежнему является одной из основных причин неблагоприятных последствий. В этом исследовании были рассмотрены долгосрочные тенденции и демографические различия в показателях смертности среди лиц, умерших в США, при этом ММ была названа основной причиной смерти и почечной недостаточности, которая была названа одной из причин смертности. Данные о смертности среди взро

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… Zahnd WE Scaife SL Francis ML Health literacy skills in rural and urban populations Am. J. Health Behav. 2009 33 5 550 557 10.5993/AJHB.33.5.8 19296745 Zahnd, W. E., Scaife, S. L. & Francis, M. L. Health literacy skills in rural and urban populations. Am. J. …

Fulfilling end-of-life dreams: A scoping review of bucket lists in palliative and hospice care.

Abstract Objectives The purpose of this study is to examine the existing literature on end-of-life dream experiences and bucket list fulfillments among terminally ill individuals receiving hospice and/or palliative care. Methods A scoping review registered on Open Science Framework was conducted in accordance with the guidelines for Scoping reviews (PRISMA-ScR). An electronic search of literature was generated from EBSCO databases published until June 2024. Studies were included if they described and evaluated the effects of bucket lists and/or end-of-life wish fulfillment. Results This review

Psychometric properties of the Chinese version of the M.D. Anderson symptom Inventory-Multiple Myeloma Module: a translation and validation study.

BACKGROUND: The reliability of the M.D. Anderson Symptom Inventory-Multiple Myeloma Module (MDASI-MM) was evaluated through its Chinese translation among Chinese patients with multiple myeloma. METHODS: The MDASI-MM scale underwent translation into Chinese following Brislin's two-way translation paradigm, incorporating ortho-translation, back-translation, pre-surveying, and cultural adaptation. The scale's validity and reliability were assessed using a sample of five hundred multiple myeloma patients from three tertiary general hospitals in Zhejiang Province, China, selected through convenien

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… Sun X Lv K Wang F Validity and reliability of the Chinese version of the health literacy scale Short-Form in the Chinese population[J] BMC Public Health 2023 23 1 385 10.1186/s12889-023-15237-2 36823591 PMC9951431 Sun X, Lv K, Wang F, et al. … Validity and reliability of the Chinese version of the health literacy scale Short-Form in the Chinese population[J]. BMC Public Health. 2023;23(1):385. 10.1186/s12889-023-15237-2. 36823591 10.1186/s12889-023-15237-2 PMC9951431 27. …

Abstracts from the 37th Annual Meeting of the Society of General Internal Medicine, 2014, San Diego, CA, USA.

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… Low health literacy is a contributing factor to medication non-adherence. Our objective was to determine whether antihypertensive medication adherence could improve using a Meducation® technology health literacy intervention. … CONCLUSIONS: A health literacy intervention is a feasible mechanism to improve cardiovascular-related medication adherence and outcomes. In this sample, 9 % of participants attained less than a high school level of education, yet 40 % had health literacy levels below the 9th grade reading level. …

Diagnosing myeloma in general practice: how might earlier diagnosis be achieved?

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… We need to understand how this affects patients’ behaviour with non-specific cancer symptoms and presentation in general practice, especially for older patients and those with lower health literacy. …

Bridging the gap: the need for community-engaged research on blood cancer self-management experiences among South Asians.

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… These findings highlight barriers such as health literacy gaps, reliance on familial decision-making, and cultural perceptions of illness. They also suggest that self-management among South Asians is a socially embedded process rather than solely an individual responsibility. …

Неинфекционные заболевания на юго-западе Ирана: профиль и базовые данные из исследования < < Шахрекорд ПЕРСИАН Корт > > .

СПРАВОЧНАЯ ИНФОРМАЦИЯ: Критические межпровинциальные различия в структуре неинфекционных заболеваний (НИЗ) в Иране и трудности, связанные с определением методов профилактики для сокращения смертности от НИЗ, поставили под угрозу осуществление провинциального плана в области здравоохранения. Исследование < < Шахрекорд кохорт > > (СКС) было предназначено для устранения этих пробелов в Чахармахале и Бахтиари, провинции с высокой высотой на юго-западе Ирана, характеризующейся большим населением Бахтиари, а также этническими группами Фарса и Турка. МЕТОДЫ: Эта текущая группа, перспектив

Характеризация качества жизни и её полезность как показателя здоровья для людей с глубокими интеллектуальными и множественными нарушениями: обзор первичных исследований.

БАКGROUND: Установление эффективности вмешательств, способствующих улучшению качества жизни, является важным для предоставления обоснованной медицинской помощи, оптимизации результатов и обоснования расходов на такую поддержку. Настоящий обзор исследует, как качество жизни у взрослых с глубокими интеллектуальными нарушениями характеризуется, измеряется и используется для оценки здравоохранительных вмешательств в научной литературе. МЕТОДЫ: Проведена скопинг-ревью первичных исследований, опубликованных с 2010 по 2024 год, в базах данных CINAHL, MEDLINE, APA PsycINFO, APA SocIndex, Education So

The future of Cochrane Neonatal.

Cochrane Neonatal was first established in 1993, as one of the original review groups of the Cochrane Collaboration. In fact, the origins of Cochrane Neonatal precede the establishment of the collaboration. In the 1980's, the National Perinatal Epidemiology Unit at Oxford, led by Dr. Iain Chalmers, established the "Oxford Database of Perinatal Trials" (ODPT), a register of virtually all randomized controlled trials in perinatal medicine to provide a resource for reviews of the safety and efficacy of interventions used in perinatal care and to foster cooperative and coordinated research efforts

Positive fertility outcomes in a female with classic congenital adrenal hyperplasia following bilateral adrenalectomy.

