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Defining Success in the Delivery of Fertility-Related Care for Patients with Differences of Sex Development.

INTRODUCTION: Individuals with differences of sex development (DSD) experience complex, often competing, medical and psychosocial challenges surrounding fertility. The study aimed to characterize how "success" in fertility-related care is conceptualized and attained among individuals with a DSD, their parents or caregivers, healthcare providers, and other stakeholders. METHODS: As part of a larger study, DSD stakeholders (n = 110) participated in semi-structured interviews covering the clinical care of patients with DSD. Primary questions included "What is a successful outcome in DSD care?" a

Expert stakeholders' perspectives on a Data-to-Care strategy for improving care among HIV-positive individuals incarcerated in jails.

Data-to-Care (D2C) uses surveillance data (e.g., laboratory, Medicaid billing) to identify out-of-care HIV-positive persons to re-link them to care. Most US states are implementing D2C, yet few studies have explored stakeholders' perspectives on D2C, and none have addressed these perspectives in the context of D2C in jail. This article reports findings from qualitative, semi-structured interviews conducted with expert stakeholders regarding their perspectives on the ethical challenges of utilizing D2C to understand and improve continuity of care among individuals incarcerated in jails. Partici

Examining the views of key stakeholders regarding the provision of occupational influenza vaccination for healthcare workers in Australia.

Annual vaccination of hospital healthcare workers (HCWs) may be an effective measure to reduce the transmission of healthcare associated influenza. However, vaccine coverage rates among HCWs in most public Australian hospitals are below satisfactory for a number of reasons. This study aimed to examine the opinions of key health stakeholders on current issues regarding HCW influenza vaccination. A qualitative study involving semi-structured interviews was undertaken with key Australian health stakeholders representing different organizations and sectors involved in influenza vaccination and pol

Stakeholders' perspectives on transplant metrics: the 2022 Scientific Registry of Transplant Recipients' consensus conference.

In July 2022, the Scientific Registry of Transplant Recipients (SRTR) hosted an innovative, multistakeholder consensus conference to identify information and metrics desired by stakeholders in the transplantation system, including patients, living donors, caregivers, deceased donor family members, transplant professionals, organ procurement organization professionals, payers, and regulators. Crucially, patients, caregivers, living donors, and deceased donor family members were included in all aspects of this conference, including serving on the planning committee, participating in preconferenc

The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report.

In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders' perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants' main priorities included focus on shared decision making regarding clinical and resea

Barriers to accessing newer antibiotics in countries with high burden of bacterial antimicrobial resistant infections-a qualitative study.

BACKGROUND: Bacterial antimicrobial resistant (AMR) infections pose a significant health threat. Newer antibiotics designed to treat resistant pathogens may offer superior efficacy and fewer side effects compared to older alternatives. However, access to newer antibiotics remains limited in high AMR burden Asian countries. We aimed to explore stakeholder perspectives on barriers and potential solutions to improving access to newer antibiotics across Asia. METHODS: We conducted a qualitative study using semi-structured interviews with stakeholders across Asia between April 2024 and April 2025.

Engaging underrepresented populations in public health monitoring: strategies for people with mild intellectual disability or low literacy skills.

BACKGROUND: Recruitment challenges, the use of complex language, and reluctance toward research are factors that make people with low literacy skills (LL skills), such as people with mild intellectual disability (MID), an underrepresented group in public health monitoring questionnaires. As a result, little is known about the health status and needs of people with MID and/or LL skills, despite their higher health risks and greater support needs, reinforcing health inequalities. Therefore, this case study evaluates the development and implementation of an accessible online COVID-19 health monit

The role of gaming technology for upper extremity rehabilitation of musculoskeletal conditions-A scoping review with expert insights.

