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Shortage of plasma-derived medicinal products: what is next? narrative literature review on its causes and counteracting policies in Italy.

Introduction: This paper describes the peculiarities of the plasma-derived medicinal product (PDMP) market and illustrates the results of a review of the literature on policies aimed at counteracting the shortage of PDMPs. Characteristics of PDMPs: Plasma is primarily used for the industrial production of blood products (80%). The demand for PDMPs, particularly immunoglobulins (IGs), is increasing. However, the production of PDMPs is complex, long (7-12 months), and expensive, accounting, according to US estimates, for 57% of the total costs of PDMPs compared to 14% for small molecules. PDMP m

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… Major motivations of blood donors, new or regular, appear related to the prosocial nature of donation (i.e., altruism, communitarianism, etc.), to personal values (i.e., moral norms), and to the comfort of the donation environment. …

Post-traumatic growth and cancer survivorship: experiences of living with treatment-related impairment.

PurposeIncreased distress has been associated with impairment related to cancer treatment and with post-traumatic growth (PTG), but the influence of treatment-related impairment on PTG has not been explored. This study aimed to understand the lived experience of PTG for cancer survivors living with treatment-related impairment.MethodsHermeneutic phenomenology was used to develop a deep understanding of the lived experience of adult cancer survivors living with ongoing treatment-related impairment who had experienced self-perceived PTG following their cancer experience. Semi-structured individu

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… Participant 4 experienced multi-faceted growth in the domain of relating to others, including increased openness, a newfound willingness and ability to connect with others, empathy, altruism, and help-seeking capacities. … Newfound empathy and altruism for others with cancer and a new sense of identity were reported by Threader and McCormack [ 13 ]. …

Patients' and caregivers' perspectives on preparedness for and experience with chimeric antigen receptor T-cell therapy.

BackgroundChimeric antigen receptor-T (CAR-T) cell therapy has improved survival, yet its toxic profile may impact on survivors' well-being. We examined patients' and caregivers' perspectives on the most common, severe, and distressing side effects across recovery (ie, first 60 days) and survivorship (ie, 60 days and onwards) and explored their perspectives on the education received to prepare for CAR-T.Materials and methodsWe conducted semi-structured interviews with patients and caregivers addressing (1) how they prepared for CAR-T, (2) the side effects experienced during the first-year post

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… Similarly, several patients expressed gratitude for the opportunity to receive CAR-T, for the support they received from their caregivers and clinicians, and for the altruism of other patients who volunteered in the research that led to CAR-T approval. …

Patients' perspectives on the derivation and use of organoids.

Organoid research is enhancing understanding of human development and diseases as well as aiding in medication development and selection, raising hopes for even more future therapeutic options. Nevertheless, this work raises important ethical issues and there is a paucity of data regarding patients' perspectives on them. We report on 60 interviews with adult patients or parents of pediatric patients from diverse disease populations who receive medical care at a major academic research institution in the United States. Interviewees expressed broad support for organoid development and use. Howev

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… Patients cited a myriad of such influences, including a strong sense of altruism, a pro-science/pro-research worldview, religious/spiritual values, experiences (e.g., professional experience, exposure to other cultures), personal and/or family health challenges, and an interest in/exposure to science …

The views and experiences of people with myeloma referred for autologous stem cell transplantation, who declined to participate in a physiotherapist-led exercise trial: a qualitative study.

BACKGROUND: Recruitment rates to rehabilitation trials are variable among cancer survivors, and deeper investigation into the causes for declining participation is needed. The aim of this study was to qualitatively explore the experiences of people with myeloma referred for autologous stem cell transplant who were approached to take part in a physiotherapist-led exercise trial but declined. METHODS: Participants were asked to participate in this qualitative study after declining to participate in a trial conducted at a UK tertiary cancer center. Semi-structured interviews were conducted. Data

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… Greg, 65 This combination of altruism and regret at not participating in the exercise study may in reality have been the influencing factors for most wanting to take part in this qualitative study, with the sentiment of “if it will help others” a feature across the dataset. …

Person-centred care in oncological home services: a scoping review of patients' and caregivers' experience and needs.

BackgroundCancer became a chronic disease that could be managed at home. Homecare supported person-centred care, which was guided by the Picker Principles defining key elements for care delivery. The study aimed to explore and appraise the dimensions underlying cancer patients' and caregivers' experience and expectations with Home Cancer Care, adopting a person-centerd care framework.MethodsWe carried out a scoping review of the literature using three databases, PubMed, Scopus, and WoS for a total of 703 articles. PRISMA guidelines were followed. 57 articles were included in the review. The ex

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… This demands flexibility in the content of any intervention Hathiramani S, Pettengell R, Moir H, Younis A. 2019 [ 52 ] UK Qualitative Rehabilitation Patients 35 lymphoma Gave focus to recovery Good to track progress Took time Difficulties in participation Altruism Additional information Participating … This demands flexibility in the content of any intervention Hathiramani S, Pettengell R, Moir H, Younis A. 2019 [ 52 ] | UK | Qualitative | Rehabilitation | Patients | 35 | | | lymphoma | Gave focus to recovery Good to track progress Took time Difficulties in participation Altruism Additional information …

The Success of Cancer Crowdfunding Campaigns: Project and Text Analysis.

