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It Is Personal: What People with Parkinson's Disease Say Matters Most for Quality of Life.

BACKGROUND: Little is known about what matters most for quality of life in people with Parkinson's disease and how much it varies between individuals. OBJECTIVE: The goal was to define the relative impact of quality of life determinants in people with Parkinson's disease, including variation across individuals and by disease severity, gender, age, and ethnicity. METHODS: Sixty-one factors potentially associated with quality of life in people with Parkinson's disease were identified from the literature and nominated by participants with Parkinson's disease. Forty-four participants then rated …

Severe malocclusion and oral health-related quality of life in adolescents aged 12-15 years.

INTRODUCTION: Malocclusion is a public health problem. The evidence of its impact on quality of life is contradictory and requires further studies. OBJECTIVE: The aim of this study was to estimate the prevalence of severe malocclusion and its impact on oral health-related quality of life in schoolchildren aged 12-15 years. METHODS: A cross-sectional study was conducted with a probabilistic sample of 391 students. A sociodemographic questionnaire was used to collect information regarding the family context. The presence of malocclusion was assessed using the Dental Aesthetic Index (DAI), and …

Elite athletes' overall oral health, values and related quality of life: a cross-sectional study.

The present observational study aimed to identify the prevalence of oral health issues in this population and explore the relationship betwe … ome sex differences in oral health behaviors. Despite the high prevalence of oral diseases, related quality of life and values did not show any association, possibly due to the low perception of athletes.

Lymphedema, Fatigue, and Quality of Life in Breast Cancer Survivors with Axillary Lymph Node Dissection.

Introduction: Health-related quality of life (QOL) has gained importance due to the increasing incidence of breast cancer and the survival rate of breast cancer patients. We aimed to investigate the relationship between lymphedema, fatigue, and QOL in breast cancer survivors with axillary lymph node dissection. Methods: A total of 122 female breast cancer survivors with axillary lymph node dissection who applied to the oncology center of a teaching and research hospital between April 1, 2022, and July 1, 2022, were included in the cross-sectional study. An individual identification form, the E…

Quality of life and survival in patients with uterine carcinosarcoma: A tertiary center observational study.

OBJECTIVE: This study aimed to assess the QoL in patients with uterine carcinosarcoma (UCS) and identify factors influencing survival. METHODS: A prospective cohort study was conducted of patients with UCS who were treated between 2016 and 2022 in a Dutch academic hospital. QoL was evaluated using the EORTC QLQ-C30 and QLQ-EN24 questionnaires at baseline, end of treatment, and at one, two, and five years after treatment. Outcomes were described as mean scores in functioning and symptom domains. The mean scores of the QLQ-C30 were compared to those of a matched group from the general Dutch pop

Sexual quality of life and associated factors among podoconiosis patients in Wolaita zone, South Ethiopia.

BACKGROUND: Sexual health is a crucial aspect of overall well-being, yet individuals with podoconiosis often face stigma and exclusion from healthcare services which promote sexual health. In Ethiopia, particularly in the study area, the Sexual quality of life (SQOL) of podoconiosis patients remains unexplored. This study aimed to assess the SQOL and associated factors among podoconiosis patients in Wolaita Zone, South Ethiopia. METHODS: A community-based cross-sectional study was conducted among 639 podoconiosis patients using a multistage sampling technique. SQOL-F and SQOL-M questionnaires…

Food insecurity is associated with decreased quality of life in patients with chronic Chagas disease.

This study assessed the prevalence of food insecurity (FI) in patients with Chagas Disease (CD) and its association with anthropometric measurements, comorbidities, and quality of life (QoL). This cross-sectional study included CD patients of both sexes. The FI was evaluated using the Brazilian FI scale. Anthropometric measurements included weight, height, and waist circumference. Comorbidities included hypertension, diabetes, dyslipidemia, and obesity. Lipids and plasma glucose were collected. QoL was assessed using the Portuguese version of WHOQOL-Bref questionnaire. Linear and logistic regr…

PROBIOTICS AS AN ADJUNCTIVE THERAPY FOR CELIAC DISEASE: SYMPTOM RELIEF AND QUALITY OF LIFE IMPROVEMENT.