BACKGROUND: Serious games and gaming are increasingly used as therapeutic interventions in the rehabilitation of the upper extremities (UE) among individuals with musculoskeletal (MSK) conditions. PURPOSE: To describe and summarize the characteristics of gaming technology used for UE rehabilitation of MSK conditions. STUDY DESIGN: Scoping review. METHODS: We searched four databases. Three reviewers screened articles and included articles that i) had at least one participant with an MSK condition, ii) used a gaming intervention, and iii) focused on UE rehabilitation, indicated by using an UE

"They still deserve for their pain to be controlled": healthcare providers' and community-level stakeholders' perceptions of pain management among cancer survivors with an opioid use disorder.

PURPOSE: To explore healthcare providers' and community-level stakeholders' perceptions of opioid pain management among cancer survivors with a history of opioid use disorder living with cancer-related pain. METHODS: Using a qualitative methodological approach, healthcare providers and community-level stakeholders providing care to cancer survivors with an opioid use disorder (OUD) were recruited by purposive sampling methods. Data was collected through semi-structured interviews that was subsequently transcribed verbatim and analyzed using thematic analysis. RESULTS: Participants were healt

Future directions for medication assisted treatment for opioid use disorder with American Indian/Alaska Natives.

The U.S. is experiencing an alarming opioid epidemic, and although American Indians and Alaska Natives (AI/ANs) are especially hard hit, there is a paucity of opioid-related treatment research with these communities. AI/ANs are second only to Whites in the U.S. for overdose mortality. Thus, the National Institute on Drug Abuse convened a meeting of key stakeholders to elicit feedback on the acceptability and uptake of medication assisted treatment (MAT) for opioid use disorders (OUDs) among AI/ANs. Five themes from this one-day meeting emerged: 1) the mismatch between Western secular and reduc

International practices, barriers, and enablers for patient and public involvement in pricing and reimbursement decision-making: a mixed-methods study.

IntroductionPatient and public involvement (PPI) in pricing and reimbursement (P&R) procedures is increasingly recognized as essential for strengthening the quality, legitimacy, and patient-centredness of healthcare decision-making. However, implementation remains heterogeneous across countries and data on concrete practices, barriers, and enablers are fragmented. This study aimed to map international approaches to PPI in P&R procedures and identify barriers and enablers to meaningful involvement.MethodsA mixed-methods design was applied, combining a scoping literature review complemented by q

Co-research in the development of AI and digital health tools for cancer management and care: a systematic review.

BackgroundParticipatory approaches (including co-research, co-design, Patient and Public Involvement [PPI], and Participatory Action Research [PAR]) are increasingly being incorporated into digital health innovation. However, their application in cancer-related digital and Artificial Intelligence (AI) tool lifecycle remains insufficiently synthesised, limiting understanding of how participatory approaches influence ethical outcomes, trust, and the real-world implementation of these technologies. This review moves beyond documenting participatory approaches to critically examine how far partici

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… Processes such as data governance, model development, validation, and ongoing oversight require specialised technical expertise and involve methodological and regulatory constraints that may limit the extent and form of stakeholder participation [ 16 , 17 ]. … Discussion This review aims to describe the use of co-research approaches in the development of digital and AI-related tools for cancer care, and to assess the extent to which these approaches facilitate meaningful, multi-stakeholder participation. …

Implementation of the Medication Literacy Assessment Instrument MELIA in the Home Care Setting: A Multi-Method Study.

AIMS: This study aimed to identify determinants for successfully implementing the MEdication LIiteracy Assessment tool (MELIA) by nurses, fr … lied the Standards for Reporting Qualitative Research guidelines. PATIENT OR PUBLIC CONTRIBUTIONS: Stakeholder participation was an integral part of this pilot implementation study. A stakeholder group was formed at each organization's headquarters, comprising professionals in leadership positions and nurses providing everyday care. These stakeholders provided contextual …

Toward better technology for social health in dementia: a review of implementation recommendations and research priorities to equitably meet the demand.

