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ИАНКОН 2023 Выдержки из плаката

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A pilot randomized clinical trial of a peer support intervention for hematopoietic stem cell transplantation.

AbstractPeer support has been associated with improved patient-reported outcomes (PROs), including reduced psychological distress, among patients undergoing hematopoietic stem cell transplantation (HSCT), but structured interventions are limited. This study assessed the feasibility, acceptability, and preliminary effects of a scalable peer support intervention to reduce psychological distress and enhance quality of life (QOL) post-HSCT. We conducted a pilot randomized clinical trial evaluating the Supporting Transplant Experiences with Peer Program (STEPP), a 5-session, telephone-based interve

Agreement between the EQ-5D-5L anxiety/depression dimension and GAD-7/PHQ-9 for psychological distress assessment in patients with hematologic malignancies.

BACKGROUND: Patients with hematologic malignancies (HMs) often experience psychological distress, significantly impairing health-related qua … using GAD-7/PHQ-9 as a comparative measure. The associations between patient characteristics and responses on the A/D dimension were explored. RESULTS: The A/D dimension exhibited moderate-to-strong correlations with GAD-7 grade (r = 0.607, P < 0.001), PHQ-9 grade (r = 0.579, P < 0.001), and combined GAD-7/PHQ-9 grade (r = 0.603, P < 0.001). For ident …

Symptom experiences and self-management strategies of patients with haematological malignancy undergoing chemotherapy: A qualitative study.

ObjectiveTo explore symptom experiences and self-management strategies from the haematological malignancy patient's perspective.MethodsA qualitative descriptive approach was used to provide a direct and comprehensive understanding of the symptoms experienced and self-management strategies during treatment among patients with haematological malignancy. Fourteen patients with haematologic malignancies who received chemotherapy at a Chinese tertiary hospital were selected using purposeful sampling. Data were collected via semi-structured interviews and one-on-one patient sessions. The collected d

Воздействие непрерывного лечения леналидомидома на людей, живущих с множественным исследованием по оценке качества услуг в одном центре миэломы.

PMOPSE: Непрерывное лечение линалидомида после аутологической трансплантации стволовых клеток способствует повышению уровня свободного развития и общей выживаемости вновь диагностированных пациентов с множественными миеломами и является стандартом ухода в Соединенном Королевстве с марта 2021. Однако имеется мало информации о ее воздействии на повседневную жизнь пациентов. Эта оценка услуг была направлена на качественную оценку пациентов, проходящих курс лечения линалидомидом в раковом центре в Лондоне, с тем чтобы эта служба могла лучше соответствовать потребностям и ожиданиям пациентов.МЕТОДЫ

Compassionate Communication and Advance Care Planning to improve End-of-life Care in Treatment of Haematological Disease 'ACT': Study Protocol for a Cluster-randomized trial.

IntroductionTo support the implementation of advance care planning and serious illness conversations in haematology, a previously developed conversation intervention titled 'Advance Consultations Concerning your Life and Treatment' (ACT) was found feasible. This study aims to investigate the effect of ACT on the quality of end-of-life care in patients with haematological malignancy and their informal caregivers.Methods and analysisThe study is a nationwide 2-arm cluster randomised trial randomising 40 physician-nurse clusters across seven haematological departments in Denmark to provide standa

Caregiver's quality of life in advanced cancer: validation of the construct in a real-life setting of early palliative care.

IntroductionEarly palliative care (EPC) improves the quality of life (QoL) of advanced cancer patients and their caregivers. The increasingly widespread use of this care model requires the development of measures supporting its interventions. Although the construct of patient's QoL has been extensively investigated and several QoL measures have been further validated, there is a paucity of data concerning the QoL of the caregiver. In 2018, McDonald and colleagues addressed this issue by interviewing 23 primary caregivers of advanced cancer patients who participated in an EPC randomized clinica

Symptom burden and health-related quality of life six months after hyperbaric oxygen therapy in cancer survivors with pelvic radiation injuries

Abstract Purpose Late radiation tissue injuries (LRTIs) after treatment for pelvic cancer may impair health related quality of life (HRQoL). Hyperbaric oxygen therapy is an adjuvant therapy for LRTIs, but limited studied. The aim of this study was to explore the development and association between symptoms of LRTI and HRQoL following hyperbaric oxygen treatment. Methods A pretest–posttest design was used to evaluate the changes in pelvic LRTIs and HRQoL from baseline (T1), immediately after treatment (T2) and at six-month follow-up (T3). EPIC and EORTC-QLQ-C30 were used to assess LRTIs and HRQ

Perspectives on the DNR decision process: A survey of nurses and physicians in hematology and oncology.