BACKGROUND: Celiac disease is a chronic autoimmune disorder triggered by gluten ingestion in genetically predisposed individuals, leading to … significant improvements in emotional well-being and gastrointestinal symptoms, leading to a better quality of life, as measured by the CD-specific quality of life (CD-QOL) scores. CONCLUSION: These results suggest that probiotics contribute to symptom improvement and enhanced quality of life in CD patients. BACKGROUND: • Probiotics improve celiac disease sympt …

Cognitive profiles at presentation and subsequent cognitive decline and quality of life in Parkinson's disease.

INTRODUCTION: Currently, our ability to predict cognitive decline in Parkinson's disease is limited. METHODS: In 234 dementia-free PD patients, cognitive profiles at baseline were determined using cluster analysis and longitudinal associations with global cognitive z-score, health-related quality of life (HR-QoL), caregiver burden, and risk of reliable cognitive change (RCC) were tested. RESULTS: Participants fell into four cognitive profiles at baseline: normal cognition (n = 108), memory impairment (n = 47), memory and executive function impairment (n = 59), and global cognitive impairment…

Alopecia Areata: Impact on Patients' Quality of Life and Disease Perception: A Survey-Based Study.

Alopecia areata significantly impacts patients' emotional and psychosocial well-being. This survey investigated patients' perspectives on disease severity and its impact on quality of life. The study evaluated whether disease assessment tools (Severity of Alopecia Tool, Dermatology Life Quality Index, and Patient Unique Stigmatization Holistic tool in dermatology) reflect patients' perceptions of their condition. The study was conducted as an anonymous social media survey in Norway and Denmark. The questionnaire was divided into 3 main sections: (i) demographics and disease characteristics; (i…

Double-Barrel Urocolostomy After Pelvic Exenteration: Short-Term Morbidity and Patient-Reported Quality of Life.

BACKGROUND: Total pelvic exenteration is a radical surgical procedure for advanced pelvic malignancies. Traditionally, an ileal conduit is created on the right abdominal wall for urinary diversion and an end-colostomy on the left abdominal wall for fecal diversion. However, this approach is associated with increased morbidity and a negative impact on quality of life (QoL). A unilateral double-barrel urocolostomy (DBUC) offers an alternative using the sigmoid colon for urinary drainage. This can potentially reduce complications, improve QoL, and preserve the right vertical rectus abdominis musc…

Power Wheelchair Adaptive Team Sport Involvement: Experience, Impact on Quality of Life, and Physical Fitness.

Purpose: Adults with disabilities can benefit from physical activity. Athletic activity for adults with disabilities requires adaptation to … adaptive team sports. The authors assessed overall health once using the World Health Organization Quality of Life Survey (WHOQOL-BREF). Subsequent heart rate data were collected from players while at rest and during adaptive team sport scrimmages. Results: Four qualitative themes described adults with disability experiences: Community; Personal gain; Competitio …

The Association Between Child Maltreatment and Quality of Life: A Systematic Review and Meta-Analysis.

The association between child maltreatment (CM) and quality of life (QoL) has been widely examined in the past decade. In this study, we estimated the association between CM and QoL using a systematic review and meta-analysis. Articles were searched up to May 15, 2024, in both English databases (Web of Science, EMBASE, CINAHL, PsycINFO & PsycArticles, MEDLINE, Cochrane Library, PubMed, and Scopus) and Chinese databases (CNKI, Weipu, and Wanfang). The meta-analysis was performed by a random-effects model, using 43 studies comprising 130,884 participants. This study demonstrated that general CM …

Health-related quality of life and associated factors among people with disabilities in Northwest Ethiopia.