BACKGROUND: Social health is increasingly recognized as a key dimension of wellbeing in dementia, yet it remains unclear to what extent available assistive technologies are personalisable, usable, and effective in addressing related unmet needs. OBJECTIVE: This umbrella review aimed to (1) identify how many and which technologies are personalisable, usable and effective in supporting social health in dementia, and (2) synthesize recommendations from the current literature on how to improve equitable implementation. METHODS: An explorative review of reviews was conducted, including 28 reviews

United Nations Partnerships With the Alcohol Industry.

BACKGROUND: The alcohol industry builds engagement with United Nations (UN) organisations to enhance its corporate image and influence policy, supported by the UN's endorsement of public-private partnerships (PPPs). However, the extent of the alcohol industry's relationships with the UN remains unclear due to limited reporting. METHODS: We searched the websites of 57 UN-affiliated entities and 18 transnational alcohol corporations (TNACs) for evidence of partnerships or relationships between the UN and the alcohol industry. We summarised the UN entities and TNACs involved in formal partnershi

Inclusive Leadership in Disadvantaged Neighbourhoods: A Qualitative Analysis of Stakeholder Perspectives on Its Potential Role in Academic Achievement.

The aim of this study is to examine the potential role of inclusive leadership in disadvantaged neighbourhoods. A qualitative research metho … tices were largely perceived positively and reflected instructional leadership, open communication, stakeholder participation, attention to individual differences, collaboration, and fairness, although weaknesses related to empathy and engagement with external stakeholders were also identified. Fourth, inclusive leadership was perceived to contribute to academic achievemen …

Community ownership of biopsychosocial model of care: a qualitative study in the Katana health district, Democratic Republic of Congo.

BACKGROUND: The WHO recommends the Person-Centred Care approach, based on the biopsychosocial (BPS) model with community participation, to streamline the management of chronic diseases in Primary Health Care (PHC) activities and reduce their growing burden, even in Africa. The Democratic Republic of Congo's (DRC) experience of community participation in implementing the BPS model for chronic diseases has been little explored. OBJECTIVE: To describe community ownership of the biopsychosocial model of chronic disease care in PHC facilities in South Kivu province, DRC. METHODS: A basic interpre

Using community-based participatory approaches to improve access to mass drug administration for trachoma elimination in a pastoral conflict area of Kenya.

In Baringo County, Kenya, trachoma remains endemic despite repeated mass drug administration (MDA) efforts, with coverage in one of the wards consistently falling short of world health organization (WHO) targets. The disease is endemic in 12 out of the 47 counties in Kenya. Baringo county is a pastoral conflict, hard to reach area where eight rounds of mass drug administration (MDA) for trachoma have been implemented. In Loyamorok ward, treatment coverage has been below 68% against the WHO recommended threshold of 80%. Community engagements that promote participatory approaches are key to MDA

The windsor definition for hyperemesis gravidarum: A multistakeholder international consensus definition.

OBJECTIVE: To develop an international definition for hyperemesis gravidarum to assist in clinical diagnosis and harmonize hyperemesis gravidarum definition for study populations. STUDY DESIGN: A mixed-methods approach was used to identify potential hyperemesis gravidarum definition criteria (i.e. systematic review, semi-structured interviews and closed group sessions with patients and Project Steering Committee input). To reach consensus on the definition we used a web-based Delphi survey with two rounds, followed by a face-to-face consensus development meeting, held in Windsor UK, and a web

Successes and failures of built environment interventions: Using concept mapping to assess stakeholder perspectives in four Canadian cities.

BACKGROUND: Healthy communities can be supported through built environment interventions that redesign cities for improved health outcomes. Understanding the context of these interventions is critical for assessing how an intervention impacts population health; such context is often poorly documented. This study uses concept mapping to capture stakeholders' perspectives on the factors that influence the success and failure of built environment interventions across cities. METHODS: The INTErventions, Research, and Action in Cities Team (INTERACT) research program undertook concept mapping exer