IntroductionIn cancer care, do-not-resuscitate (DNR) decisions are made frequently; i.e., decisions not to start the heart in the event of a cardiac arrest. A DNR decision can be a complex process involving nurses and physicians with a wide variety of experiences and perspectives. Previous studies have shown different perceptions of the DNR decision process among nurses and physicians, e.g. concerning patient involvement and information. DNR decisions have also been reported to be unclear and documentation inconsistent.ObjectiveThe aim was to investigate how important and how likely to happen

MR imaging findings in some rare neurological complications of paediatric cancer.

Neurological complications of paediatric cancers are a substantial problem. Complications can be primary from central nervous system (CNS) spread or secondary from indirect or remote effects of cancer, as well as cancer treatments such as chemotherapy and radiation therapy. In this review, we present the clinical and imaging findings of rare but important neurological complications in paediatric patients with cancer. Neurological complications are classified into three phases: pre-treatment, treatment and post-remission. Paraneoplastic neurological syndromes, hyperviscosity syndrome, haemophag

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… A 10-year-old girl with acute lymphocytic leukaemia, whose white blood cell count reached 400,000, presented with headache and vomiting. a A T1-weighted image shows hyperintensity in the pons and bilateral cerebellar hemispheres ( arrows ). b These lesions show hyperintensity with a hypointensity rim … A 10-year-old girl with acute lymphocytic leukaemia, whose white blood cell count reached 400,000, presented with headache and vomiting. a A T1-weighted image shows hyperintensity in the pons and bilateral cerebellar hemispheres ( arrows ). b These lesions show hyperintensity with a hypointensity rim …

Perceived benefits and barriers to exercise for recently treated patients with multiple myeloma: a qualitative study.

BACKGROUND: Understanding the physical activity experiences of patients with multiple myeloma (MM) is essential to inform the development of evidence-based interventions and to quantify the benefits of physical activity. The aim of this study was to gain an in-depth understanding of the physical activity experiences and perceived benefits and barriers to physical activity for patients with MM. METHODS: This was a qualitative study that used a grounded theory approach. Semi-structured interviews were conducted in Victoria, Australia by telephone from December 2011-February 2012 with patients w

Perceived information provision and satisfaction among lymphoma and multiple myeloma survivors--results from a Dutch population-based study.

To improve posttreatment care for (long-term) lymphoma survivors in the Netherlands, survivorship clinics are being developed. As information provision is an important aspect of survivorship care, our aim was to evaluate the current perceived level of and satisfaction with information received by non-Hodgkin's lymphoma (NHL), Hodgkin's lymphoma (HL) and multiple myeloma (MM) survivors, and to identify associations with sociodemographic and clinical characteristics. The population-based Eindhoven Cancer Registry was used to select all patients diagnosed with NHL, HL and MM from 1999 to 2009. In

Acceptance and commitment therapy reduces psychological distress in patients with cancer: a systematic review and meta-analysis of randomized controlled trials.

ObjectiveThis study aimed to systematically review and meta-analyze the clinical efficacy of acceptance and commitment therapy (ACT) in patients with cancer and psychological distress.MethodsRandomized controlled trials (RCTs) from seven English electronic databases were systematically investigated from inception to 3 October 2023. A total of 16 RCTs from 6 countries with 711 participants were included in this study. Estimated pooled effect sizes (ESs) were calculated via inverse-variance random-effects or fixed-effects (I2 ≤ 50%) model and presented by standardized mean difference (SMD). Subg

Patient-Centered Insights on Treatment Decision Making and Living with Acute Myeloid Leukemia and Other Hematologic Cancers.

Expectations relating to treatment and survival, and factors influencing treatment decisions are not well understood in adult patients with acute myeloid leukemia. This study analyzed combined findings from a targeted literature review with patient-reported information shared on YouTube to further understand patient perspectives in hematologic cancers and, in particular, acute myeloid leukemia. The targeted literature review included articles concerning patient (aged ≥ 18 years) experiences or perspectives in acute myeloid leukemia or other hematologic cancers. YouTube video selection criteria

Systemic Lupus Erythematosus in Primary Care: An Update and Practical Messages for the General Practitioner.