BackgroundRecent studies have analyzed the factors that contribute to variations in the success of crowdfunding campaigns for a specific cancer type; however, little is known about the influential factors among crowdfunding campaigns for multiple cancers.ObjectiveThe purpose of this study was to examine the relationship between project features and the success of cancer crowdfunding campaigns and to determine whether text features affect campaign success for various cancers.MethodsUsing cancer-related crowdfunding projects on the GoFundMe website, we transformed textual descriptions from the c

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… Int J Electron Commer 2016 06 20 20 4 499 524 10.1080/10864415.2016.1171975 12 Khurana I Legitimacy and reciprocal altruism in donation-based crowdfunding: evidence from India J Risk Financial Manag 2021 04 25 14 5 194 10.3390/jrfm14050194 13 Peng L Cui G Bao Z Liu S Speaking the same language: the …

The Role of Response-Shift in Studies Assessing Quality of Life Outcomes Among Cancer Patients: A Systematic Review.

Objective: Response-shift has been cited as an important measurement consideration when assessing patient reported quality of life (QoL) outcomes over time among patients with severe chronic conditions. Here we report the results of a systematic review of response shift in studies assessing QoL among cancer patients. Methods: A systematic review using MEDLINE, EMBASE, and PsychINFO along with a manual search of the cited references of the articles selected, was conducted. A quality review was performed using STROBE criteria and reported according to PRISMA guidelines. Results: A systematic rev

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… breast ( N = 26); lung ( N = 17); urologic ( N = 14); digestive ( N = 12); gynecologic ( N = 8); other ( N = 9) | Global QoL—WHOQOL-BREF−2 items; life goals questionnaire (GOALS)-−24 items; EORT-QLQ−5 items physical functioning | Global QoL, physical functioning, mental health | Life goals (affiliation, altruism …

Living with or beyond lymphoma: A rapid review of the unmet needs of lymphoma survivors.

ObjectiveTo establish an understanding of the unmet needs of people living with or beyond a lymphoma diagnosis. Survivors of lymphoma are at increased risk of unmet needs due to cancer, treatment-related toxicities and extended survivorship. Despite the rapidly growing numbers of lymphoma survivors, their needs and research priorities are underserved and undervalued, therefore left largely unaddressed.MethodsA rapid review method and reflexive thematic analysis approach assimilated current knowledge. Eligibility criteria included quantitative, qualitative, or mixed approaches employing cross-s

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… United States | Pooled secondary analysis ⁃ Rural residence was also associated with higher IOCv2 positive impact scores and the subscales of altruism/empathy and meaning of cancer scores in the adjusted models (all p < 0.05). …

The PRO-CAR-T™ study: achieving excellence in patient and public involvement and engagement.

BackgroundPatient and Public Involvement and Engagement (PPIE) is advocated in Patient Reported Outcome (PRO) research, but implementation remains inconsistent and often suboptimal. Many barriers exist, including a lack of understanding about how to apply the principles of PPIE in practice. This paper offers an example of how PPIE can be meaningfully integrated into the development of a digital PRO system within the complex and rapidly evolving field of advanced therapies. The aims are to offer practical insights about how PPIE was conceptualised and operationalised in the context of this stud

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… While most of our Patient and Public Partners were motivated by altruism, payment for time and out of pocket expenses acknowledges their status as equal partners in the co-production of knowledge (considering staff are paid for their time) and importantly, removes some financial barriers that might prevent …

Resilience in Cancer Patients.

Background: Being diagnosed with cancer and undergoing its treatment are associated with substantial distress that can cause long-lasting negative psychological outcomes. Resilience is an individual's ability to maintain or restore relatively stable psychological and physical functioning when confronted with stressful life events and adversities. Posttraumatic growth (PTG) can be defined as positive life changes that result from major life crises or stressful events. Objectives: The aims of this study were to 1) investigate which factors can strengthen or weaken resilience and PTG in cancer pa

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… resilience: a multivariate twin study | Retrospective study design | | SCL-90 Life Orientation Test Rosenberg Self-Esteem Scale | To determine the phenotypic relationships, and etiologic underpinnings, of cognitive/psychological traits (neuroticism, optimism, self-esteem, mastery, interpersonal dependency, altruism …

50th ESCP Symposium on Clinical Pharmacy, Polypharmacy and ageing - highly individualized, interprofessional, person-centered care : 19–21 October 2022, Prague, Czech Republic

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15th Конгресс Европейской ассоциации клинической фармакологии и терапии (ЕАКПТ)

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The International Headache Congress - IHS and EHF joint congress 2021 : Virtual. 8-12 September 2021.

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Резюме, представленные на 32nd Ежегодная конференция Международного общества по изучению качества жизни.

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АКНП 60th Ежегодное совещание: выдержки из плакатов P276 - P550.

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Methods to increase response to postal and electronic questionnaires.

BackgroundSelf-administered questionnaires are widely used to collect data in epidemiological research, but non-response reduces the effective sample size and can introduce bias. Finding ways to increase response to postal and electronic questionnaires would improve the quality of epidemiological research.ObjectivesTo identify effective strategies to increase response to postal and electronic questionnaires.Search methodsWe searched 14 electronic databases up to December 2021 and manually searched the reference lists of relevant trials and reviews. We contacted the authors of all trials or rev

Резюме докладов 2017 Ежегодное совещание Общества общей внутренней медицины.

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Abstracts of the 36th Annual Meeting of the Society of General Internal Medicine. April 24-27, 2013. Denver, Colorado, USA.

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