Disability affects a large proportion of the global population, with the majority living in low- and middle -income countries. In Ethiopia, more than 15% of the population living with a disability. Although disability is a major public health concern and significantly affects health-related quality of life (HRQOOL), evidence in Ethiopia remains limited. This study aimed to assess HRQOL and its associated factors among people with disabilities (PWDs) in the North and Central Gondar zones, Northwestern Ethiopia. A systematic random sampling technique was used to select 631 study participants wit…

Palliative care use and end-of-life care quality in HR+/HER2- metastatic breast cancer.

PURPOSE: Metastatic breast cancer (MBC) is incurable, despite therapeutic advances, especially in hormone receptor positive (HR+) and human epidermal growth factor-2 negative (HER2-) disease. Specialist palliative care (SPC) is recommended to alleviate distress and reduce overly aggressive end-of-life (EoL) care. This study determined rates of SPC, hospice utilization, and aggressive EoL care in patients with HR+/HER2- MBC. METHODS: A retrospective review was performed of patients with treatment naïve HR+/HER2- MBC treated with endocrine therapy and/or cyclin-dependent kinase 4 and 6 inhibito

Symptom Burden and Quality of Life in Inpatient Palliative Care: Prospective Evaluation With IPOS-POL.

Effective palliative care requires a comprehensive assessment of symptoms to improve quality of life. This study evaluated the clinical utility of the Polish version of the Integrated Palliative Care Outcome Scale (IPOS-POL) in an inpatient setting. One hundred patients (68 oncological, 32 non-oncological) completed IPOS-POL at admission (T1) and after seven days (T2) between July 2022 and February 2023. While total IPOS scores remained stable (p = 0.3603), psychosocial distress increased significantly (p = 0.0217). Staff tended to underestimate drowsiness and psychosocial distress compared wi…

The relationship between perceived social support and quality of life among hospitalized patients with schizophrenia.

Patients with mental illness often experience limited Social Support, which is a contributing factor to isolation and negatively affects their psychological and emotional well-being, including their quality of life (QoL). This research explored the association between individuals' perception of Social Support and quality of life among hospitalized patients with schizophrenia. A cross-sectional study was conducted at the Psychiatric Hospital of the Cross between the period of November 2024 and January 2025 and included 86 patients diagnosed with schizophrenia. Participants were selected from me…

Team rehabilitation services for preschool children with hearing impairment and their mother's quality of life.

OBJECTIVE: Teamwork rehabilitation is recommended for children with hearing impairment, who often require multidimensional support. This study aimed to investigate the impact of team-based rehabilitation services on the quality of life and mental health of mothers of preschool children with hearing impairment. A total of 126 mothers of hearing-impaired children residing in Tehran, Iran, participated in the study. Based on inclusion and exclusion criteria, 63 mothers whose children received team-based rehabilitation and 63 whose children received individual rehabilitation were selected. Partici…

Factors associated with early quality-of-life response to palliative care during hematopoietic cell transplantation.

AbstractLimited data exist on factors associated with early quality-of-life (QOL) response to palliative care (PC) in patients undergoing hematopoietic cell transplantation (HCT). We conducted a secondary analysis from 2 randomized clinical trials of PC vs usual care in adults with hematologic malignancies undergoing HCT. We measured patient-reported QOL, physical and psychological symptoms, and coping (categorized as approach-oriented and avoidant) at the time of HCT admission and 2 weeks, 3 months, and 6 months after HCT. PC clinicians completed weekly surveys documenting PC domains addresse

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… Introduction Specialty palliative care (PC) improves quality of life (QOL) and reduces physical symptom burden and psychological distress during hematopoietic cell transplantation (HCT) hospitalization. 1 , 2 The benefits of specialty PC are sustained at 6 months after HCT, with improvement in depression … 121 6 2015 951 959 25469752 10.1002/cncr.29149 PMC4352120 16 McQuellon R Russell G Cella D Quality of life measurement in bone marrow transplantation: development of the functional assessment of cancer therapy-bone marrow transplant (FACT-BMT) scale Bone Marrow Transplant 19 4 1997 357 368 9051246 …