BACKGROUND: Many women suffer from daily distressing symptoms related to lymphedema following breast cancer treatment. Lymphedema, an abnormal accumulation of lymph fluid in the ipsilateral body area or upper limb, remains an ongoing major health problem affecting more than 40% of 3.1 million breast cancer survivors in the United States. Patient-centered care related to lymphedema symptom management is often inadequately addressed in clinical research and practice. mHealth plays a significant role in improving self-care, patient-clinician communication, and access to health information. The-Op

Adherence to the World Cancer Research Fund/American Institute for Cancer Research recommendations for cancer prevention in adolescent and young adult (AYA) cancer survivors: results from the SURVAYA study.

PurposeFor adolescent and young adult (AYA) cancer survivors with a good prognosis, having a healthy lifestyle prevents morbidity and mortality after treatment. The aim of this study was to investigate the prevalence of (un)healthy lifestyle behaviors and related determinants in AYA cancer survivors.MethodsA population-based, cross-sectional study was performed among long-term (5-20 years) AYA cancer survivors (18-39 years old at diagnosis) registered within the Netherlands Cancer Registry. Self-reported questionnaires data about health behaviors were used to calculate the 2018 World Cancer Re

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… As shown in an American study among patients suffering from chronic kidney disease, this difference could be explained to the likelihood that ethnicities other than white/Caucasian are more likely to have a low socio-economic and health literacy. … A systematic review of the prevalence and associations of limited health literacy in CKD. Clin J Am Soc Nephrol. 2017;12(7):1070–84. 51. Xu W, Gilmer DO, Starkweather A, Kim K. Associations among marijuana use, health-related quality of life, exercise, depression and sleep in cancer survivors. …

Efficacy of expressive helping in adult hematologic cancer patients undergoing stem cell transplant: protocol for the Writing for Insight, Strength, and Ease (WISE) study's two-arm randomized controlled trial.

BackgroundDuring, shortly after, and sometimes for years after hematopoietic stem cell transplant, a large proportion of hematological cancer patients undergoing transplant report significant physical and psychological symptoms and reduced health-related quality of life. To address these survivorship problems, we developed a low-burden, brief psychological intervention called expressive helping that includes two theory- and evidence-based components designed to work together synergistically: emotionally expressive writing and peer support writing. Building on evidence from a prior randomized c

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… Validation of screening questions for limited health literacy in a large VA outpatient population. J Gen Intern Med. 2008;23(5):561–566. doi: 10.1007/s11606-008-0520-5. 42. …

How does medication-related osteonecrosis of the jaw (MRONJ) influence the health-related quality of life after surgery?

BACKGROUND: Medication-Related Osteonecrosis of the Jaw (MRONJ), an established side effect of antiresorptive and antiangiogenic medication, could sometimes require surgical intervention, such as decortication. The objectives of this retrospective patient survey study were to evaluate the effect of surgical treated MRONJ on health-related quality of life (QoL) and to assess the awareness of the risk of MRONJ. METHODS: The MRONJ-related QoL in both cancer and osteoporosis patients was determined in four different time periods after surgery applying the European Organisation for Research and Tr

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… This measure reflects perceived information sufficiency, a key aspect of health literacy and informed decision-making [ 42 ]. The questionnaire underwent content validation through expert review by specialists in oral and maxillofacial surgery and oncology. … Health literacy and public health: A systematic review and integration of definitions and models. BMC Public Health. 2012;12(1):80. 10.1186/1471-2458-12-80. 43. Osoba D, Rodrigues G, Myles J, Zee B, Pater J. Interpreting the significance of changes in health-related quality-of-life scores. …

Potential role of immunotherapy and targeted therapy in the treatment of cancer: A contemporary nursing practice.

Immunotherapy and targeted therapy have emerged as promising therapeutic options for cancer patients. Immunotherapies induce a host immune response that mediates long-lived tumor destruction, while targeted therapies suppress molecular mechanisms that are important for tumor maintenance and growth. In addition, cytotoxic agents and targeted therapies regulate immune responses, which increases the chances that these therapeutic approaches may be efficiently combined with immunotherapy to ameliorate clinical outcomes. Various studies have suggested that combinations of therapies that target diff

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… Oncology nurses are responsible for providing treatment to a wide range of patients with varying levels of health literacy. … Thus, nurses need to utilize specific approaches to confirm useful patient education and techniques that are customized to the patient's preferred method of teaching and level of health literacy. …

Эпидемиология множественного склероза: глобальные, региональные, национальные и субнациональные оценки и будущие прогнозы.

ИСТОРИЯ ВОПРОСА: Эпидемиология множественных склерозов (МС) является сложной в силу взаимодействия различных факторов риска. В настоящем исследовании дается оценка глобального, регионального, национального и субнационального бремени НР и прогнозируются будущие тенденции. МЕТОДЫ: Данные, полученные в ходе глобального исследования бремени болезней 2021 был проанализирован с целью оценки эпидемиологии MS 1990 в адрес 2021. Данные Всемирного банка использовались для определения социально-демографических прогнозов распространенности НР с использованием многовариантного анализа. РЕЗУЛЬТАТЫ: НА глоба

Psychometric Properties of the Persian Self-Advocacy in Cancer Survivorship Scale (SACS-P) in Iran.

BackgroundSelf-advocacy is crucial for cancer patients, as it allows them to express their needs and engage in treatment decisions. This skill enhances the quality of care and life satisfaction. Accurately measuring self-advocacy and supporting patients with lower skills is essential to improving treatment outcomes and promoting patient-centered care. Accurate measurement of self-advocacy is vital for identifying patients with lower skills and providing support to enhance treatment outcomes and patient-centered care. This study aimed to investigate the psychometric properties of the Persian ve