Systemic Lupus Erythematosus (SLE) is a complex chronic autoimmune disease that manifests a wide range of organ involvement. Traditionally, the diagnosis and management of SLE is provided at secondary and tertiary centers to ensure prompt initiation of treatment, adequate control of flares and prevention of irreversible organ damage. Notwithstanding, the role of primary care in SLE is also emerging as there are still significant unmet needs such as the diagnostic delay at the community level and the high burden of therapy- and disease-related comorbidities. In the present review, we summarize

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… Pons-Estel GJ, Saurit V, Alarcon GS, Hachuel L, Boggio G, Wojdyla D, et al. The impact of rural residency on the expression and outcome of systemic lupus erythematosus: data from a multiethnic Latin American cohort. Lupus (2012) 21:1397–404. 10.1177/0961203312458465 22. … Pons-Estel GJ, Ugarte-Gil MF, Alarcon GS. Epidemiology of systemic lupus erythematosus. Expert Rev Clin immunology (2017) 13:799–814. 10.1080/1744666X.2017.1327352 41. Lu LJ, Wallace DJ, Ishimori ML, Scofield RH, Weisman MH. …

Post-traumatic growth and cancer survivorship: experiences of living with treatment-related impairment.

PurposeIncreased distress has been associated with impairment related to cancer treatment and with post-traumatic growth (PTG), but the influence of treatment-related impairment on PTG has not been explored. This study aimed to understand the lived experience of PTG for cancer survivors living with treatment-related impairment.MethodsHermeneutic phenomenology was used to develop a deep understanding of the lived experience of adult cancer survivors living with ongoing treatment-related impairment who had experienced self-perceived PTG following their cancer experience. Semi-structured individu

Physical activity programming and counseling preferences among cancer survivors: a systematic review.

BackgroundPhysical activity (PA) participation and adherence among cancer survivors is low, despite research indicating numerous physical, psychological and emotional health benefits of exercise. Tailoring exercise programs specific to the PA preferences in cancer survivors has merit for increasing PA participation and adherence to accrue these benefits. This systematic review identifies and differentiates PA programming and counseling preferences of adult cancer survivors across various cancer survivor groups.MethodsPubMed, SPORTDiscus, Scopus, PsycINFO, EMBASE, Web of Science and CINAHL were

Совместные мероприятия по самоуправлению взрослых, живущих с кишечной остомией: обзор.

Справочная информация/задачи: Цель этого аналитического обзора заключалась в определении существующих данных о целях, характеристиках, результатах и посредниках по осуществлению, а также о препятствиях, с которыми сопряжены мероприятия по поддержке со стороны сверстников, направленные на содействие самоуправлению у лиц, живущих с кишечной остомией. Методы: В соответствии с методологией Института Джоанны Бриггс был проведен обзор аналитического исследования, результаты которого были представлены в соответствии с программой PRISMA Presponse for Screpting Reviews (PRISMA-ScR). В декабре был прове…

МРТ корреляции депрессии и тревоги при множественном склерозе.

Множественный склероз (MS) является нейродегенеративным и хроническим воспалительным заболеванием, которое часто ассоциируется с психиатрической коморбидией, особенно депрессией и тревогой, которые играют важную роль в инвалидности, когнитивной дисфункции и качестве жизни. Растущие данные свидетельствуют о том, что симптомы воздействия в MS связаны не только с психосоциальным бременем, но и со структурными и функциональными аномалиями в мозге, которые могут быть выявлены с помощью магнитного резонансного изображения (MRI). МЕТОДЫ: Был проведен систематический поиск базы данных в целях выявлени

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… Depression was correlated with medial midbrain and medial pons lesions, but no association was observed with cerebellar lobule VIIA [ 59 ]. … Lesions involving the raphe nuclei, locus coeruleus, medial midbrain, and pons were associated with depression [ 45 , 59 , 82 , 83 , 84 ]. The significance of some individual nuclei was not always statistically robust [ 59 ]. …

Exploring the implementation of patient-reported outcome measures in cancer care: need for more real-world evidence results in the peer reviewed literature.

BackgroundTo explore the existing evidence of the real-world implementation of patient-reported outcomes (PROs) in oncology clinical practice and address two aims: (1) summarize available evidence of PRO use in clinical practice using a framework based on the International Society for Quality of Life Research (ISOQOL) PRO Implementation Guide; and (2) describe reports of real-world, standardized PRO administration in oncology conducted outside of scope of a research study.MethodsA Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) protocol was developed to guide the sy